Erin age 3

S

shamrock

New member
Hi Erin's dad,

I'm glad that Erin is doing well at the moment! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I imagine that despite being 10months living with CF, you stlil find yourselves getting your heads around the issue.

This site is a great source of support. There is also the CF Trust website/forum which is for people living in the UK. That's also a great site, but you may find it more local, as some of the treatments used in the US differ slightly from our side of the pond.

Take care, and stay well, xxx
 
S

shamrock

New member
Hi Erin's dad,

I'm glad that Erin is doing well at the moment! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I imagine that despite being 10months living with CF, you stlil find yourselves getting your heads around the issue.

This site is a great source of support. There is also the CF Trust website/forum which is for people living in the UK. That's also a great site, but you may find it more local, as some of the treatments used in the US differ slightly from our side of the pond.

Take care, and stay well, xxx
 
D

dyza

New member
Thats true Shamrock, but this site is so much more...erm how do we say it....dramatic at times. LOL.
Hi mike, this is craigsmum's husband, I know most of barney off by heart, and that is from 12 years ago when our daughter was a toddler, I still wake up at night in cold sweats. LOL. The north of England is a big place, we holiday in Yorkshire, we love it there.
 
D

dyza

New member
Thats true Shamrock, but this site is so much more...erm how do we say it....dramatic at times. LOL.
Hi mike, this is craigsmum's husband, I know most of barney off by heart, and that is from 12 years ago when our daughter was a toddler, I still wake up at night in cold sweats. LOL. The north of England is a big place, we holiday in Yorkshire, we love it there.
 
D

dyza

New member
Thats true Shamrock, but this site is so much more...erm how do we say it....dramatic at times. LOL.
Hi mike, this is craigsmum's husband, I know most of barney off by heart, and that is from 12 years ago when our daughter was a toddler, I still wake up at night in cold sweats. LOL. The north of England is a big place, we holiday in Yorkshire, we love it there.
 
M

mtowler

New member
Hello there, bigora bigora,

hope Erin is as happy and sarcastic as you are later in life, that way it means she can still be there to get on our nerves !!!!!

Your site is quite funny.

Anyway thanks again.

Mike and Mel , Erin's mum and dad.
 
M

mtowler

New member
Hello there, bigora bigora,

hope Erin is as happy and sarcastic as you are later in life, that way it means she can still be there to get on our nerves !!!!!

Your site is quite funny.

Anyway thanks again.

Mike and Mel , Erin's mum and dad.
 
M

mtowler

New member
Hello there, bigora bigora,

hope Erin is as happy and sarcastic as you are later in life, that way it means she can still be there to get on our nerves !!!!!

Your site is quite funny.

Anyway thanks again.

Mike and Mel , Erin's mum and dad.
 
P

proverbs3

New member
Mike,

Welcome to the site. Our daughter, Faith, was diagnosed almost 2 years ago at the age of 9. It has been an absolute roller coaster. She is also on IV's as well. One of her hospital visits, she contracted a myco bacteria and for CF patients, it is the worse kind of bacteria. Very difficult to get rid of.

Anyway, we too are just trying to live a semi-normal life. It's hard, because we had a routine and were established in activities for all of us. This has changed everything. I seem to get very frustrated lately, but just keep going forward and living one day at a time.

We live in Virginia, USA. I spent 3 months in London while in college and our son is considering in his junior year. Told him that it would be one of the best experiences of his life.

Hang in there and let us know how she is doing.

Faith and Andrew and into spongebob!!! We watch it doing her therapy and I don't think I can watch the yellow thing anymore!!!! LOL

Carol
 
P

proverbs3

New member
Mike,

Welcome to the site. Our daughter, Faith, was diagnosed almost 2 years ago at the age of 9. It has been an absolute roller coaster. She is also on IV's as well. One of her hospital visits, she contracted a myco bacteria and for CF patients, it is the worse kind of bacteria. Very difficult to get rid of.

Anyway, we too are just trying to live a semi-normal life. It's hard, because we had a routine and were established in activities for all of us. This has changed everything. I seem to get very frustrated lately, but just keep going forward and living one day at a time.

We live in Virginia, USA. I spent 3 months in London while in college and our son is considering in his junior year. Told him that it would be one of the best experiences of his life.

Hang in there and let us know how she is doing.

Faith and Andrew and into spongebob!!! We watch it doing her therapy and I don't think I can watch the yellow thing anymore!!!! LOL

Carol
 
P

proverbs3

New member
Mike,

Welcome to the site. Our daughter, Faith, was diagnosed almost 2 years ago at the age of 9. It has been an absolute roller coaster. She is also on IV's as well. One of her hospital visits, she contracted a myco bacteria and for CF patients, it is the worse kind of bacteria. Very difficult to get rid of.

Anyway, we too are just trying to live a semi-normal life. It's hard, because we had a routine and were established in activities for all of us. This has changed everything. I seem to get very frustrated lately, but just keep going forward and living one day at a time.

We live in Virginia, USA. I spent 3 months in London while in college and our son is considering in his junior year. Told him that it would be one of the best experiences of his life.

Hang in there and let us know how she is doing.

Faith and Andrew and into spongebob!!! We watch it doing her therapy and I don't think I can watch the yellow thing anymore!!!! LOL

Carol
 
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