down to the wire!

ashton2005

New member
well everyone surgery is monday!!! hopefully all goes well and he eats good and his lower bowel expands from not being used and he will make it home in time for christmas.. as of now he is still on TPN and lipids these are his main sources of nutrition. then he gets perialyte and progestimil due to him starting to dump toooo much from his ostomy when they were mixing with breastmilk.. Ashton didnt get to go home with his ostomy due to how high his was where his bowel wasent formed.. so hopefully everythin will go well with surgery... everyone keep him in your thought and prayers...

out of all of this he loves his chest pt it is hilarious to watch he just falls asleep and lets them do their thingg..

thanks everyone
christi
ashtons mommy 6 weeks old sunday
 

rose4cale

New member
We'll be thinking about Ashton, and you, on Monday. Prayers that everything goes well, and you'll be home for Christmas!

Stay strong and let us know how it goes!
 

julie

New member
Christi,

You guys will be in my thoughts and prayers. Please let us know how it goes and know that we are hoping for nothing bu the best!
 

anonymous

New member
Christi, I hope the surgery goes well and your little guy is home for Christmas! He will be in my prayers!

Hugs,
Kelli (mom of Sydney 2.5 wcf) in NE IN
 

izemmom

New member
You'll be in my prayers, too. Isn't it funny how they love the chest pt? My emily (almost 6 weeks) loves it! In fact, I've started to do it when she gets fussy because it calms her down. We just made it home in time for Thanksgiving, so I'll be hoping that you get to be home for Christmas. Love to you!

Tami (mom of Emily 5 wks w/cf) in WI
 

anonymous

New member
Best wishes on Monday! We'll be thinking good thoughts! Sounds like you're in good hands.

A note on the Pregestimil too...if you're not able to get any subsidy from the state for the Pregestimil, call and write the company to their Helping Hands program. Even though we are above most income guidelines they gave us a terrific deal on buying directly from the company.

Hang in there!
 
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