Family member w/ CF told that antibiotics are no longer working

[cfamilymember]

Hello, a very close family member of mine has CF. They were diagnosed late in life and have been able to control it, up until now. They are in the hospital and have just been told that the antibiotics they have been taking are no longer working, and there is nothing more to do.  I refuse to accept this news. Does anyone know if a lung transplant would be an option at this point?

 

[cfamilymember]

Hello, a very close family member of mine has CF. They were diagnosed late in life and have been able to control it, up until now. They are in the hospital and have just been told that the antibiotics they have been taking are no longer working, and there is nothing more to do. I refuse to accept this news. Does anyone know if a lung transplant would be an option at this point?

 

[cfamilymember]

<p>Hello, a very close family member of mine has CF. They were diagnosed late in life and have been able to control it, up until now. They are in the hospital and have just been told that the antibiotics they have been taking are no longer working, and there is nothing more to do. I refuse to accept this news. Does anyone know if a lung transplant would be an option at this point?

 

[Mommafirst]

I'm sorry to hear this. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I don't know if a transplant is an option or not. I hate this disease. I hope they can find something to help.

 

[Mommafirst]

I'm sorry to hear this. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I don't know if a transplant is an option or not. I hate this disease. I hope they can find something to help.

 

[Mommafirst]

I'm sorry to hear this. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I don't know if a transplant is an option or not. I hate this disease. I hope they can find something to help.

 

[JennyCoulon]

I would definately ask someone if a transplant is an option. When anyone in life is told there is nothing more that can be done no matter what disease they are fighting it is hard. I would not take that as an answer. It is not that dr's decision when that patient is going to stop fighting and to not offer any other kind of treatment is not acceptable. I would just keep praying that something comes up. Keep your head up.

 

[JennyCoulon]

I would definately ask someone if a transplant is an option. When anyone in life is told there is nothing more that can be done no matter what disease they are fighting it is hard. I would not take that as an answer. It is not that dr's decision when that patient is going to stop fighting and to not offer any other kind of treatment is not acceptable. I would just keep praying that something comes up. Keep your head up.

 

[JennyCoulon]

<p>I would definately ask someone if a transplant is an option. When anyone in life is told there is nothing more that can be done no matter what disease they are fighting it is hard. I would not take that as an answer. It is not that dr's decision when that patient is going to stop fighting and to not offer any other kind of treatment is not acceptable. I would just keep praying that something comes up. Keep your head up.

 

[LouLou]

I live in America but when my lung bugs became difficult to treat my doctor sent my sputum off to Canada to a hospital that specializes in something called synergy testing. I would think this option should be exhausted first. Then the question is do they let her decline until she hits a certain % lung function req for transplantation. I feel like I've heard on here that with very resistant bacteria you are able to get actively listed in the high 30s which is usually when someone gets evaluated but not listed until low 30s, high 20s. Good luck!

 

[LouLou]

I live in America but when my lung bugs became difficult to treat my doctor sent my sputum off to Canada to a hospital that specializes in something called synergy testing. I would think this option should be exhausted first. Then the question is do they let her decline until she hits a certain % lung function req for transplantation. I feel like I've heard on here that with very resistant bacteria you are able to get actively listed in the high 30s which is usually when someone gets evaluated but not listed until low 30s, high 20s. Good luck!

 

[LouLou]

I live in America but when my lung bugs became difficult to treat my doctor sent my sputum off to Canada to a hospital that specializes in something called synergy testing. I would think this option should be exhausted first. Then the question is do they let her decline until she hits a certain % lung function req for transplantation. I feel like I've heard on here that with very resistant bacteria you are able to get actively listed in the high 30s which is usually when someone gets evaluated but not listed until low 30s, high 20s. Good luck!