Does your state provide assistance for CF?

[2cfers]

I am working with some legislators in Iowa trying to get funding for people with cystic fibrosis that have insurance but cannot afford the costs of their health care like Medications and doctors copays.

Iowa has a ill and handicapped waiver but you have to be declared disabled and my kids are not disabled at this time. With the waiver you qualify for Medicaid and other services.

If anyone has advice or their is programs in your state you know of let me know.

Thanks


Christy

 

[2cfers]

I am working with some legislators in Iowa trying to get funding for people with cystic fibrosis that have insurance but cannot afford the costs of their health care like Medications and doctors copays.

Iowa has a ill and handicapped waiver but you have to be declared disabled and my kids are not disabled at this time. With the waiver you qualify for Medicaid and other services.

If anyone has advice or their is programs in your state you know of let me know.

Thanks


Christy

 

[2cfers]

I am working with some legislators in Iowa trying to get funding for people with cystic fibrosis that have insurance but cannot afford the costs of their health care like Medications and doctors copays.

Iowa has a ill and handicapped waiver but you have to be declared disabled and my kids are not disabled at this time. With the waiver you qualify for Medicaid and other services.

If anyone has advice or their is programs in your state you know of let me know.

Thanks


Christy

 

[2cfers]

I am working with some legislators in Iowa trying to get funding for people with cystic fibrosis that have insurance but cannot afford the costs of their health care like Medications and doctors copays.

Iowa has a ill and handicapped waiver but you have to be declared disabled and my kids are not disabled at this time. With the waiver you qualify for Medicaid and other services.

If anyone has advice or their is programs in your state you know of let me know.

Thanks


Christy

 

[2cfers]

I am working with some legislators in Iowa trying to get funding for people with cystic fibrosis that have insurance but cannot afford the costs of their health care like Medications and doctors copays.

Iowa has a ill and handicapped waiver but you have to be declared disabled and my kids are not disabled at this time. With the waiver you qualify for Medicaid and other services.

If anyone has advice or their is programs in your state you know of let me know.

Thanks


Christy

 

[mom2lillian]

Christy-Michigna has what used to be called crippled childrens but is nwo called michigan special supplementary health care. It provides insurance which is a form of medicaid to those children under 18 with a condition that causes what they consider 'catastrophic' medical bills. Conditions which are covered are hemophilia, type 1 diabetes, CF (I know there are others but I dont know which ones). I believe CF is one of the 3 diseases that this program will cover you under for life (this is a throw back fromw hen 'life' was a lot shorter and has not been taken away, thankfully).

It is a program based on income so they do a sliding scale based on family size, if you are above that level then you can pay a fee up to a couple hundred bucks a month to qualify but there is an upper level cut off as my DH and I no longer qualify <img src="i/expressions/face-icon-small-sad.gif" border="0"> but now that we have a child we might I will have ot look into that <img src="i/expressions/face-icon-small-smile.gif" border="0">. Thanks for the reminder.

We are one of I believe 8 states (that was a # years ago) that had this type program however with the budget crisis MI is under our dear democratic govenor Granholm <img src="i/expressions/face-icon-small-mad.gif" border="0"> **rolls eyes** has been trying to get this coverage taken away--way to be for the poeple, sick and poor. The past two years there has been a committee fighting to keep it and so far we have but each year it's back on chopping block again, I feel it is only a matter of time and many at the CF clinic have already warned others of this.

good luck with your quest

ps I believe MI covers a bit too much so if your policy didnt perhaps it would be more manageable. Example, you dont pay any copays not $5 even so if your coverage is free you never pay a penny for it or any bill, there should at least be copays nothing should ever be 'free' and it is not supposed to cover non condition related illness or accidents but it always does so if my baby sister who has diabetes breaks her leg often times they will blindly cover these charges without caring. A smarter control on the system woudl make it more feasible to keep around IMO.

 

[mom2lillian]

Christy-Michigna has what used to be called crippled childrens but is nwo called michigan special supplementary health care. It provides insurance which is a form of medicaid to those children under 18 with a condition that causes what they consider 'catastrophic' medical bills. Conditions which are covered are hemophilia, type 1 diabetes, CF (I know there are others but I dont know which ones). I believe CF is one of the 3 diseases that this program will cover you under for life (this is a throw back fromw hen 'life' was a lot shorter and has not been taken away, thankfully).

