I am getting ready to start inhaled Aztreanam as part of the EAP. The center I go to is telling me I can not use the e-flow with Tobi or Pulmozyme because of FDA approval on it. I know that some of you on here are using it for those meds. How are you doing it?? I know some of you have the Tobi specially mixed at IV solutions. Does your insurance pay for that? I just am not understanding why there is not consistency from center to center on this. Are these the strict regulations that the pharmaceutical company placed on the use of the e-flow in order to participate in the EAP and are others just getting around it somehow. If I do go ahead and do it, will I get in trouble<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> Please help!
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e-flow
- Thread starter Skye
- Start date
I am getting ready to start inhaled Aztreanam as part of the EAP. The center I go to is telling me I can not use the e-flow with Tobi or Pulmozyme because of FDA approval on it. I know that some of you on here are using it for those meds. How are you doing it?? I know some of you have the Tobi specially mixed at IV solutions. Does your insurance pay for that? I just am not understanding why there is not consistency from center to center on this. Are these the strict regulations that the pharmaceutical company placed on the use of the e-flow in order to participate in the EAP and are others just getting around it somehow. If I do go ahead and do it, will I get in trouble<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> Please help!
I am getting ready to start inhaled Aztreanam as part of the EAP. The center I go to is telling me I can not use the e-flow with Tobi or Pulmozyme because of FDA approval on it. I know that some of you on here are using it for those meds. How are you doing it?? I know some of you have the Tobi specially mixed at IV solutions. Does your insurance pay for that? I just am not understanding why there is not consistency from center to center on this. Are these the strict regulations that the pharmaceutical company placed on the use of the e-flow in order to participate in the EAP and are others just getting around it somehow. If I do go ahead and do it, will I get in trouble<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> Please help!
I am getting ready to start inhaled Aztreanam as part of the EAP. The center I go to is telling me I can not use the e-flow with Tobi or Pulmozyme because of FDA approval on it. I know that some of you on here are using it for those meds. How are you doing it?? I know some of you have the Tobi specially mixed at IV solutions. Does your insurance pay for that? I just am not understanding why there is not consistency from center to center on this. Are these the strict regulations that the pharmaceutical company placed on the use of the e-flow in order to participate in the EAP and are others just getting around it somehow. If I do go ahead and do it, will I get in trouble<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> Please help!
I am getting ready to start inhaled Aztreanam as part of the EAP. The center I go to is telling me I can not use the e-flow with Tobi or Pulmozyme because of FDA approval on it. I know that some of you on here are using it for those meds. How are you doing it?? I know some of you have the Tobi specially mixed at IV solutions. Does your insurance pay for that? I just am not understanding why there is not consistency from center to center on this. Are these the strict regulations that the pharmaceutical company placed on the use of the e-flow in order to participate in the EAP and are others just getting around it somehow. If I do go ahead and do it, will I get in trouble<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> Please help!
blondelawyer
New member
We have been through this with our clinic as well and they are still saying "No" to tobra. My understanding is that you need to use a different mix of tobramycin and CANNOT use TOBI itself in the eFlow. My husband's doctor said that he "can" do an off label use, but she won't prescribe the tobra, so in effect, he cannot do it. He has decided that he doesn't want to press her on it right now, but we may in the future.
IV solutions has some information and will call your doctor for you (they did for us).
My understanding from my husband's doctor is that they are just considered because of there are many studies about tobra and the eFlow and that they are very concerned about toxicity on the one hand and resistance on the other hand.
IV solutions has some information and will call your doctor for you (they did for us).
My understanding from my husband's doctor is that they are just considered because of there are many studies about tobra and the eFlow and that they are very concerned about toxicity on the one hand and resistance on the other hand.
blondelawyer
New member
We have been through this with our clinic as well and they are still saying "No" to tobra. My understanding is that you need to use a different mix of tobramycin and CANNOT use TOBI itself in the eFlow. My husband's doctor said that he "can" do an off label use, but she won't prescribe the tobra, so in effect, he cannot do it. He has decided that he doesn't want to press her on it right now, but we may in the future.
