rubyroselee
New member
Hi all,
Woke up in the middle of the night last Thursday morning coughing up blood. Totally freaked me out. I would have to say that's one of the scariest things about having CF. So called the on-call doctor who said to wait a few hours and talk to my CF doctor since it was almost morning. Since I had been having a lot of symptoms of an exacerbation prior to the hemoptysis, he thought IVs would be the best option for me. I didn't even want to fight it because I felt so sick at that point. So luckily I got a bed within a few hours and started treatments right away. I am on Meropenem and Amikacin for 2 weeks. I was sent home yesterday to finish the IVs at home and a home health nurse is helping with the PICC dressing changes, education, and blood draws.
So needless to say, this has been quite a learning experience for me. I am very thankful that I have not required IVs until now, at age 34. However, it also worries me that this may be the start of a decline. I know it's too early to know what the future holds, but it's gotten me a little depressed. I just don't want to make a habit out of this, but I know it's beyond my control.
The other issue I have is work. I am only allowed to take 10 days of sick time a year, and I've already sucked up 8 between this and my doctor's appointments. So, I went into work today and found that was a poor decision. I only lasted an hour or two and had to come home. I'm just so exhausted and the antibiotics are kicking my butt. Luckily my boss is allowing me to work from home until I feel well enough to come back to the office. And she is also allowing me to work shorter hours in the office so I can get back home to do my IVs on time. I did not tell my boss why I was in the hospital, but I did tell her I have treatments to continue at home for a couple weeks. I'm so hesitant to tell people about my CF and I'm not sure why.
Anyhow, the PICC is driving me a little batty since it's quite uncomfortable. And now my dressing is starting to itch too. I was pretty much confined to my bed today because I felt so incredibly tired, nauseous, and have no appetite. I think the meds are just messing with my system. I also feel quite dehydrated so I've been sucking back the water/drinks. Anyone have experience with those two antibiotics?
(IV)
I am just thankful that my lungs are feeling better because I really didn't realize how sick I was. I had been feeling bad for quite some time and putting off calling the doctor. It's sort of strange to me to be able to take a breath and not hear all sorts of noises and crackles![Smile :) :)](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
Well, any advice is appreciated as I go through this!
Thanks all
Woke up in the middle of the night last Thursday morning coughing up blood. Totally freaked me out. I would have to say that's one of the scariest things about having CF. So called the on-call doctor who said to wait a few hours and talk to my CF doctor since it was almost morning. Since I had been having a lot of symptoms of an exacerbation prior to the hemoptysis, he thought IVs would be the best option for me. I didn't even want to fight it because I felt so sick at that point. So luckily I got a bed within a few hours and started treatments right away. I am on Meropenem and Amikacin for 2 weeks. I was sent home yesterday to finish the IVs at home and a home health nurse is helping with the PICC dressing changes, education, and blood draws.
So needless to say, this has been quite a learning experience for me. I am very thankful that I have not required IVs until now, at age 34. However, it also worries me that this may be the start of a decline. I know it's too early to know what the future holds, but it's gotten me a little depressed. I just don't want to make a habit out of this, but I know it's beyond my control.
The other issue I have is work. I am only allowed to take 10 days of sick time a year, and I've already sucked up 8 between this and my doctor's appointments. So, I went into work today and found that was a poor decision. I only lasted an hour or two and had to come home. I'm just so exhausted and the antibiotics are kicking my butt. Luckily my boss is allowing me to work from home until I feel well enough to come back to the office. And she is also allowing me to work shorter hours in the office so I can get back home to do my IVs on time. I did not tell my boss why I was in the hospital, but I did tell her I have treatments to continue at home for a couple weeks. I'm so hesitant to tell people about my CF and I'm not sure why.
Anyhow, the PICC is driving me a little batty since it's quite uncomfortable. And now my dressing is starting to itch too. I was pretty much confined to my bed today because I felt so incredibly tired, nauseous, and have no appetite. I think the meds are just messing with my system. I also feel quite dehydrated so I've been sucking back the water/drinks. Anyone have experience with those two antibiotics?
(IV)
I am just thankful that my lungs are feeling better because I really didn't realize how sick I was. I had been feeling bad for quite some time and putting off calling the doctor. It's sort of strange to me to be able to take a breath and not hear all sorts of noises and crackles
Well, any advice is appreciated as I go through this!
Thanks all