It is a program based on income so they do a sliding scale based on family size, if you are above that level then you can pay a fee up to a couple hundred bucks a month to qualify but there is an upper level cut off as my DH and I no longer qualify <img src="i/expressions/face-icon-small-sad.gif" border="0"> but now that we have a child we might I will have ot look into that <img src="i/expressions/face-icon-small-smile.gif" border="0">. Thanks for the reminder.

We are one of I believe 8 states (that was a # years ago) that had this type program however with the budget crisis MI is under our dear democratic govenor Granholm <img src="i/expressions/face-icon-small-mad.gif" border="0"> **rolls eyes** has been trying to get this coverage taken away--way to be for the poeple, sick and poor. The past two years there has been a committee fighting to keep it and so far we have but each year it's back on chopping block again, I feel it is only a matter of time and many at the CF clinic have already warned others of this.

good luck with your quest

ps I believe MI covers a bit too much so if your policy didnt perhaps it would be more manageable. Example, you dont pay any copays not $5 even so if your coverage is free you never pay a penny for it or any bill, there should at least be copays nothing should ever be 'free' and it is not supposed to cover non condition related illness or accidents but it always does so if my baby sister who has diabetes breaks her leg often times they will blindly cover these charges without caring. A smarter control on the system woudl make it more feasible to keep around IMO.

 

[mom2lillian]

Christy-Michigna has what used to be called crippled childrens but is nwo called michigan special supplementary health care. It provides insurance which is a form of medicaid to those children under 18 with a condition that causes what they consider 'catastrophic' medical bills. Conditions which are covered are hemophilia, type 1 diabetes, CF (I know there are others but I dont know which ones). I believe CF is one of the 3 diseases that this program will cover you under for life (this is a throw back fromw hen 'life' was a lot shorter and has not been taken away, thankfully).

It is a program based on income so they do a sliding scale based on family size, if you are above that level then you can pay a fee up to a couple hundred bucks a month to qualify but there is an upper level cut off as my DH and I no longer qualify <img src="i/expressions/face-icon-small-sad.gif" border="0"> but now that we have a child we might I will have ot look into that <img src="i/expressions/face-icon-small-smile.gif" border="0">. Thanks for the reminder.

We are one of I believe 8 states (that was a # years ago) that had this type program however with the budget crisis MI is under our dear democratic govenor Granholm <img src="i/expressions/face-icon-small-mad.gif" border="0"> **rolls eyes** has been trying to get this coverage taken away--way to be for the poeple, sick and poor. The past two years there has been a committee fighting to keep it and so far we have but each year it's back on chopping block again, I feel it is only a matter of time and many at the CF clinic have already warned others of this.

good luck with your quest

ps I believe MI covers a bit too much so if your policy didnt perhaps it would be more manageable. Example, you dont pay any copays not $5 even so if your coverage is free you never pay a penny for it or any bill, there should at least be copays nothing should ever be 'free' and it is not supposed to cover non condition related illness or accidents but it always does so if my baby sister who has diabetes breaks her leg often times they will blindly cover these charges without caring. A smarter control on the system woudl make it more feasible to keep around IMO.

 

[mom2lillian]

Christy-Michigna has what used to be called crippled childrens but is nwo called michigan special supplementary health care. It provides insurance which is a form of medicaid to those children under 18 with a condition that causes what they consider 'catastrophic' medical bills. Conditions which are covered are hemophilia, type 1 diabetes, CF (I know there are others but I dont know which ones). I believe CF is one of the 3 diseases that this program will cover you under for life (this is a throw back fromw hen 'life' was a lot shorter and has not been taken away, thankfully).

It is a program based on income so they do a sliding scale based on family size, if you are above that level then you can pay a fee up to a couple hundred bucks a month to qualify but there is an upper level cut off as my DH and I no longer qualify <img src="i/expressions/face-icon-small-sad.gif" border="0"> but now that we have a child we might I will have ot look into that <img src="i/expressions/face-icon-small-smile.gif" border="0">. Thanks for the reminder.

We are one of I believe 8 states (that was a # years ago) that had this type program however with the budget crisis MI is under our dear democratic govenor Granholm <img src="i/expressions/face-icon-small-mad.gif" border="0"> **rolls eyes** has been trying to get this coverage taken away--way to be for the poeple, sick and poor. The past two years there has been a committee fighting to keep it and so far we have but each year it's back on chopping block again, I feel it is only a matter of time and many at the CF clinic have already warned others of this.

good luck with your quest

ps I believe MI covers a bit too much so if your policy didnt perhaps it would be more manageable. Example, you dont pay any copays not $5 even so if your coverage is free you never pay a penny for it or any bill, there should at least be copays nothing should ever be 'free' and it is not supposed to cover non condition related illness or accidents but it always does so if my baby sister who has diabetes breaks her leg often times they will blindly cover these charges without caring. A smarter control on the system woudl make it more feasible to keep around IMO.