IV solutions has some information and will call your doctor for you (they did for us).
My understanding from my husband's doctor is that they are just considered because of there are many studies about tobra and the eFlow and that they are very concerned about toxicity on the one hand and resistance on the other hand.
IV solutions has some information and will call your doctor for you (they did for us).
My understanding from my husband's doctor is that they are just considered because of there are many studies about tobra and the eFlow and that they are very concerned about toxicity on the one hand and resistance on the other hand.
blondelawyer
New member
We have been through this with our clinic as well and they are still saying "No" to tobra. My understanding is that you need to use a different mix of tobramycin and CANNOT use TOBI itself in the eFlow. My husband's doctor said that he "can" do an off label use, but she won't prescribe the tobra, so in effect, he cannot do it. He has decided that he doesn't want to press her on it right now, but we may in the future.
IV solutions has some information and will call your doctor for you (they did for us).
My understanding from my husband's doctor is that they are just considered because of there are many studies about tobra and the eFlow and that they are very concerned about toxicity on the one hand and resistance on the other hand.
IV solutions has some information and will call your doctor for you (they did for us).
My understanding from my husband's doctor is that they are just considered because of there are many studies about tobra and the eFlow and that they are very concerned about toxicity on the one hand and resistance on the other hand.
blondelawyer
New member
We have been through this with our clinic as well and they are still saying "No" to tobra. My understanding is that you need to use a different mix of tobramycin and CANNOT use TOBI itself in the eFlow. My husband's doctor said that he "can" do an off label use, but she won't prescribe the tobra, so in effect, he cannot do it. He has decided that he doesn't want to press her on it right now, but we may in the future.
IV solutions has some information and will call your doctor for you (they did for us).
My understanding from my husband's doctor is that they are just considered because of there are many studies about tobra and the eFlow and that they are very concerned about toxicity on the one hand and resistance on the other hand.
IV solutions has some information and will call your doctor for you (they did for us).
My understanding from my husband's doctor is that they are just considered because of there are many studies about tobra and the eFlow and that they are very concerned about toxicity on the one hand and resistance on the other hand.
blondelawyer
New member
We have been through this with our clinic as well and they are still saying "No" to tobra. My understanding is that you need to use a different mix of tobramycin and CANNOT use TOBI itself in the eFlow. My husband's doctor said that he "can" do an off label use, but she won't prescribe the tobra, so in effect, he cannot do it. He has decided that he doesn't want to press her on it right now, but we may in the future.
IV solutions has some information and will call your doctor for you (they did for us).
My understanding from my husband's doctor is that they are just considered because of there are many studies about tobra and the eFlow and that they are very concerned about toxicity on the one hand and resistance on the other hand.
IV solutions has some information and will call your doctor for you (they did for us).
My understanding from my husband's doctor is that they are just considered because of there are many studies about tobra and the eFlow and that they are very concerned about toxicity on the one hand and resistance on the other hand.
I had a whole conversation about this with my doctor and he said that tobi and pulmozyme were not studied using the eflow and thererfore one does not know if one is getting the right dosage when putting it in the eflow.Plus you can not put TOBI in eflow and would have to get another version called Nebcin or have it reformulated. ALso, my doc explained that how the eflow works is the medications are put into the eflow and it is electrically charged and formed into a mist and then SUPER fast delivery. Well nobody knows if this electric charge CHANGES the molecules and makeup of the med and therefore who knows if it changes it, damages it, enhances it. I did not want to take a chance of using the Eflow with meds like Tobi and Pulmozyme if it is not approved with the Eflow. He did say you should be all right with ALbuterol cause it is a big molecule and probably does not change much.
Another story I heard first hand was from a lawyer who has CF and said NEVER EVER use the Eflow. IT has not been studied and you should never use it with meds that were not studied using the Eflow compressor device. There is a study out now with I believe Azetronon ( Spelling?) that uses Eflow so when that comes out one could use the eflow with it. The lawyer told me she knows someone who used the Eflow with Colistan which is not studied or approved with the Eflow and she died 16 days later.
