Finally got our answer,

T

Terry

Guest
Hey all,

I had been posting, worrying about MRSA and Marissa's declining peak flow, fev1, and increased cough and clinic visits. We got the call yesterday. She is growing pseudomonas again. It's been a nice break for the last 2 years.

I don't know whether to feel better that the MRSA seems to not be the culprit, or feel more upset than I am that they found the pseudomonas. I have thought that since March 08 something was not right about her steadily dropping and coughing more and more. I am kind of relieved that they found something. Is that weird???

It has been our experience that she has not gotten rid of the MRSA with all the different antibiotics that she takes, but the Pseudomonas was erradicated pretty quickly in the past. My main fear was that I KNEW something was wrong, but now that we know what it is and can treat it, I'm calmer. To tell you the truth, I am sooooo afraid of B. Cepacia, and I think that is why I am so relieved. It's not the big B.

I think I need mental help, the first time she had PA, I freaked...now I am weighing it against MRSA and feeling confident and relieved that it is here.

Don't get me wrong, I'd prefer nothing. But I haven't liked being told to believe there was nothing while knowing there was something.

Gonna stop rambling now before I give you all my headache...

Terry
 
T

Terry

Guest
Hey all,

I had been posting, worrying about MRSA and Marissa's declining peak flow, fev1, and increased cough and clinic visits. We got the call yesterday. She is growing pseudomonas again. It's been a nice break for the last 2 years.

I don't know whether to feel better that the MRSA seems to not be the culprit, or feel more upset than I am that they found the pseudomonas. I have thought that since March 08 something was not right about her steadily dropping and coughing more and more. I am kind of relieved that they found something. Is that weird???

It has been our experience that she has not gotten rid of the MRSA with all the different antibiotics that she takes, but the Pseudomonas was erradicated pretty quickly in the past. My main fear was that I KNEW something was wrong, but now that we know what it is and can treat it, I'm calmer. To tell you the truth, I am sooooo afraid of B. Cepacia, and I think that is why I am so relieved. It's not the big B.

I think I need mental help, the first time she had PA, I freaked...now I am weighing it against MRSA and feeling confident and relieved that it is here.

Don't get me wrong, I'd prefer nothing. But I haven't liked being told to believe there was nothing while knowing there was something.

Gonna stop rambling now before I give you all my headache...

Terry
 
T

Terry

Guest
Hey all,

I had been posting, worrying about MRSA and Marissa's declining peak flow, fev1, and increased cough and clinic visits. We got the call yesterday. She is growing pseudomonas again. It's been a nice break for the last 2 years.

I don't know whether to feel better that the MRSA seems to not be the culprit, or feel more upset than I am that they found the pseudomonas. I have thought that since March 08 something was not right about her steadily dropping and coughing more and more. I am kind of relieved that they found something. Is that weird???

It has been our experience that she has not gotten rid of the MRSA with all the different antibiotics that she takes, but the Pseudomonas was erradicated pretty quickly in the past. My main fear was that I KNEW something was wrong, but now that we know what it is and can treat it, I'm calmer. To tell you the truth, I am sooooo afraid of B. Cepacia, and I think that is why I am so relieved. It's not the big B.

I think I need mental help, the first time she had PA, I freaked...now I am weighing it against MRSA and feeling confident and relieved that it is here.

Don't get me wrong, I'd prefer nothing. But I haven't liked being told to believe there was nothing while knowing there was something.

Gonna stop rambling now before I give you all my headache...

Terry
 
T

Terry

Guest
Hey all,

I had been posting, worrying about MRSA and Marissa's declining peak flow, fev1, and increased cough and clinic visits. We got the call yesterday. She is growing pseudomonas again. It's been a nice break for the last 2 years.

I don't know whether to feel better that the MRSA seems to not be the culprit, or feel more upset than I am that they found the pseudomonas. I have thought that since March 08 something was not right about her steadily dropping and coughing more and more. I am kind of relieved that they found something. Is that weird???

It has been our experience that she has not gotten rid of the MRSA with all the different antibiotics that she takes, but the Pseudomonas was erradicated pretty quickly in the past. My main fear was that I KNEW something was wrong, but now that we know what it is and can treat it, I'm calmer. To tell you the truth, I am sooooo afraid of B. Cepacia, and I think that is why I am so relieved. It's not the big B.

I think I need mental help, the first time she had PA, I freaked...now I am weighing it against MRSA and feeling confident and relieved that it is here.

Don't get me wrong, I'd prefer nothing. But I haven't liked being told to believe there was nothing while knowing there was something.

Gonna stop rambling now before I give you all my headache...

