Diagnose yourself?

M

musclemania70

New member
I am really tired of doctors who can't diagnose a problem or seem to brush it off.

I know sometimes they are not to blame because CF can encompass SO MANY different problems/issues. But I really hate it when they don't listen or you have to ask them so many questions that you finally guide them to an answer or some other treatment strategy.

Is it that they just don't give a ****? Or they are only interested in getting paid and handing out antibiotics because there is simply no other effective form of treatment right now??

Isn't it crazy how far we've come that the problems that adult CF Patients are now having are literally dumbfounding the CF doctors? And that the only thing they know how to do is prescribe antibiotics?

I don't know where I'm going with this. I just needed to vent.

Are there any doctors out there that actually read these posts? I've always wondered that.
If so: LISTEN TO YOUR PATIENTS. THEY HAVE LIVED WITH A DISEASE THAT YOU HAVE ONLY READ ABOUT AND WITNESS. Its nice every once in a while to show some empathy too. A little goes a long way.

Does anyone else want to say something to their doctor? (anonymously)
 
M

musclemania70

New member
I am really tired of doctors who can't diagnose a problem or seem to brush it off.

I know sometimes they are not to blame because CF can encompass SO MANY different problems/issues. But I really hate it when they don't listen or you have to ask them so many questions that you finally guide them to an answer or some other treatment strategy.

Is it that they just don't give a ****? Or they are only interested in getting paid and handing out antibiotics because there is simply no other effective form of treatment right now??

Isn't it crazy how far we've come that the problems that adult CF Patients are now having are literally dumbfounding the CF doctors? And that the only thing they know how to do is prescribe antibiotics?

I don't know where I'm going with this. I just needed to vent.

Are there any doctors out there that actually read these posts? I've always wondered that.
If so: LISTEN TO YOUR PATIENTS. THEY HAVE LIVED WITH A DISEASE THAT YOU HAVE ONLY READ ABOUT AND WITNESS. Its nice every once in a while to show some empathy too. A little goes a long way.

Does anyone else want to say something to their doctor? (anonymously)
 
M

musclemania70

New member
I am really tired of doctors who can't diagnose a problem or seem to brush it off.

I know sometimes they are not to blame because CF can encompass SO MANY different problems/issues. But I really hate it when they don't listen or you have to ask them so many questions that you finally guide them to an answer or some other treatment strategy.

Is it that they just don't give a ****? Or they are only interested in getting paid and handing out antibiotics because there is simply no other effective form of treatment right now??

Isn't it crazy how far we've come that the problems that adult CF Patients are now having are literally dumbfounding the CF doctors? And that the only thing they know how to do is prescribe antibiotics?

I don't know where I'm going with this. I just needed to vent.

Are there any doctors out there that actually read these posts? I've always wondered that.
If so: LISTEN TO YOUR PATIENTS. THEY HAVE LIVED WITH A DISEASE THAT YOU HAVE ONLY READ ABOUT AND WITNESS. Its nice every once in a while to show some empathy too. A little goes a long way.

Does anyone else want to say something to their doctor? (anonymously)
 
M

musclemania70

New member
I am really tired of doctors who can't diagnose a problem or seem to brush it off.

I know sometimes they are not to blame because CF can encompass SO MANY different problems/issues. But I really hate it when they don't listen or you have to ask them so many questions that you finally guide them to an answer or some other treatment strategy.

Is it that they just don't give a ****? Or they are only interested in getting paid and handing out antibiotics because there is simply no other effective form of treatment right now??

Isn't it crazy how far we've come that the problems that adult CF Patients are now having are literally dumbfounding the CF doctors? And that the only thing they know how to do is prescribe antibiotics?

I don't know where I'm going with this. I just needed to vent.

Are there any doctors out there that actually read these posts? I've always wondered that.
If so: LISTEN TO YOUR PATIENTS. THEY HAVE LIVED WITH A DISEASE THAT YOU HAVE ONLY READ ABOUT AND WITNESS. Its nice every once in a while to show some empathy too. A little goes a long way.

Does anyone else want to say something to their doctor? (anonymously)
 
M

musclemania70

New member
I am really tired of doctors who can't diagnose a problem or seem to brush it off.
<br />
<br />I know sometimes they are not to blame because CF can encompass SO MANY different problems/issues. But I really hate it when they don't listen or you have to ask them so many questions that you finally guide them to an answer or some other treatment strategy.
<br />
<br />Is it that they just don't give a ****? Or they are only interested in getting paid and handing out antibiotics because there is simply no other effective form of treatment right now??
<br />
<br />Isn't it crazy how far we've come that the problems that adult CF Patients are now having are literally dumbfounding the CF doctors? And that the only thing they know how to do is prescribe antibiotics?
<br />
<br />I don't know where I'm going with this. I just needed to vent.
<br />
<br />Are there any doctors out there that actually read these posts? I've always wondered that.
<br />If so: LISTEN TO YOUR PATIENTS. THEY HAVE LIVED WITH A DISEASE THAT YOU HAVE ONLY READ ABOUT AND WITNESS. Its nice every once in a while to show some empathy too. A little goes a long way.
<br />
<br />Does anyone else want to say something to their doctor? (anonymously)
<br />
 