Bottom line, both my doctor and the lawyer said using a compressor with meds that were not studied is taking a chance.
I personally am not willing to take a chance. However, their are people on this forum that use Eflow and love it. But who wouldn't, you get your meds done in record time! Super, Super fast, like less than 15 minutes to do Tobi and some it only takes 5 minutes.
I personally after doing my due dilligence have decided to not use the eflow and stick with my Pari LC and regular compressor.
Good Luck! This is just my opinion based on my research.
Jennifer 36 Years old with CF and CFRD
Another story I heard first hand was from a lawyer who has CF and said NEVER EVER use the Eflow. IT has not been studied and you should never use it with meds that were not studied using the Eflow compressor device. There is a study out now with I believe Azetronon ( Spelling?) that uses Eflow so when that comes out one could use the eflow with it. The lawyer told me she knows someone who used the Eflow with Colistan which is not studied or approved with the Eflow and she died 16 days later.
Bottom line, both my doctor and the lawyer said using a compressor with meds that were not studied is taking a chance.
I personally am not willing to take a chance. However, their are people on this forum that use Eflow and love it. But who wouldn't, you get your meds done in record time! Super, Super fast, like less than 15 minutes to do Tobi and some it only takes 5 minutes.
I personally after doing my due dilligence have decided to not use the eflow and stick with my Pari LC and regular compressor.
Good Luck! This is just my opinion based on my research.
Jennifer 36 Years old with CF and CFRD
I had a whole conversation about this with my doctor and he said that tobi and pulmozyme were not studied using the eflow and thererfore one does not know if one is getting the right dosage when putting it in the eflow.Plus you can not put TOBI in eflow and would have to get another version called Nebcin or have it reformulated. ALso, my doc explained that how the eflow works is the medications are put into the eflow and it is electrically charged and formed into a mist and then SUPER fast delivery. Well nobody knows if this electric charge CHANGES the molecules and makeup of the med and therefore who knows if it changes it, damages it, enhances it. I did not want to take a chance of using the Eflow with meds like Tobi and Pulmozyme if it is not approved with the Eflow. He did say you should be all right with ALbuterol cause it is a big molecule and probably does not change much.
Another story I heard first hand was from a lawyer who has CF and said NEVER EVER use the Eflow. IT has not been studied and you should never use it with meds that were not studied using the Eflow compressor device. There is a study out now with I believe Azetronon ( Spelling?) that uses Eflow so when that comes out one could use the eflow with it. The lawyer told me she knows someone who used the Eflow with Colistan which is not studied or approved with the Eflow and she died 16 days later.
Bottom line, both my doctor and the lawyer said using a compressor with meds that were not studied is taking a chance.
I personally am not willing to take a chance. However, their are people on this forum that use Eflow and love it. But who wouldn't, you get your meds done in record time! Super, Super fast, like less than 15 minutes to do Tobi and some it only takes 5 minutes.
I personally after doing my due dilligence have decided to not use the eflow and stick with my Pari LC and regular compressor.
Good Luck! This is just my opinion based on my research.
Jennifer 36 Years old with CF and CFRD
Another story I heard first hand was from a lawyer who has CF and said NEVER EVER use the Eflow. IT has not been studied and you should never use it with meds that were not studied using the Eflow compressor device. There is a study out now with I believe Azetronon ( Spelling?) that uses Eflow so when that comes out one could use the eflow with it. The lawyer told me she knows someone who used the Eflow with Colistan which is not studied or approved with the Eflow and she died 16 days later.
Bottom line, both my doctor and the lawyer said using a compressor with meds that were not studied is taking a chance.
I personally am not willing to take a chance. However, their are people on this forum that use Eflow and love it. But who wouldn't, you get your meds done in record time! Super, Super fast, like less than 15 minutes to do Tobi and some it only takes 5 minutes.
I personally after doing my due dilligence have decided to not use the eflow and stick with my Pari LC and regular compressor.
Good Luck! This is just my opinion based on my research.
