I'm in the process of adopting a 5 year old boy with CF who will join our family in a month. When he arrives we will take him to the CF clinic in our area, but until then I have a few questions. Any recommendations for the most effective nebulizers? Cost of The Vest and best places to purchase? I've been reading about hypertonic saline tx's, any thoughts?
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- Thread starter gylith4
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I'm in the process of adopting a 5 year old boy with CF who will join our family in a month. When he arrives we will take him to the CF clinic in our area, but until then I have a few questions. Any recommendations for the most effective nebulizers? Cost of The Vest and best places to purchase? I've been reading about hypertonic saline tx's, any thoughts?
I'm in the process of adopting a 5 year old boy with CF who will join our family in a month. When he arrives we will take him to the CF clinic in our area, but until then I have a few questions. Any recommendations for the most effective nebulizers? Cost of The Vest and best places to purchase? I've been reading about hypertonic saline tx's, any thoughts?
I'm in the process of adopting a 5 year old boy with CF who will join our family in a month. When he arrives we will take him to the CF clinic in our area, but until then I have a few questions. Any recommendations for the most effective nebulizers? Cost of The Vest and best places to purchase? I've been reading about hypertonic saline tx's, any thoughts?
I'm in the process of adopting a 5 year old boy with CF who will join our family in a month. When he arrives we will take him to the CF clinic in our area, but until then I have a few questions. Any recommendations for the most effective nebulizers? Cost of The Vest and best places to purchase? I've been reading about hypertonic saline tx's, any thoughts?
Depending upon the medications he'll be using/nebulizing... Devilbiss Pulmoaid or Pari Proneb Ultra II. DS is on Tobi and Pulmozyme. I've heard mixed reviews on the Pari Proneb Ultra II -- noise, breakdowns.. I just purchased one as a spare and for travel but have yet to use it. We use a Devilbiss Pulmoaid for our every day nebulizer. We also use pari neb cups -- they're reuasable and boil-able. Supposed to last up to 6 months. You're supposed to use a different neb cup for each medication. DS is also on atrovent/albuterol -- so we have 3 different neb cups.
There are 2-3 different vest companies. We have the Hill-Rom; however a number of people on this site use respitech (sp). Both are spendy machines -- over $12,000. Your clinic should be able to write the script and start the ball rolling to obtain it.
DS hasn't started HTS yet. His CF doctor wanted to study the issue a bit more for someone DS's age -- he was 2 1/2 when he started pulmozyme and when we asked about HTS.
Basically be proactive with your son's care. We do CPT/Vest 3 times a day. More if he's coughing/sick. I would hope the new clinic you're going to will be proactive instead of reactive, which is one of the issues we've had to deal with at our local cf clinic vs. our primary cf clinic in the city.
There are 2-3 different vest companies. We have the Hill-Rom; however a number of people on this site use respitech (sp). Both are spendy machines -- over $12,000. Your clinic should be able to write the script and start the ball rolling to obtain it.
DS hasn't started HTS yet. His CF doctor wanted to study the issue a bit more for someone DS's age -- he was 2 1/2 when he started pulmozyme and when we asked about HTS.
Basically be proactive with your son's care. We do CPT/Vest 3 times a day. More if he's coughing/sick. I would hope the new clinic you're going to will be proactive instead of reactive, which is one of the issues we've had to deal with at our local cf clinic vs. our primary cf clinic in the city.
Depending upon the medications he'll be using/nebulizing... Devilbiss Pulmoaid or Pari Proneb Ultra II. DS is on Tobi and Pulmozyme. I've heard mixed reviews on the Pari Proneb Ultra II -- noise, breakdowns.. I just purchased one as a spare and for travel but have yet to use it. We use a Devilbiss Pulmoaid for our every day nebulizer. We also use pari neb cups -- they're reuasable and boil-able. Supposed to last up to 6 months. You're supposed to use a different neb cup for each medication. DS is also on atrovent/albuterol -- so we have 3 different neb cups.
There are 2-3 different vest companies. We have the Hill-Rom; however a number of people on this site use respitech (sp). Both are spendy machines -- over $12,000. Your clinic should be able to write the script and start the ball rolling to obtain it.
