Does this sound like CF?

anonymous

New member
Hi,We adopted our beautiful boy from Russia 2 years ago. Since then he has repeated respiratory infections/pneumonia and chronic diarreha. He also has asthma. When he gets sick he has lots of "coughing fits" and gags and spits up a lot of mucus - especially at night or after eating. He has only gained about 1 pound in the last year. When he is not sick he is very happy and energetic. We recently moved and have gotten a new pediatrician and she had us schedule a sweat test. He goes on Wednesday.I read that people with CF can have a salty sweat on their skin. My little one has asked me to "quit tasting him", sometimes I get a slight salt taste and other times I don't taste it. I know I just need to wait until the test on Wednesday, but I was looking for some input. Is there anything else I should be "looking" for? I should probably just relax until the test but it's difficult.We also adopted his older brother (4yrs) and he has had a few respiratory infections but no digestive problems.Thanks
 

anonymous

New member
A lot of people have symptoms which are similar to CF, just like your son. A lot of people also get sweat tests and they come back negative. I know it is difficult but try to wait for the results of the test. By the way, my daughters skin is only 'salty' when she is sweating and you do not need to taste your son<img src="i/expressions/face-icon-small-happy.gif" border="0">. You would be able to taste the salt simply by kissing him in hot weather. If you do find that he is sweaty try and get him to drink lots of fluids, or add a little salt to his food. Good luck with the test and let us know how it goes. There are a lot of kind people on this site that will be thinking of you.
 

anonymous

New member
These do sound like classic signs of CF, however, it could not be CF either. I know it's hard to wait for these tests & the results, just hang in there.If it is CF, then there are alot of treatment options available to help your precious child and with the strides they are making in developing new medicines, therapies, etc-- there very well could be a cure found during your little one's lifetime. I've seen alot of advancements just in my lifetime. Please keep us posted37 yr old w/ CF<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
Top