P

pegsoninthepresent

New member
I blame a lot of this on my poor health and i mean seriously poor health as a teenager when I was in the childrens clinic from 14 to 17 and 364 days......I needed a reality check that I got when I moved over to the adult clinic however,, while I did pick up from 27 peecent to 55 im now 44 percent so thats still 17 percent than when i came over to adults 5 years ago....but if I had beenin the adult cliic earlier or in a clinic wherre things were told as they were like instead of your doing ok.....i needed to here arron your ******** you are going to need a transplant soon which kicked me into gear...I think i wouldnt be this sick for aother 5 years...and if i had stayed in children clinic i would of died 3 years ago.
 
P

pegsoninthepresent

New member
I blame a lot of this on my poor health and i mean seriously poor health as a teenager when I was in the childrens clinic from 14 to 17 and 364 days......I needed a reality check that I got when I moved over to the adult clinic however,, while I did pick up from 27 peecent to 55 im now 44 percent so thats still 17 percent than when i came over to adults 5 years ago....but if I had beenin the adult cliic earlier or in a clinic wherre things were told as they were like instead of your doing ok.....i needed to here arron your ******** you are going to need a transplant soon which kicked me into gear...I think i wouldnt be this sick for aother 5 years...and if i had stayed in children clinic i would of died 3 years ago.
 
P

pegsoninthepresent

New member
I blame a lot of this on my poor health and i mean seriously poor health as a teenager when I was in the childrens clinic from 14 to 17 and 364 days......I needed a reality check that I got when I moved over to the adult clinic however,, while I did pick up from 27 peecent to 55 im now 44 percent so thats still 17 percent than when i came over to adults 5 years ago....but if I had beenin the adult cliic earlier or in a clinic wherre things were told as they were like instead of your doing ok.....i needed to here arron your ******** you are going to need a transplant soon which kicked me into gear...I think i wouldnt be this sick for aother 5 years...and if i had stayed in children clinic i would of died 3 years ago.
 
P

pegsoninthepresent

New member
I blame a lot of this on my poor health and i mean seriously poor health as a teenager when I was in the childrens clinic from 14 to 17 and 364 days......I needed a reality check that I got when I moved over to the adult clinic however,, while I did pick up from 27 peecent to 55 im now 44 percent so thats still 17 percent than when i came over to adults 5 years ago....but if I had beenin the adult cliic earlier or in a clinic wherre things were told as they were like instead of your doing ok.....i needed to here arron your ******** you are going to need a transplant soon which kicked me into gear...I think i wouldnt be this sick for aother 5 years...and if i had stayed in children clinic i would of died 3 years ago.
 
P

pegsoninthepresent

New member
I blame a lot of this on my poor health and i mean seriously poor health as a teenager when I was in the childrens clinic from 14 to 17 and 364 days......I needed a reality check that I got when I moved over to the adult clinic however,, while I did pick up from 27 peecent to 55 im now 44 percent so thats still 17 percent than when i came over to adults 5 years ago....but if I had beenin the adult cliic earlier or in a clinic wherre things were told as they were like instead of your doing ok.....i needed to here arron your ******** you are going to need a transplant soon which kicked me into gear...I think i wouldnt be this sick for aother 5 years...and if i had stayed in children clinic i would of died 3 years ago.
 
J

JennifersHope

New member
I love, adore and respect my doctors. I consider them to be very important in my life and I would be lost without them...

So what I would want to tell my doctors and my whole team is Thank you for being so dedicated...

I am sorry, if I were you I would find a team that understands you and cares for you...
 
J

JennifersHope

New member
I love, adore and respect my doctors. I consider them to be very important in my life and I would be lost without them...

So what I would want to tell my doctors and my whole team is Thank you for being so dedicated...

I am sorry, if I were you I would find a team that understands you and cares for you...
 
J

JennifersHope

New member
I love, adore and respect my doctors. I consider them to be very important in my life and I would be lost without them...

So what I would want to tell my doctors and my whole team is Thank you for being so dedicated...

I am sorry, if I were you I would find a team that understands you and cares for you...
 
J

JennifersHope

New member
I love, adore and respect my doctors. I consider them to be very important in my life and I would be lost without them...

So what I would want to tell my doctors and my whole team is Thank you for being so dedicated...

I am sorry, if I were you I would find a team that understands you and cares for you...
 
J

JennifersHope

New member
I love, adore and respect my doctors. I consider them to be very important in my life and I would be lost without them...
<br />
<br />So what I would want to tell my doctors and my whole team is Thank you for being so dedicated...
<br />
<br />I am sorry, if I were you I would find a team that understands you and cares for you...
 
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