DS hasn't started HTS yet. His CF doctor wanted to study the issue a bit more for someone DS's age -- he was 2 1/2 when he started pulmozyme and when we asked about HTS.
Basically be proactive with your son's care. We do CPT/Vest 3 times a day. More if he's coughing/sick. I would hope the new clinic you're going to will be proactive instead of reactive, which is one of the issues we've had to deal with at our local cf clinic vs. our primary cf clinic in the city.
There are 2-3 different vest companies. We have the Hill-Rom; however a number of people on this site use respitech (sp). Both are spendy machines -- over $12,000. Your clinic should be able to write the script and start the ball rolling to obtain it.
DS hasn't started HTS yet. His CF doctor wanted to study the issue a bit more for someone DS's age -- he was 2 1/2 when he started pulmozyme and when we asked about HTS.
Basically be proactive with your son's care. We do CPT/Vest 3 times a day. More if he's coughing/sick. I would hope the new clinic you're going to will be proactive instead of reactive, which is one of the issues we've had to deal with at our local cf clinic vs. our primary cf clinic in the city.
Depending upon the medications he'll be using/nebulizing... Devilbiss Pulmoaid or Pari Proneb Ultra II. DS is on Tobi and Pulmozyme. I've heard mixed reviews on the Pari Proneb Ultra II -- noise, breakdowns.. I just purchased one as a spare and for travel but have yet to use it. We use a Devilbiss Pulmoaid for our every day nebulizer. We also use pari neb cups -- they're reuasable and boil-able. Supposed to last up to 6 months. You're supposed to use a different neb cup for each medication. DS is also on atrovent/albuterol -- so we have 3 different neb cups.
There are 2-3 different vest companies. We have the Hill-Rom; however a number of people on this site use respitech (sp). Both are spendy machines -- over $12,000. Your clinic should be able to write the script and start the ball rolling to obtain it.
DS hasn't started HTS yet. His CF doctor wanted to study the issue a bit more for someone DS's age -- he was 2 1/2 when he started pulmozyme and when we asked about HTS.
Basically be proactive with your son's care. We do CPT/Vest 3 times a day. More if he's coughing/sick. I would hope the new clinic you're going to will be proactive instead of reactive, which is one of the issues we've had to deal with at our local cf clinic vs. our primary cf clinic in the city.
There are 2-3 different vest companies. We have the Hill-Rom; however a number of people on this site use respitech (sp). Both are spendy machines -- over $12,000. Your clinic should be able to write the script and start the ball rolling to obtain it.
DS hasn't started HTS yet. His CF doctor wanted to study the issue a bit more for someone DS's age -- he was 2 1/2 when he started pulmozyme and when we asked about HTS.
Basically be proactive with your son's care. We do CPT/Vest 3 times a day. More if he's coughing/sick. I would hope the new clinic you're going to will be proactive instead of reactive, which is one of the issues we've had to deal with at our local cf clinic vs. our primary cf clinic in the city.
Depending upon the medications he'll be using/nebulizing... Devilbiss Pulmoaid or Pari Proneb Ultra II. DS is on Tobi and Pulmozyme. I've heard mixed reviews on the Pari Proneb Ultra II -- noise, breakdowns.. I just purchased one as a spare and for travel but have yet to use it. We use a Devilbiss Pulmoaid for our every day nebulizer. We also use pari neb cups -- they're reuasable and boil-able. Supposed to last up to 6 months. You're supposed to use a different neb cup for each medication. DS is also on atrovent/albuterol -- so we have 3 different neb cups.
There are 2-3 different vest companies. We have the Hill-Rom; however a number of people on this site use respitech (sp). Both are spendy machines -- over $12,000. Your clinic should be able to write the script and start the ball rolling to obtain it.
DS hasn't started HTS yet. His CF doctor wanted to study the issue a bit more for someone DS's age -- he was 2 1/2 when he started pulmozyme and when we asked about HTS.
Basically be proactive with your son's care. We do CPT/Vest 3 times a day. More if he's coughing/sick. I would hope the new clinic you're going to will be proactive instead of reactive, which is one of the issues we've had to deal with at our local cf clinic vs. our primary cf clinic in the city.
