For those I havent met yet

[Zoey7206]

<b><span style=" font-family: Arial; font-size: large;">Hi. My name
is Sarah. My daughters name is Zoey. She was born 7 weeks ago with
a bowel problem. They did surgery so now she has two stomas
sticking out of her stomach with bags over them. She is still in
the hospital. In 2 weeks they will partially put her bowels back
together. they cant fully put them back because one is bigger than
the other. 6 weeks after that she should be fully reconnected. They
said she could probably come home in 4-6 weeks.The hospital she is
in is 2 hours away. If you want to see some pics go to:
mome2zoey.spaces.live.com</b><br>
<b><span style=" font-family: Arial; font-size: large;">Well i
guess thats all for now. oh yeah she tested positive for cf. I've
never heard of it before but this website has helped alot. Thank
you everybody I've talked to so far. I'm looking forward to meeting
more of you.       Sarah</b>

 

[fourkidsmom]

Sarah,

Good luck with everything, I know it seems like forever until your little one gets to come home. My son had the 4 hour bowel surgery at 6 hours old and had a stoma bag (which we got pretty good at changing) and j-tube for the first two months before being reconnected, he also had one side being larger than the other, they actually reconnected earlier than they wanted to, because he wasn't thriving. My son was in the hospital the first 77 days of his life before going home and our hospital is also 2 hours one way from home. Your story brought back alot of memories. I know right now it seems like it will never get better, but it will all work out. Take Care


Fourkidsmom

 

[Nicole]

Hi Sarah! I replied to your meconium ileus thread and I just want to say hang in there. I know it's tough but things will get better. Please keep us updated on your daughter's progress.

 

[JazzysMom]

I chatted with you briefly in chat. I hope you keep finding the strength. Things are always difficult in the beginning especially when surgery etc is required! We are hear for questions or just venting!

 

[anonymous]

sarah hi im christi Ashtons mom he is now 10 months old and we went through the exact same thing that you are going through its long and its rough but its all worth it in the end.. ashton was in the NICU for 2 1/2 months and had stomas and bowel reconnection with one side being larger than the other.. We were lucky though we only lives 12 min away on a good day so im sorry that you are so far but good luck and email me if you have any questions... christi6436@yahoo.com

christi

 

[DEES4]

Hi! My son also had the meconium ileus. He had surgery and had the stomas as well. They reattached him when he was 5 weeks old and he was in the hospital a total of 9 weeks. We were about an hour away from the hospital, it was Christmas time and we have 3 other children....needless to say it was a very difficult time but like someone else said "well worth it". My little Sawyer is such a blessing to all of us and everyone he comes in contact with just loves him. I know this is a very difficult time for you and your family....so many emotions going on. But you guys will make it and in a few months you will be looking back on all of this. I know when you are going through it it feels like it will never end and things will never feel normal again but eventually you will get there. I wish you and your baby all the best.
Carrie

 

[anonymous]

Hi Sarah, my son had the same thing as Zoey. He also was diagnos with CF and was in the Hospital for 4 week after birth. Just hang in there and every thing will be ok. before you now you will be taking her home. My son is know 17 month old and doing very good. This is the beast site to write if you have any queastions or just need to thalk to some one. Every one here is very nice and understanding.
Hope to hear from you soon take care and god be with you. Zoey will be in my prayers.
Mom to Marcos w/cf

 

[Jenica]

Hi, Sarah. I just wanted to welcome you to the forums and let you know that I will be praying for your little Zoey. What a beautiful little girl you have! She is just gorgeous, and I'm hoping that you will have her home and healthy very soon.

Congratulations on your sweet little daughter!

 

[welshgirl]

hello sarah, welcome<img src="i/expressions/face-icon-small-happy.gif" border="0"> hope to hear more from you when things have settled down<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Mommafirst]

Hi Sarah, My daughter didn't need surgery, but had the same issue.
 Luckily hers cleared without surgery.  I am so sorry you
are going through all this.  It is all so hard and scary:
 the NICU, being home without your baby, surgeries, and big
words like cystic fibrosis that was a total unknown until some
doctor brings it up in the NICU.  I have been there -- just
seven short months ago, so have so many others on here.  I
hope you will hang in there, it does get easier to deal with, the
black cloud hanging over your head will start to move away.
 Your little girl is beautiful.  She has such long petite
fingers, too!!  Welcome to this site.  I don't post much,
but the information I have gotten here has already been
invaluable!!

 

[JohnnaMarie]

Hey there and Welcome! My little brother had a stoma too when he was new born. He now is in his 20's and his health is pretty good. He just has two scars on his belly from the incisions they had to make on him.

Your baby is sooo cuutte!! What a little angel!! Hang in there....<img src="i/expressions/heart.gif" border="0"> You can ask us all anything we are here to be supportive.<img src="i/expressions/rose.gif" border="0">

 

[Haileysmommy]

Welcome Sarah!!! Zoey is a beautiful little baby. I found out a lot of info form here when Hailey was first diagnosed at 2 weeks old.