Jennifer 36 Years old with CF and CFRD
I had a whole conversation about this with my doctor and he said that tobi and pulmozyme were not studied using the eflow and thererfore one does not know if one is getting the right dosage when putting it in the eflow.Plus you can not put TOBI in eflow and would have to get another version called Nebcin or have it reformulated. ALso, my doc explained that how the eflow works is the medications are put into the eflow and it is electrically charged and formed into a mist and then SUPER fast delivery. Well nobody knows if this electric charge CHANGES the molecules and makeup of the med and therefore who knows if it changes it, damages it, enhances it. I did not want to take a chance of using the Eflow with meds like Tobi and Pulmozyme if it is not approved with the Eflow. He did say you should be all right with ALbuterol cause it is a big molecule and probably does not change much.
Another story I heard first hand was from a lawyer who has CF and said NEVER EVER use the Eflow. IT has not been studied and you should never use it with meds that were not studied using the Eflow compressor device. There is a study out now with I believe Azetronon ( Spelling?) that uses Eflow so when that comes out one could use the eflow with it. The lawyer told me she knows someone who used the Eflow with Colistan which is not studied or approved with the Eflow and she died 16 days later.
Bottom line, both my doctor and the lawyer said using a compressor with meds that were not studied is taking a chance.
I personally am not willing to take a chance. However, their are people on this forum that use Eflow and love it. But who wouldn't, you get your meds done in record time! Super, Super fast, like less than 15 minutes to do Tobi and some it only takes 5 minutes.
I personally after doing my due dilligence have decided to not use the eflow and stick with my Pari LC and regular compressor.
Good Luck! This is just my opinion based on my research.
Jennifer 36 Years old with CF and CFRD
Another story I heard first hand was from a lawyer who has CF and said NEVER EVER use the Eflow. IT has not been studied and you should never use it with meds that were not studied using the Eflow compressor device. There is a study out now with I believe Azetronon ( Spelling?) that uses Eflow so when that comes out one could use the eflow with it. The lawyer told me she knows someone who used the Eflow with Colistan which is not studied or approved with the Eflow and she died 16 days later.
Bottom line, both my doctor and the lawyer said using a compressor with meds that were not studied is taking a chance.
I personally am not willing to take a chance. However, their are people on this forum that use Eflow and love it. But who wouldn't, you get your meds done in record time! Super, Super fast, like less than 15 minutes to do Tobi and some it only takes 5 minutes.
I personally after doing my due dilligence have decided to not use the eflow and stick with my Pari LC and regular compressor.
Good Luck! This is just my opinion based on my research.
Jennifer 36 Years old with CF and CFRD
I had a whole conversation about this with my doctor and he said that tobi and pulmozyme were not studied using the eflow and thererfore one does not know if one is getting the right dosage when putting it in the eflow.Plus you can not put TOBI in eflow and would have to get another version called Nebcin or have it reformulated. ALso, my doc explained that how the eflow works is the medications are put into the eflow and it is electrically charged and formed into a mist and then SUPER fast delivery. Well nobody knows if this electric charge CHANGES the molecules and makeup of the med and therefore who knows if it changes it, damages it, enhances it. I did not want to take a chance of using the Eflow with meds like Tobi and Pulmozyme if it is not approved with the Eflow. He did say you should be all right with ALbuterol cause it is a big molecule and probably does not change much.
Another story I heard first hand was from a lawyer who has CF and said NEVER EVER use the Eflow. IT has not been studied and you should never use it with meds that were not studied using the Eflow compressor device. There is a study out now with I believe Azetronon ( Spelling?) that uses Eflow so when that comes out one could use the eflow with it. The lawyer told me she knows someone who used the Eflow with Colistan which is not studied or approved with the Eflow and she died 16 days later.
Bottom line, both my doctor and the lawyer said using a compressor with meds that were not studied is taking a chance.
I personally am not willing to take a chance. However, their are people on this forum that use Eflow and love it. But who wouldn't, you get your meds done in record time! Super, Super fast, like less than 15 minutes to do Tobi and some it only takes 5 minutes.
I personally after doing my due dilligence have decided to not use the eflow and stick with my Pari LC and regular compressor.
Good Luck! This is just my opinion based on my research.