There are 2-3 different vest companies. We have the Hill-Rom; however a number of people on this site use respitech (sp). Both are spendy machines -- over $12,000. Your clinic should be able to write the script and start the ball rolling to obtain it.
DS hasn't started HTS yet. His CF doctor wanted to study the issue a bit more for someone DS's age -- he was 2 1/2 when he started pulmozyme and when we asked about HTS.
Basically be proactive with your son's care. We do CPT/Vest 3 times a day. More if he's coughing/sick. I would hope the new clinic you're going to will be proactive instead of reactive, which is one of the issues we've had to deal with at our local cf clinic vs. our primary cf clinic in the city.
Depending upon the medications he'll be using/nebulizing... Devilbiss Pulmoaid or Pari Proneb Ultra II. DS is on Tobi and Pulmozyme. I've heard mixed reviews on the Pari Proneb Ultra II -- noise, breakdowns.. I just purchased one as a spare and for travel but have yet to use it. We use a Devilbiss Pulmoaid for our every day nebulizer. We also use pari neb cups -- they're reuasable and boil-able. Supposed to last up to 6 months. You're supposed to use a different neb cup for each medication. DS is also on atrovent/albuterol -- so we have 3 different neb cups.
There are 2-3 different vest companies. We have the Hill-Rom; however a number of people on this site use respitech (sp). Both are spendy machines -- over $12,000. Your clinic should be able to write the script and start the ball rolling to obtain it.
DS hasn't started HTS yet. His CF doctor wanted to study the issue a bit more for someone DS's age -- he was 2 1/2 when he started pulmozyme and when we asked about HTS.
Basically be proactive with your son's care. We do CPT/Vest 3 times a day. More if he's coughing/sick. I would hope the new clinic you're going to will be proactive instead of reactive, which is one of the issues we've had to deal with at our local cf clinic vs. our primary cf clinic in the city.
There are 2-3 different vest companies. We have the Hill-Rom; however a number of people on this site use respitech (sp). Both are spendy machines -- over $12,000. Your clinic should be able to write the script and start the ball rolling to obtain it.
DS hasn't started HTS yet. His CF doctor wanted to study the issue a bit more for someone DS's age -- he was 2 1/2 when he started pulmozyme and when we asked about HTS.
Basically be proactive with your son's care. We do CPT/Vest 3 times a day. More if he's coughing/sick. I would hope the new clinic you're going to will be proactive instead of reactive, which is one of the issues we've had to deal with at our local cf clinic vs. our primary cf clinic in the city.
We use the following stuff - it was recommended by the nurse at Children's Hospital in Seattle because it is the same equipment that all original testing was done on so they continue to recommend it.
Devilbiss Pulmoaid compresser for nebulizing
Neb Cups for Pulmozyme - reusable side stream
Neb Cups for Tobi & Hypertonic Saline - Pari LC (we have switched to the new model Pari LC Sprint cup - don't know if the clinic is recommending it or not)
Recommendations on vests can vary depending on clinic, but I have found that most doctors are willing to deal with whatever company you say you want to buy from - other than that, they could tell you who they deal with the most. I have experience with both the Hill-Rom vest and Respirtech vest. Please see my blog page for more details - the short answer is I like the Respirtech vest better. <b>Sakasuka</b> has more "technical" information on how vests work on her blog page if you want some very detailed info about Respirtech. As far as getting the vest, it usually just takes a doctor's prescription (recommendation) and a phone call to the company of your choice - they will handle everything from there - what is wonderful is, either of the above mentioned companies will send you out a vest within a day or two - it's yours to use and keep until the insurance processing is complete. They work very hard at getting and keeping the vest in the home so treatment can continue regardless of how well the insurance hassles go.
Best of luck - I hope his does well with you. The CF clinic will be able to help you a lot I'm sure. Does he come with any previous medical records or information that the new clinic may be able to view? Everyone with CF has such a different case, that it would be nice for them to have some sort of history to know where they are starting from, especially since a 5 year old may not be able to tell them much.
