Do Doctors think your worse than you are??

[flyfree]

Hey everybody. I'm David. I go to College in a small mountain town
in Colorado. The altitude of my school is just shy of 11,000 feet
and I ski multiple days in an average week. My Doctors told me
before I moved up here that I wouldn't be able to live here. I was
told that I would have serious problems breathing and that It would
be a unwise decision to live here yet now that I am here, i can
honestly say that I really don't have much problems breathing at
all up here and I aggressively downhill ski at the same pace as my
non CF friends without much problems. Although my PFT's aren't the
greatest, i am able to live a fully functioning life at high
altitude! But my doctors didn't think, and still don't think i
can. Does anyone else have a similar situation where you were told
by your doctors that your CF would limit you more then it truly
does?

 

[flyfree]

Hey everybody. I'm David. I go to College in a small mountain town
in Colorado. The altitude of my school is just shy of 11,000 feet
and I ski multiple days in an average week. My Doctors told me
before I moved up here that I wouldn't be able to live here. I was
told that I would have serious problems breathing and that It would
be a unwise decision to live here yet now that I am here, i can
honestly say that I really don't have much problems breathing at
all up here and I aggressively downhill ski at the same pace as my
non CF friends without much problems. Although my PFT's aren't the
greatest, i am able to live a fully functioning life at high
altitude! But my doctors didn't think, and still don't think i
can. Does anyone else have a similar situation where you were told
by your doctors that your CF would limit you more then it truly
does?

 

[flyfree]

Hey everybody. I'm David. I go to College in a small mountain town
in Colorado. The altitude of my school is just shy of 11,000 feet
and I ski multiple days in an average week. My Doctors told me
before I moved up here that I wouldn't be able to live here. I was
told that I would have serious problems breathing and that It would
be a unwise decision to live here yet now that I am here, i can
honestly say that I really don't have much problems breathing at
all up here and I aggressively downhill ski at the same pace as my
non CF friends without much problems. Although my PFT's aren't the
greatest, i am able to live a fully functioning life at high
altitude! But my doctors didn't think, and still don't think i
can. Does anyone else have a similar situation where you were told
by your doctors that your CF would limit you more then it truly
does?

 

[karenanne99]

Hey, I haven't really been told I could not do things (except play
hockey but I proved then wrong <img src="i/expressions/face-icon-small-tongue.gif" border="0">) but my doctor has told me
that it is time for a  tune-up when i know it definitely
isn't.  Like I know my health and stuff and although I realize
she's the doctor, doctor doesn't always know best. I usually go in
for a two week "tune-up" a few times a year so my doctor
tends to go by time ( like if it's been 3 months she is desperate
for me to come back in) when realistically I may feel 100%.....it
can be fusturating for sure but you know your own health and hey,
  it can be fun proving them wrong !! ( just make sure
you really are ok to do it and don't hurt urself for
 'spite'<br>
<br>
karen 18 cf

 

[karenanne99]

Hey, I haven't really been told I could not do things (except play
hockey but I proved then wrong <img src="i/expressions/face-icon-small-tongue.gif" border="0">) but my doctor has told me
that it is time for a  tune-up when i know it definitely
isn't.  Like I know my health and stuff and although I realize
she's the doctor, doctor doesn't always know best. I usually go in
for a two week "tune-up" a few times a year so my doctor
tends to go by time ( like if it's been 3 months she is desperate
for me to come back in) when realistically I may feel 100%.....it
can be fusturating for sure but you know your own health and hey,
  it can be fun proving them wrong !! ( just make sure
you really are ok to do it and don't hurt urself for
 'spite'<br>
<br>
karen 18 cf

 

[karenanne99]

Hey, I haven't really been told I could not do things (except play
hockey but I proved then wrong <img src="i/expressions/face-icon-small-tongue.gif" border="0">) but my doctor has told me
that it is time for a  tune-up when i know it definitely
isn't.  Like I know my health and stuff and although I realize
she's the doctor, doctor doesn't always know best. I usually go in
for a two week "tune-up" a few times a year so my doctor
tends to go by time ( like if it's been 3 months she is desperate
for me to come back in) when realistically I may feel 100%.....it
can be fusturating for sure but you know your own health and hey,
  it can be fun proving them wrong !! ( just make sure
you really are ok to do it and don't hurt urself for
 'spite'<br>
<br>
karen 18 cf

 

[JazzysMom]

I havent actually been told I couldnt do things, but they have been amazed at how I was able to do things when I was extremely sick. They dont know how I function at times. I am sure much of it is pure german stubborness!!!!