 

[mom2lillian]

Christy-Michigna has what used to be called crippled childrens but is nwo called michigan special supplementary health care. It provides insurance which is a form of medicaid to those children under 18 with a condition that causes what they consider 'catastrophic' medical bills. Conditions which are covered are hemophilia, type 1 diabetes, CF (I know there are others but I dont know which ones). I believe CF is one of the 3 diseases that this program will cover you under for life (this is a throw back fromw hen 'life' was a lot shorter and has not been taken away, thankfully).

It is a program based on income so they do a sliding scale based on family size, if you are above that level then you can pay a fee up to a couple hundred bucks a month to qualify but there is an upper level cut off as my DH and I no longer qualify <img src="i/expressions/face-icon-small-sad.gif" border="0"> but now that we have a child we might I will have ot look into that <img src="i/expressions/face-icon-small-smile.gif" border="0">. Thanks for the reminder.

We are one of I believe 8 states (that was a # years ago) that had this type program however with the budget crisis MI is under our dear democratic govenor Granholm <img src="i/expressions/face-icon-small-mad.gif" border="0"> **rolls eyes** has been trying to get this coverage taken away--way to be for the poeple, sick and poor. The past two years there has been a committee fighting to keep it and so far we have but each year it's back on chopping block again, I feel it is only a matter of time and many at the CF clinic have already warned others of this.

good luck with your quest

ps I believe MI covers a bit too much so if your policy didnt perhaps it would be more manageable. Example, you dont pay any copays not $5 even so if your coverage is free you never pay a penny for it or any bill, there should at least be copays nothing should ever be 'free' and it is not supposed to cover non condition related illness or accidents but it always does so if my baby sister who has diabetes breaks her leg often times they will blindly cover these charges without caring. A smarter control on the system woudl make it more feasible to keep around IMO.

 

[Ratatosk]

There are programs in our state that are income based (very LOW income) which include CFers. And apparently -- we found out after the fact that CFers are covered under Medical Assistance until the age of 3. Gee thanks worthless social work department at the clinic.

Where we live - ND there was a child with Russell Silver whose parents considered upper/moderate income level, were covered under regular insurance and up to the age of 3 under MA -- the legislature made it possible for any person with russell silver to receive state medical assistance regardless of insurance or income. So you may want to check out discovernd.com and do a search under legislation to come up with some similar wording, etc.

Here's a press release from the governor's office with details:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.governor.nd.gov/media/news-releases/2005/04/050408.html
">http://www.governor.nd.gov/med...s/2005/04/050408.html
</a>

 

[Ratatosk]

There are programs in our state that are income based (very LOW income) which include CFers. And apparently -- we found out after the fact that CFers are covered under Medical Assistance until the age of 3. Gee thanks worthless social work department at the clinic.

Where we live - ND there was a child with Russell Silver whose parents considered upper/moderate income level, were covered under regular insurance and up to the age of 3 under MA -- the legislature made it possible for any person with russell silver to receive state medical assistance regardless of insurance or income. So you may want to check out discovernd.com and do a search under legislation to come up with some similar wording, etc.

Here's a press release from the governor's office with details:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.governor.nd.gov/media/news-releases/2005/04/050408.html
">http://www.governor.nd.gov/med...s/2005/04/050408.html
</a>

 

[Ratatosk]

There are programs in our state that are income based (very LOW income) which include CFers. And apparently -- we found out after the fact that CFers are covered under Medical Assistance until the age of 3. Gee thanks worthless social work department at the clinic.

Where we live - ND there was a child with Russell Silver whose parents considered upper/moderate income level, were covered under regular insurance and up to the age of 3 under MA -- the legislature made it possible for any person with russell silver to receive state medical assistance regardless of insurance or income. So you may want to check out discovernd.com and do a search under legislation to come up with some similar wording, etc.