Devilbiss Pulmoaid compresser for nebulizing
Neb Cups for Pulmozyme - reusable side stream
Neb Cups for Tobi & Hypertonic Saline - Pari LC (we have switched to the new model Pari LC Sprint cup - don't know if the clinic is recommending it or not)
Recommendations on vests can vary depending on clinic, but I have found that most doctors are willing to deal with whatever company you say you want to buy from - other than that, they could tell you who they deal with the most. I have experience with both the Hill-Rom vest and Respirtech vest. Please see my blog page for more details - the short answer is I like the Respirtech vest better. <b>Sakasuka</b> has more "technical" information on how vests work on her blog page if you want some very detailed info about Respirtech. As far as getting the vest, it usually just takes a doctor's prescription (recommendation) and a phone call to the company of your choice - they will handle everything from there - what is wonderful is, either of the above mentioned companies will send you out a vest within a day or two - it's yours to use and keep until the insurance processing is complete. They work very hard at getting and keeping the vest in the home so treatment can continue regardless of how well the insurance hassles go.
Best of luck - I hope his does well with you. The CF clinic will be able to help you a lot I'm sure. Does he come with any previous medical records or information that the new clinic may be able to view? Everyone with CF has such a different case, that it would be nice for them to have some sort of history to know where they are starting from, especially since a 5 year old may not be able to tell them much.
We use the following stuff - it was recommended by the nurse at Children's Hospital in Seattle because it is the same equipment that all original testing was done on so they continue to recommend it.
Devilbiss Pulmoaid compresser for nebulizing
Neb Cups for Pulmozyme - reusable side stream
Neb Cups for Tobi & Hypertonic Saline - Pari LC (we have switched to the new model Pari LC Sprint cup - don't know if the clinic is recommending it or not)
Recommendations on vests can vary depending on clinic, but I have found that most doctors are willing to deal with whatever company you say you want to buy from - other than that, they could tell you who they deal with the most. I have experience with both the Hill-Rom vest and Respirtech vest. Please see my blog page for more details - the short answer is I like the Respirtech vest better. <b>Sakasuka</b> has more "technical" information on how vests work on her blog page if you want some very detailed info about Respirtech. As far as getting the vest, it usually just takes a doctor's prescription (recommendation) and a phone call to the company of your choice - they will handle everything from there - what is wonderful is, either of the above mentioned companies will send you out a vest within a day or two - it's yours to use and keep until the insurance processing is complete. They work very hard at getting and keeping the vest in the home so treatment can continue regardless of how well the insurance hassles go.
Best of luck - I hope his does well with you. The CF clinic will be able to help you a lot I'm sure. Does he come with any previous medical records or information that the new clinic may be able to view? Everyone with CF has such a different case, that it would be nice for them to have some sort of history to know where they are starting from, especially since a 5 year old may not be able to tell them much.
Devilbiss Pulmoaid compresser for nebulizing
Neb Cups for Pulmozyme - reusable side stream
Neb Cups for Tobi & Hypertonic Saline - Pari LC (we have switched to the new model Pari LC Sprint cup - don't know if the clinic is recommending it or not)
Recommendations on vests can vary depending on clinic, but I have found that most doctors are willing to deal with whatever company you say you want to buy from - other than that, they could tell you who they deal with the most. I have experience with both the Hill-Rom vest and Respirtech vest. Please see my blog page for more details - the short answer is I like the Respirtech vest better. <b>Sakasuka</b> has more "technical" information on how vests work on her blog page if you want some very detailed info about Respirtech. As far as getting the vest, it usually just takes a doctor's prescription (recommendation) and a phone call to the company of your choice - they will handle everything from there - what is wonderful is, either of the above mentioned companies will send you out a vest within a day or two - it's yours to use and keep until the insurance processing is complete. They work very hard at getting and keeping the vest in the home so treatment can continue regardless of how well the insurance hassles go.
Best of luck - I hope his does well with you. The CF clinic will be able to help you a lot I'm sure. Does he come with any previous medical records or information that the new clinic may be able to view? Everyone with CF has such a different case, that it would be nice for them to have some sort of history to know where they are starting from, especially since a 5 year old may not be able to tell them much.
We use the following stuff - it was recommended by the nurse at Children's Hospital in Seattle because it is the same equipment that all original testing was done on so they continue to recommend it.
