I recently took my 4 year old to her pulminoligist for a routine exam and he expressed his concerns of her having CF. I have never heard of this and I am very uneducated about lung disorders and diseases and having a hard time figuring anything out online. My child has not digestive problems but was diagnosed with Asthma at 10 months and has been coughing every night for about 2 years until the point of vomiting, this is in the sitting up and laying down position. She has been on so many different medications for her cough and medications to help her lungs function properly but has never had any digestive problems besides having acid reflux and has had no problems gaining weight. Someone, anyone please give me your insite. They are going to do a sweat test in december but i find it hard to believe she could have had this for 4 years and gone undiagnosed.
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Does this sound like CF?
- Thread starter mom4holly
- Start date
I recently took my 4 year old to her pulminoligist for a routine exam and he expressed his concerns of her having CF. I have never heard of this and I am very uneducated about lung disorders and diseases and having a hard time figuring anything out online. My child has not digestive problems but was diagnosed with Asthma at 10 months and has been coughing every night for about 2 years until the point of vomiting, this is in the sitting up and laying down position. She has been on so many different medications for her cough and medications to help her lungs function properly but has never had any digestive problems besides having acid reflux and has had no problems gaining weight. Someone, anyone please give me your insite. They are going to do a sweat test in december but i find it hard to believe she could have had this for 4 years and gone undiagnosed.
I recently took my 4 year old to her pulminoligist for a routine exam and he expressed his concerns of her having CF. I have never heard of this and I am very uneducated about lung disorders and diseases and having a hard time figuring anything out online. My child has not digestive problems but was diagnosed with Asthma at 10 months and has been coughing every night for about 2 years until the point of vomiting, this is in the sitting up and laying down position. She has been on so many different medications for her cough and medications to help her lungs function properly but has never had any digestive problems besides having acid reflux and has had no problems gaining weight. Someone, anyone please give me your insite. They are going to do a sweat test in december but i find it hard to believe she could have had this for 4 years and gone undiagnosed.
people go for 3 or 4 decades with undiagnosed CF.
get the kid GENE tesed. sweat test is a primative and out of date way to detect CF.
and i would do it ASAP....don't wait until december. just get it done.
CF varies widely in symptoms, so there's a chance your little one could have CF.
keep us posted
get the kid GENE tesed. sweat test is a primative and out of date way to detect CF.
and i would do it ASAP....don't wait until december. just get it done.
CF varies widely in symptoms, so there's a chance your little one could have CF.
keep us posted
people go for 3 or 4 decades with undiagnosed CF.
get the kid GENE tesed. sweat test is a primative and out of date way to detect CF.
and i would do it ASAP....don't wait until december. just get it done.
CF varies widely in symptoms, so there's a chance your little one could have CF.
keep us posted
get the kid GENE tesed. sweat test is a primative and out of date way to detect CF.
and i would do it ASAP....don't wait until december. just get it done.
CF varies widely in symptoms, so there's a chance your little one could have CF.
keep us posted
people go for 3 or 4 decades with undiagnosed CF.
get the kid GENE tesed. sweat test is a primative and out of date way to detect CF.
and i would do it ASAP....don't wait until december. just get it done.
CF varies widely in symptoms, so there's a chance your little one could have CF.
keep us posted
get the kid GENE tesed. sweat test is a primative and out of date way to detect CF.
and i would do it ASAP....don't wait until december. just get it done.
CF varies widely in symptoms, so there's a chance your little one could have CF.
keep us posted
I can not get a gene test done because her father will not consent. I am very worried about this because i just read that a child can posses the resp symptoms without the digestive symptoms and still have it. Can they do a gene test without the father and are sweat test sometimes wrong. She is on several different meds for her "asthma" and right now on a 4 weeks string of anti's for a possible sinus infections.
I can not get a gene test done because her father will not consent. I am very worried about this because i just read that a child can posses the resp symptoms without the digestive symptoms and still have it. Can they do a gene test without the father and are sweat test sometimes wrong. She is on several different meds for her "asthma" and right now on a 4 weeks string of anti's for a possible sinus infections.
I can not get a gene test done because her father will not consent. I am very worried about this because i just read that a child can posses the resp symptoms without the digestive symptoms and still have it. Can they do a gene test without the father and are sweat test sometimes wrong. She is on several different meds for her "asthma" and right now on a 4 weeks string of anti's for a possible sinus infections.
the test is for a set of CF genes. you don't need parents for genetic testing, as far as i know. the gene is either there or not.
sweat tests can give false negatives. this is why genetic testing is better. however, not all CF genes have been identified, so genetic testing is not 100% correct either.
regardless of what you decide, i would get the test done as soon as possible. there's no sense in having your child suffer for a few extra weeks undiagnosed.
sweat tests can give false negatives. this is why genetic testing is better. however, not all CF genes have been identified, so genetic testing is not 100% correct either.
regardless of what you decide, i would get the test done as soon as possible. there's no sense in having your child suffer for a few extra weeks undiagnosed.
the test is for a set of CF genes. you don't need parents for genetic testing, as far as i know. the gene is either there or not.
sweat tests can give false negatives. this is why genetic testing is better. however, not all CF genes have been identified, so genetic testing is not 100% correct either.
regardless of what you decide, i would get the test done as soon as possible. there's no sense in having your child suffer for a few extra weeks undiagnosed.
sweat tests can give false negatives. this is why genetic testing is better. however, not all CF genes have been identified, so genetic testing is not 100% correct either.
regardless of what you decide, i would get the test done as soon as possible. there's no sense in having your child suffer for a few extra weeks undiagnosed.
the test is for a set of CF genes. you don't need parents for genetic testing, as far as i know. the gene is either there or not.
sweat tests can give false negatives. this is why genetic testing is better. however, not all CF genes have been identified, so genetic testing is not 100% correct either.
regardless of what you decide, i would get the test done as soon as possible. there's no sense in having your child suffer for a few extra weeks undiagnosed.
sweat tests can give false negatives. this is why genetic testing is better. however, not all CF genes have been identified, so genetic testing is not 100% correct either.
regardless of what you decide, i would get the test done as soon as possible. there's no sense in having your child suffer for a few extra weeks undiagnosed.