Terry
 
T

Terry

Guest
Hey all,
<br />
<br />I had been posting, worrying about MRSA and Marissa's declining peak flow, fev1, and increased cough and clinic visits. We got the call yesterday. She is growing pseudomonas again. It's been a nice break for the last 2 years.
<br />
<br />I don't know whether to feel better that the MRSA seems to not be the culprit, or feel more upset than I am that they found the pseudomonas. I have thought that since March 08 something was not right about her steadily dropping and coughing more and more. I am kind of relieved that they found something. Is that weird???
<br />
<br />It has been our experience that she has not gotten rid of the MRSA with all the different antibiotics that she takes, but the Pseudomonas was erradicated pretty quickly in the past. My main fear was that I KNEW something was wrong, but now that we know what it is and can treat it, I'm calmer. To tell you the truth, I am sooooo afraid of B. Cepacia, and I think that is why I am so relieved. It's not the big B.
<br />
<br />I think I need mental help, the first time she had PA, I freaked...now I am weighing it against MRSA and feeling confident and relieved that it is here.
<br />
<br />Don't get me wrong, I'd prefer nothing. But I haven't liked being told to believe there was nothing while knowing there was something.
<br />
<br />Gonna stop rambling now before I give you all my headache...
<br />
<br />Terry
 
T

tammykrumrey

Guest
Terry,

I completely understand the 'at least they found out what is going on' thought process! Especially since she has had drops in her numbers, but no answers as to what the problem was.

But at least now she can be treated appropriately and hopefully kick some PA tushy<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

tammykrumrey

Guest
Terry,

I completely understand the 'at least they found out what is going on' thought process! Especially since she has had drops in her numbers, but no answers as to what the problem was.

But at least now she can be treated appropriately and hopefully kick some PA tushy<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

tammykrumrey

Guest
Terry,

I completely understand the 'at least they found out what is going on' thought process! Especially since she has had drops in her numbers, but no answers as to what the problem was.

But at least now she can be treated appropriately and hopefully kick some PA tushy<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

tammykrumrey

Guest
Terry,

I completely understand the 'at least they found out what is going on' thought process! Especially since she has had drops in her numbers, but no answers as to what the problem was.

But at least now she can be treated appropriately and hopefully kick some PA tushy<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

tammykrumrey

Guest
Terry,
<br />
<br />I completely understand the 'at least they found out what is going on' thought process! Especially since she has had drops in her numbers, but no answers as to what the problem was.
<br />
<br />But at least now she can be treated appropriately and hopefully kick some PA tushy<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />
<br />
<br />
 
T

Terry

Guest
Thanks Tammy!

I'm not very good at lying to anyone, least of all myself. So I have not been doing very well in all this "denial" of the problem for the last few months.

I have been driving the house nuts with being freaky about everything, because I knew there was something, and didn't want anything else to come into play before we figured this one out.

I know PA scares the petunias out of some (including me at first), but Marissa is a good weight (thanks to the G-Tube) and kicked this stuff really quick 2 years ago when she wasn't doing as well as she is now.

DOWN WITH PA! We can do this!
 
T

Terry

Guest
Thanks Tammy!

I'm not very good at lying to anyone, least of all myself. So I have not been doing very well in all this "denial" of the problem for the last few months.

I have been driving the house nuts with being freaky about everything, because I knew there was something, and didn't want anything else to come into play before we figured this one out.

I know PA scares the petunias out of some (including me at first), but Marissa is a good weight (thanks to the G-Tube) and kicked this stuff really quick 2 years ago when she wasn't doing as well as she is now.

DOWN WITH PA! We can do this!
 
T

Terry

Guest
Thanks Tammy!

I'm not very good at lying to anyone, least of all myself. So I have not been doing very well in all this "denial" of the problem for the last few months.

I have been driving the house nuts with being freaky about everything, because I knew there was something, and didn't want anything else to come into play before we figured this one out.

I know PA scares the petunias out of some (including me at first), but Marissa is a good weight (thanks to the G-Tube) and kicked this stuff really quick 2 years ago when she wasn't doing as well as she is now.

DOWN WITH PA! We can do this!
 
T

Terry

Guest
Thanks Tammy!

I'm not very good at lying to anyone, least of all myself. So I have not been doing very well in all this "denial" of the problem for the last few months.

I have been driving the house nuts with being freaky about everything, because I knew there was something, and didn't want anything else to come into play before we figured this one out.

I know PA scares the petunias out of some (including me at first), but Marissa is a good weight (thanks to the G-Tube) and kicked this stuff really quick 2 years ago when she wasn't doing as well as she is now.

DOWN WITH PA! We can do this!
 
T

Terry

Guest
Thanks Tammy!
<br />
<br />I'm not very good at lying to anyone, least of all myself. So I have not been doing very well in all this "denial" of the problem for the last few months.
<br />
<br />I have been driving the house nuts with being freaky about everything, because I knew there was something, and didn't want anything else to come into play before we figured this one out.
<br />
<br />I know PA scares the petunias out of some (including me at first), but Marissa is a good weight (thanks to the G-Tube) and kicked this stuff really quick 2 years ago when she wasn't doing as well as she is now.
<br />
<br />DOWN WITH PA! We can do this!
<br />
<br />
<br />
<br />
<br />
 
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