Devilbiss Pulmoaid compresser for nebulizing
Neb Cups for Pulmozyme - reusable side stream
Neb Cups for Tobi & Hypertonic Saline - Pari LC (we have switched to the new model Pari LC Sprint cup - don't know if the clinic is recommending it or not)
Recommendations on vests can vary depending on clinic, but I have found that most doctors are willing to deal with whatever company you say you want to buy from - other than that, they could tell you who they deal with the most. I have experience with both the Hill-Rom vest and Respirtech vest. Please see my blog page for more details - the short answer is I like the Respirtech vest better. <b>Sakasuka</b> has more "technical" information on how vests work on her blog page if you want some very detailed info about Respirtech. As far as getting the vest, it usually just takes a doctor's prescription (recommendation) and a phone call to the company of your choice - they will handle everything from there - what is wonderful is, either of the above mentioned companies will send you out a vest within a day or two - it's yours to use and keep until the insurance processing is complete. They work very hard at getting and keeping the vest in the home so treatment can continue regardless of how well the insurance hassles go.
Best of luck - I hope his does well with you. The CF clinic will be able to help you a lot I'm sure. Does he come with any previous medical records or information that the new clinic may be able to view? Everyone with CF has such a different case, that it would be nice for them to have some sort of history to know where they are starting from, especially since a 5 year old may not be able to tell them much.
Devilbiss Pulmoaid compresser for nebulizing
Neb Cups for Pulmozyme - reusable side stream
Neb Cups for Tobi & Hypertonic Saline - Pari LC (we have switched to the new model Pari LC Sprint cup - don't know if the clinic is recommending it or not)
Recommendations on vests can vary depending on clinic, but I have found that most doctors are willing to deal with whatever company you say you want to buy from - other than that, they could tell you who they deal with the most. I have experience with both the Hill-Rom vest and Respirtech vest. Please see my blog page for more details - the short answer is I like the Respirtech vest better. <b>Sakasuka</b> has more "technical" information on how vests work on her blog page if you want some very detailed info about Respirtech. As far as getting the vest, it usually just takes a doctor's prescription (recommendation) and a phone call to the company of your choice - they will handle everything from there - what is wonderful is, either of the above mentioned companies will send you out a vest within a day or two - it's yours to use and keep until the insurance processing is complete. They work very hard at getting and keeping the vest in the home so treatment can continue regardless of how well the insurance hassles go.
Best of luck - I hope his does well with you. The CF clinic will be able to help you a lot I'm sure. Does he come with any previous medical records or information that the new clinic may be able to view? Everyone with CF has such a different case, that it would be nice for them to have some sort of history to know where they are starting from, especially since a 5 year old may not be able to tell them much.
We use the following stuff - it was recommended by the nurse at Children's Hospital in Seattle because it is the same equipment that all original testing was done on so they continue to recommend it.
Devilbiss Pulmoaid compresser for nebulizing
Neb Cups for Pulmozyme - reusable side stream
Neb Cups for Tobi & Hypertonic Saline - Pari LC (we have switched to the new model Pari LC Sprint cup - don't know if the clinic is recommending it or not)
Recommendations on vests can vary depending on clinic, but I have found that most doctors are willing to deal with whatever company you say you want to buy from - other than that, they could tell you who they deal with the most. I have experience with both the Hill-Rom vest and Respirtech vest. Please see my blog page for more details - the short answer is I like the Respirtech vest better. <b>Sakasuka</b> has more "technical" information on how vests work on her blog page if you want some very detailed info about Respirtech. As far as getting the vest, it usually just takes a doctor's prescription (recommendation) and a phone call to the company of your choice - they will handle everything from there - what is wonderful is, either of the above mentioned companies will send you out a vest within a day or two - it's yours to use and keep until the insurance processing is complete. They work very hard at getting and keeping the vest in the home so treatment can continue regardless of how well the insurance hassles go.
Best of luck - I hope his does well with you. The CF clinic will be able to help you a lot I'm sure. Does he come with any previous medical records or information that the new clinic may be able to view? Everyone with CF has such a different case, that it would be nice for them to have some sort of history to know where they are starting from, especially since a 5 year old may not be able to tell them much.