Jennifer 36 Years old with CF and CFRD
Another story I heard first hand was from a lawyer who has CF and said NEVER EVER use the Eflow. IT has not been studied and you should never use it with meds that were not studied using the Eflow compressor device. There is a study out now with I believe Azetronon ( Spelling?) that uses Eflow so when that comes out one could use the eflow with it. The lawyer told me she knows someone who used the Eflow with Colistan which is not studied or approved with the Eflow and she died 16 days later.
Bottom line, both my doctor and the lawyer said using a compressor with meds that were not studied is taking a chance.
I personally am not willing to take a chance. However, their are people on this forum that use Eflow and love it. But who wouldn't, you get your meds done in record time! Super, Super fast, like less than 15 minutes to do Tobi and some it only takes 5 minutes.
I personally after doing my due dilligence have decided to not use the eflow and stick with my Pari LC and regular compressor.
Good Luck! This is just my opinion based on my research.
Jennifer 36 Years old with CF and CFRD
I had a whole conversation about this with my doctor and he said that tobi and pulmozyme were not studied using the eflow and thererfore one does not know if one is getting the right dosage when putting it in the eflow.Plus you can not put TOBI in eflow and would have to get another version called Nebcin or have it reformulated. ALso, my doc explained that how the eflow works is the medications are put into the eflow and it is electrically charged and formed into a mist and then SUPER fast delivery. Well nobody knows if this electric charge CHANGES the molecules and makeup of the med and therefore who knows if it changes it, damages it, enhances it. I did not want to take a chance of using the Eflow with meds like Tobi and Pulmozyme if it is not approved with the Eflow. He did say you should be all right with ALbuterol cause it is a big molecule and probably does not change much.
Another story I heard first hand was from a lawyer who has CF and said NEVER EVER use the Eflow. IT has not been studied and you should never use it with meds that were not studied using the Eflow compressor device. There is a study out now with I believe Azetronon ( Spelling?) that uses Eflow so when that comes out one could use the eflow with it. The lawyer told me she knows someone who used the Eflow with Colistan which is not studied or approved with the Eflow and she died 16 days later.
Bottom line, both my doctor and the lawyer said using a compressor with meds that were not studied is taking a chance.
I personally am not willing to take a chance. However, their are people on this forum that use Eflow and love it. But who wouldn't, you get your meds done in record time! Super, Super fast, like less than 15 minutes to do Tobi and some it only takes 5 minutes.
I personally after doing my due dilligence have decided to not use the eflow and stick with my Pari LC and regular compressor.
Good Luck! This is just my opinion based on my research.
Jennifer 36 Years old with CF and CFRD
Another story I heard first hand was from a lawyer who has CF and said NEVER EVER use the Eflow. IT has not been studied and you should never use it with meds that were not studied using the Eflow compressor device. There is a study out now with I believe Azetronon ( Spelling?) that uses Eflow so when that comes out one could use the eflow with it. The lawyer told me she knows someone who used the Eflow with Colistan which is not studied or approved with the Eflow and she died 16 days later.
Bottom line, both my doctor and the lawyer said using a compressor with meds that were not studied is taking a chance.
I personally am not willing to take a chance. However, their are people on this forum that use Eflow and love it. But who wouldn't, you get your meds done in record time! Super, Super fast, like less than 15 minutes to do Tobi and some it only takes 5 minutes.
I personally after doing my due dilligence have decided to not use the eflow and stick with my Pari LC and regular compressor.
Good Luck! This is just my opinion based on my research.
Jennifer 36 Years old with CF and CFRD
lightNlife
New member
Congratulations on getting to try the Aztreonam. My doctor said that will be the next big thing for us, and should finalize its approval process by the 3rd quarter of 2008. I'm so excited!
Just to confirm what others are saying, it's true that the eFlow is not yet formally approved for use with the NAME BRAND medications we know and love like Pulmozyme and TOBI. Many who have the eFlow, including myself, are using it as off-label use with a formula of tobramyacin that does not contain preservatives. The difference is the medication is only good for a short period of time (6 weeks once it's been made by the pharmacy).