Keep in mind they usually go by statistics. BUT everyone is different!

 

[JazzysMom]

I havent actually been told I couldnt do things, but they have been amazed at how I was able to do things when I was extremely sick. They dont know how I function at times. I am sure much of it is pure german stubborness!!!!

Keep in mind they usually go by statistics. BUT everyone is different!

 

[JazzysMom]

I havent actually been told I couldnt do things, but they have been amazed at how I was able to do things when I was extremely sick. They dont know how I function at times. I am sure much of it is pure german stubborness!!!!

Keep in mind they usually go by statistics. BUT everyone is different!

 

[LiL1FiGhTiN4LiFe]

Hey my name is Meagan.. Doctors tell me all the time that im going to die and that my situation is worst then it really is... so now i dont know what to ever believe . I try very hard to keep myself up and when people see me they never think im sick with a incurable disease. I live my life everyday and try to make my life as normal as possible.

Meagan Loves Chino

 

[LiL1FiGhTiN4LiFe]

Hey my name is Meagan.. Doctors tell me all the time that im going to die and that my situation is worst then it really is... so now i dont know what to ever believe . I try very hard to keep myself up and when people see me they never think im sick with a incurable disease. I live my life everyday and try to make my life as normal as possible.

Meagan Loves Chino

 

[LiL1FiGhTiN4LiFe]

Hey my name is Meagan.. Doctors tell me all the time that im going to die and that my situation is worst then it really is... so now i dont know what to ever believe . I try very hard to keep myself up and when people see me they never think im sick with a incurable disease. I live my life everyday and try to make my life as normal as possible.

Meagan Loves Chino

 

[flyfree]

thats kind of messed up. i dont think doctors should being trying
to tell us we're all sick, they should be trying to encourage us!

 

[flyfree]

thats kind of messed up. i dont think doctors should being trying
to tell us we're all sick, they should be trying to encourage us!

 

[flyfree]

thats kind of messed up. i dont think doctors should being trying
to tell us we're all sick, they should be trying to encourage us!

 

[dude]

yes  but fly free what we have to understand is we are not
like normal people.We do have a serious illness {though some are
worser off than others}.We have to accept the harsh reality of life
that we have been unfortunate in life to be given this illness.Its
a case of accepting yourself and not trying to kid yourself that
you are normal

 

[dude]

yes  but fly free what we have to understand is we are not
like normal people.We do have a serious illness {though some are
worser off than others}.We have to accept the harsh reality of life
that we have been unfortunate in life to be given this illness.Its
a case of accepting yourself and not trying to kid yourself that
you are normal

 

[dude]

yes  but fly free what we have to understand is we are not
like normal people.We do have a serious illness {though some are
worser off than others}.We have to accept the harsh reality of life
that we have been unfortunate in life to be given this illness.Its
a case of accepting yourself and not trying to kid yourself that
you are normal

 

[LiL1FiGhTiN4LiFe]

i totally agree with you dude. but dont you ever just think about livin a normal life or some days actually live a normal life. nd ur totally right we do need to face the harsh reality... nd u know what when i face it i hate it more nd more nd i get these feelings that i can never explain and i sit there and ask WHY ME ??? or why does anyone ever have to be sick nd face the harshnes of all of it.. i dont know and i guess i never will

 

[LiL1FiGhTiN4LiFe]

i totally agree with you dude. but dont you ever just think about livin a normal life or some days actually live a normal life. nd ur totally right we do need to face the harsh reality... nd u know what when i face it i hate it more nd more nd i get these feelings that i can never explain and i sit there and ask WHY ME ??? or why does anyone ever have to be sick nd face the harshnes of all of it.. i dont know and i guess i never will