Devilbiss Pulmoaid compresser for nebulizing
Neb Cups for Pulmozyme - reusable side stream
Neb Cups for Tobi & Hypertonic Saline - Pari LC (we have switched to the new model Pari LC Sprint cup - don't know if the clinic is recommending it or not)
Recommendations on vests can vary depending on clinic, but I have found that most doctors are willing to deal with whatever company you say you want to buy from - other than that, they could tell you who they deal with the most. I have experience with both the Hill-Rom vest and Respirtech vest. Please see my blog page for more details - the short answer is I like the Respirtech vest better. <b>Sakasuka</b> has more "technical" information on how vests work on her blog page if you want some very detailed info about Respirtech. As far as getting the vest, it usually just takes a doctor's prescription (recommendation) and a phone call to the company of your choice - they will handle everything from there - what is wonderful is, either of the above mentioned companies will send you out a vest within a day or two - it's yours to use and keep until the insurance processing is complete. They work very hard at getting and keeping the vest in the home so treatment can continue regardless of how well the insurance hassles go.
Best of luck - I hope his does well with you. The CF clinic will be able to help you a lot I'm sure. Does he come with any previous medical records or information that the new clinic may be able to view? Everyone with CF has such a different case, that it would be nice for them to have some sort of history to know where they are starting from, especially since a 5 year old may not be able to tell them much.
We use the following stuff - it was recommended by the nurse at Children's Hospital in Seattle because it is the same equipment that all original testing was done on so they continue to recommend it.
Devilbiss Pulmoaid compresser for nebulizing
Neb Cups for Pulmozyme - reusable side stream
Neb Cups for Tobi & Hypertonic Saline - Pari LC (we have switched to the new model Pari LC Sprint cup - don't know if the clinic is recommending it or not)
Recommendations on vests can vary depending on clinic, but I have found that most doctors are willing to deal with whatever company you say you want to buy from - other than that, they could tell you who they deal with the most. I have experience with both the Hill-Rom vest and Respirtech vest. Please see my blog page for more details - the short answer is I like the Respirtech vest better. <b>Sakasuka</b> has more "technical" information on how vests work on her blog page if you want some very detailed info about Respirtech. As far as getting the vest, it usually just takes a doctor's prescription (recommendation) and a phone call to the company of your choice - they will handle everything from there - what is wonderful is, either of the above mentioned companies will send you out a vest within a day or two - it's yours to use and keep until the insurance processing is complete. They work very hard at getting and keeping the vest in the home so treatment can continue regardless of how well the insurance hassles go.
Best of luck - I hope his does well with you. The CF clinic will be able to help you a lot I'm sure. Does he come with any previous medical records or information that the new clinic may be able to view? Everyone with CF has such a different case, that it would be nice for them to have some sort of history to know where they are starting from, especially since a 5 year old may not be able to tell them much.
Devilbiss Pulmoaid compresser for nebulizing
Neb Cups for Pulmozyme - reusable side stream
Neb Cups for Tobi & Hypertonic Saline - Pari LC (we have switched to the new model Pari LC Sprint cup - don't know if the clinic is recommending it or not)
Recommendations on vests can vary depending on clinic, but I have found that most doctors are willing to deal with whatever company you say you want to buy from - other than that, they could tell you who they deal with the most. I have experience with both the Hill-Rom vest and Respirtech vest. Please see my blog page for more details - the short answer is I like the Respirtech vest better. <b>Sakasuka</b> has more "technical" information on how vests work on her blog page if you want some very detailed info about Respirtech. As far as getting the vest, it usually just takes a doctor's prescription (recommendation) and a phone call to the company of your choice - they will handle everything from there - what is wonderful is, either of the above mentioned companies will send you out a vest within a day or two - it's yours to use and keep until the insurance processing is complete. They work very hard at getting and keeping the vest in the home so treatment can continue regardless of how well the insurance hassles go.
Best of luck - I hope his does well with you. The CF clinic will be able to help you a lot I'm sure. Does he come with any previous medical records or information that the new clinic may be able to view? Everyone with CF has such a different case, that it would be nice for them to have some sort of history to know where they are starting from, especially since a 5 year old may not be able to tell them much.