As for Pulmozyme, there is a form of it called dornase or DNase, but my doctor is extremely hesitant to let me do that in the eFlow. He explained to me his reasons, (and I can't remember them at this time) but they made sense.
Just be patient. The formulations of the aerosolized medications we need will be available soon enough. In my opinion, it's not a good idea to cut corners (i.e. go for a shortened treatment) if it's not yet truly demonstrated to have benefits. Hang in there.
Just to confirm what others are saying, it's true that the eFlow is not yet formally approved for use with the NAME BRAND medications we know and love like Pulmozyme and TOBI. Many who have the eFlow, including myself, are using it as off-label use with a formula of tobramyacin that does not contain preservatives. The difference is the medication is only good for a short period of time (6 weeks once it's been made by the pharmacy).
As for Pulmozyme, there is a form of it called dornase or DNase, but my doctor is extremely hesitant to let me do that in the eFlow. He explained to me his reasons, (and I can't remember them at this time) but they made sense.
Just be patient. The formulations of the aerosolized medications we need will be available soon enough. In my opinion, it's not a good idea to cut corners (i.e. go for a shortened treatment) if it's not yet truly demonstrated to have benefits. Hang in there.
lightNlife
New member
Congratulations on getting to try the Aztreonam. My doctor said that will be the next big thing for us, and should finalize its approval process by the 3rd quarter of 2008. I'm so excited!
Just to confirm what others are saying, it's true that the eFlow is not yet formally approved for use with the NAME BRAND medications we know and love like Pulmozyme and TOBI. Many who have the eFlow, including myself, are using it as off-label use with a formula of tobramyacin that does not contain preservatives. The difference is the medication is only good for a short period of time (6 weeks once it's been made by the pharmacy).
As for Pulmozyme, there is a form of it called dornase or DNase, but my doctor is extremely hesitant to let me do that in the eFlow. He explained to me his reasons, (and I can't remember them at this time) but they made sense.
Just be patient. The formulations of the aerosolized medications we need will be available soon enough. In my opinion, it's not a good idea to cut corners (i.e. go for a shortened treatment) if it's not yet truly demonstrated to have benefits. Hang in there.
Just to confirm what others are saying, it's true that the eFlow is not yet formally approved for use with the NAME BRAND medications we know and love like Pulmozyme and TOBI. Many who have the eFlow, including myself, are using it as off-label use with a formula of tobramyacin that does not contain preservatives. The difference is the medication is only good for a short period of time (6 weeks once it's been made by the pharmacy).
As for Pulmozyme, there is a form of it called dornase or DNase, but my doctor is extremely hesitant to let me do that in the eFlow. He explained to me his reasons, (and I can't remember them at this time) but they made sense.
Just be patient. The formulations of the aerosolized medications we need will be available soon enough. In my opinion, it's not a good idea to cut corners (i.e. go for a shortened treatment) if it's not yet truly demonstrated to have benefits. Hang in there.
lightNlife
New member
Congratulations on getting to try the Aztreonam. My doctor said that will be the next big thing for us, and should finalize its approval process by the 3rd quarter of 2008. I'm so excited!
Just to confirm what others are saying, it's true that the eFlow is not yet formally approved for use with the NAME BRAND medications we know and love like Pulmozyme and TOBI. Many who have the eFlow, including myself, are using it as off-label use with a formula of tobramyacin that does not contain preservatives. The difference is the medication is only good for a short period of time (6 weeks once it's been made by the pharmacy).
As for Pulmozyme, there is a form of it called dornase or DNase, but my doctor is extremely hesitant to let me do that in the eFlow. He explained to me his reasons, (and I can't remember them at this time) but they made sense.
Just be patient. The formulations of the aerosolized medications we need will be available soon enough. In my opinion, it's not a good idea to cut corners (i.e. go for a shortened treatment) if it's not yet truly demonstrated to have benefits. Hang in there.