For the genetic test, they will draw some blood and look for mutations. These can also give false negatives (just like a sweat test can) but they are more accurate than a sweat test.
Good for your pulm to look into this! Too many doctors think "it can't be CF bc they aren't sick enough, thin enough, etc".
Best Wishes!
Good for your pulm to look into this! Too many doctors think "it can't be CF bc they aren't sick enough, thin enough, etc".
Best Wishes!
For the genetic test, they will draw some blood and look for mutations. These can also give false negatives (just like a sweat test can) but they are more accurate than a sweat test.
Good for your pulm to look into this! Too many doctors think "it can't be CF bc they aren't sick enough, thin enough, etc".
Best Wishes!
Good for your pulm to look into this! Too many doctors think "it can't be CF bc they aren't sick enough, thin enough, etc".
Best Wishes!
For the genetic test, they will draw some blood and look for mutations. These can also give false negatives (just like a sweat test can) but they are more accurate than a sweat test.
Good for your pulm to look into this! Too many doctors think "it can't be CF bc they aren't sick enough, thin enough, etc".
Best Wishes!
Good for your pulm to look into this! Too many doctors think "it can't be CF bc they aren't sick enough, thin enough, etc".
Best Wishes!
Is there any way to do the sweat test earlier? I personally hate to see them wait so long when your child could start receiving the proper treatment sooner.
CF expresses itself in so many different ways; it would not be completely unheard of for your child to not have digestive symptoms.
I also agree that if you have custody of your child and are in charge of medical decisions, then you should be able to authorize the blood draw to check her for CF mutations.
I am hoping for the best for you and your daughter.
Dana
Mom to Katy (3, cf) and Kyra (6, no cf)
CF expresses itself in so many different ways; it would not be completely unheard of for your child to not have digestive symptoms.
I also agree that if you have custody of your child and are in charge of medical decisions, then you should be able to authorize the blood draw to check her for CF mutations.
I am hoping for the best for you and your daughter.
Dana
Mom to Katy (3, cf) and Kyra (6, no cf)
Is there any way to do the sweat test earlier? I personally hate to see them wait so long when your child could start receiving the proper treatment sooner.
CF expresses itself in so many different ways; it would not be completely unheard of for your child to not have digestive symptoms.
I also agree that if you have custody of your child and are in charge of medical decisions, then you should be able to authorize the blood draw to check her for CF mutations.
I am hoping for the best for you and your daughter.
Dana
Mom to Katy (3, cf) and Kyra (6, no cf)
CF expresses itself in so many different ways; it would not be completely unheard of for your child to not have digestive symptoms.
I also agree that if you have custody of your child and are in charge of medical decisions, then you should be able to authorize the blood draw to check her for CF mutations.
I am hoping for the best for you and your daughter.
Dana
Mom to Katy (3, cf) and Kyra (6, no cf)
Is there any way to do the sweat test earlier? I personally hate to see them wait so long when your child could start receiving the proper treatment sooner.
CF expresses itself in so many different ways; it would not be completely unheard of for your child to not have digestive symptoms.
I also agree that if you have custody of your child and are in charge of medical decisions, then you should be able to authorize the blood draw to check her for CF mutations.
I am hoping for the best for you and your daughter.
Dana
Mom to Katy (3, cf) and Kyra (6, no cf)
CF expresses itself in so many different ways; it would not be completely unheard of for your child to not have digestive symptoms.
I also agree that if you have custody of your child and are in charge of medical decisions, then you should be able to authorize the blood draw to check her for CF mutations.
I am hoping for the best for you and your daughter.
Dana
Mom to Katy (3, cf) and Kyra (6, no cf)
<i>Jade here.....</i>
If you are divorced, seperated, ect, then it might be posssible to obtain consent from another close relative such as a sibling or grandparent. I'll dig a little and see what I can find out about testing and consent issues<img src="i/expressions/face-icon-small-cool.gif" border="0">.
If you are divorced, seperated, ect, then it might be posssible to obtain consent from another close relative such as a sibling or grandparent. I'll dig a little and see what I can find out about testing and consent issues<img src="i/expressions/face-icon-small-cool.gif" border="0">.
<i>Jade here.....</i>
If you are divorced, seperated, ect, then it might be posssible to obtain consent from another close relative such as a sibling or grandparent. I'll dig a little and see what I can find out about testing and consent issues<img src="i/expressions/face-icon-small-cool.gif" border="0">.
If you are divorced, seperated, ect, then it might be posssible to obtain consent from another close relative such as a sibling or grandparent. I'll dig a little and see what I can find out about testing and consent issues<img src="i/expressions/face-icon-small-cool.gif" border="0">.