Here's a press release from the governor's office with details:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.governor.nd.gov/media/news-releases/2005/04/050408.html
">http://www.governor.nd.gov/med...s/2005/04/050408.html
</a>

 

[Ratatosk]

There are programs in our state that are income based (very LOW income) which include CFers. And apparently -- we found out after the fact that CFers are covered under Medical Assistance until the age of 3. Gee thanks worthless social work department at the clinic.

Where we live - ND there was a child with Russell Silver whose parents considered upper/moderate income level, were covered under regular insurance and up to the age of 3 under MA -- the legislature made it possible for any person with russell silver to receive state medical assistance regardless of insurance or income. So you may want to check out discovernd.com and do a search under legislation to come up with some similar wording, etc.

Here's a press release from the governor's office with details:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.governor.nd.gov/media/news-releases/2005/04/050408.html
">http://www.governor.nd.gov/med...s/2005/04/050408.html
</a>

 

[Ratatosk]

There are programs in our state that are income based (very LOW income) which include CFers. And apparently -- we found out after the fact that CFers are covered under Medical Assistance until the age of 3. Gee thanks worthless social work department at the clinic.

Where we live - ND there was a child with Russell Silver whose parents considered upper/moderate income level, were covered under regular insurance and up to the age of 3 under MA -- the legislature made it possible for any person with russell silver to receive state medical assistance regardless of insurance or income. So you may want to check out discovernd.com and do a search under legislation to come up with some similar wording, etc.

Here's a press release from the governor's office with details:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.governor.nd.gov/media/news-releases/2005/04/050408.html
">http://www.governor.nd.gov/med...s/2005/04/050408.html
</a>

 

[nicole781]

Christy,

In PA there is a program called ma loophole ps95, i believe, and it covers EVERYTHING for a child with cf up until the age of 18 or 21 i'm pretty sure. This program isn't based upon income, just upon diagnosis. if you don't have insurance, it covers the child under medicaid as teh primary insurance, and if you already have insurance, it ocvers everything that your insurance doesn't, (like copays and prescriptions) as secondary insurance. It doesn't just cover CF related illness, it covers EVERYTHING, including dental and vision.
If you have any other questions let me know... Alexa just started the program a few weeks ago.
Hope this helps!

 

[nicole781]

Christy,

In PA there is a program called ma loophole ps95, i believe, and it covers EVERYTHING for a child with cf up until the age of 18 or 21 i'm pretty sure. This program isn't based upon income, just upon diagnosis. if you don't have insurance, it covers the child under medicaid as teh primary insurance, and if you already have insurance, it ocvers everything that your insurance doesn't, (like copays and prescriptions) as secondary insurance. It doesn't just cover CF related illness, it covers EVERYTHING, including dental and vision.
If you have any other questions let me know... Alexa just started the program a few weeks ago.
Hope this helps!

 

[nicole781]

Christy,

In PA there is a program called ma loophole ps95, i believe, and it covers EVERYTHING for a child with cf up until the age of 18 or 21 i'm pretty sure. This program isn't based upon income, just upon diagnosis. if you don't have insurance, it covers the child under medicaid as teh primary insurance, and if you already have insurance, it ocvers everything that your insurance doesn't, (like copays and prescriptions) as secondary insurance. It doesn't just cover CF related illness, it covers EVERYTHING, including dental and vision.
If you have any other questions let me know... Alexa just started the program a few weeks ago.
Hope this helps!

 

[nicole781]

Christy,

In PA there is a program called ma loophole ps95, i believe, and it covers EVERYTHING for a child with cf up until the age of 18 or 21 i'm pretty sure. This program isn't based upon income, just upon diagnosis. if you don't have insurance, it covers the child under medicaid as teh primary insurance, and if you already have insurance, it ocvers everything that your insurance doesn't, (like copays and prescriptions) as secondary insurance. It doesn't just cover CF related illness, it covers EVERYTHING, including dental and vision.
If you have any other questions let me know... Alexa just started the program a few weeks ago.
Hope this helps!

 

[nicole781]

Christy,

In PA there is a program called ma loophole ps95, i believe, and it covers EVERYTHING for a child with cf up until the age of 18 or 21 i'm pretty sure. This program isn't based upon income, just upon diagnosis. if you don't have insurance, it covers the child under medicaid as teh primary insurance, and if you already have insurance, it ocvers everything that your insurance doesn't, (like copays and prescriptions) as secondary insurance. It doesn't just cover CF related illness, it covers EVERYTHING, including dental and vision.
If you have any other questions let me know... Alexa just started the program a few weeks ago.
Hope this helps!