Just to confirm what others are saying, it's true that the eFlow is not yet formally approved for use with the NAME BRAND medications we know and love like Pulmozyme and TOBI. Many who have the eFlow, including myself, are using it as off-label use with a formula of tobramyacin that does not contain preservatives. The difference is the medication is only good for a short period of time (6 weeks once it's been made by the pharmacy).
As for Pulmozyme, there is a form of it called dornase or DNase, but my doctor is extremely hesitant to let me do that in the eFlow. He explained to me his reasons, (and I can't remember them at this time) but they made sense.
Just be patient. The formulations of the aerosolized medications we need will be available soon enough. In my opinion, it's not a good idea to cut corners (i.e. go for a shortened treatment) if it's not yet truly demonstrated to have benefits. Hang in there.
lightNlife
New member
Congratulations on getting to try the Aztreonam. My doctor said that will be the next big thing for us, and should finalize its approval process by the 3rd quarter of 2008. I'm so excited!
Just to confirm what others are saying, it's true that the eFlow is not yet formally approved for use with the NAME BRAND medications we know and love like Pulmozyme and TOBI. Many who have the eFlow, including myself, are using it as off-label use with a formula of tobramyacin that does not contain preservatives. The difference is the medication is only good for a short period of time (6 weeks once it's been made by the pharmacy).
As for Pulmozyme, there is a form of it called dornase or DNase, but my doctor is extremely hesitant to let me do that in the eFlow. He explained to me his reasons, (and I can't remember them at this time) but they made sense.
Just be patient. The formulations of the aerosolized medications we need will be available soon enough. In my opinion, it's not a good idea to cut corners (i.e. go for a shortened treatment) if it's not yet truly demonstrated to have benefits. Hang in there.
Just to confirm what others are saying, it's true that the eFlow is not yet formally approved for use with the NAME BRAND medications we know and love like Pulmozyme and TOBI. Many who have the eFlow, including myself, are using it as off-label use with a formula of tobramyacin that does not contain preservatives. The difference is the medication is only good for a short period of time (6 weeks once it's been made by the pharmacy).
As for Pulmozyme, there is a form of it called dornase or DNase, but my doctor is extremely hesitant to let me do that in the eFlow. He explained to me his reasons, (and I can't remember them at this time) but they made sense.
Just be patient. The formulations of the aerosolized medications we need will be available soon enough. In my opinion, it's not a good idea to cut corners (i.e. go for a shortened treatment) if it's not yet truly demonstrated to have benefits. Hang in there.
lightNlife
New member
Congratulations on getting to try the Aztreonam. My doctor said that will be the next big thing for us, and should finalize its approval process by the 3rd quarter of 2008. I'm so excited!
Just to confirm what others are saying, it's true that the eFlow is not yet formally approved for use with the NAME BRAND medications we know and love like Pulmozyme and TOBI. Many who have the eFlow, including myself, are using it as off-label use with a formula of tobramyacin that does not contain preservatives. The difference is the medication is only good for a short period of time (6 weeks once it's been made by the pharmacy).
As for Pulmozyme, there is a form of it called dornase or DNase, but my doctor is extremely hesitant to let me do that in the eFlow. He explained to me his reasons, (and I can't remember them at this time) but they made sense.
Just be patient. The formulations of the aerosolized medications we need will be available soon enough. In my opinion, it's not a good idea to cut corners (i.e. go for a shortened treatment) if it's not yet truly demonstrated to have benefits. Hang in there.
Just to confirm what others are saying, it's true that the eFlow is not yet formally approved for use with the NAME BRAND medications we know and love like Pulmozyme and TOBI. Many who have the eFlow, including myself, are using it as off-label use with a formula of tobramyacin that does not contain preservatives. The difference is the medication is only good for a short period of time (6 weeks once it's been made by the pharmacy).
As for Pulmozyme, there is a form of it called dornase or DNase, but my doctor is extremely hesitant to let me do that in the eFlow. He explained to me his reasons, (and I can't remember them at this time) but they made sense.
Just be patient. The formulations of the aerosolized medications we need will be available soon enough. In my opinion, it's not a good idea to cut corners (i.e. go for a shortened treatment) if it's not yet truly demonstrated to have benefits. Hang in there.