There's some information about insurance on the CFF site at <a target=new class=ftalternatingbarlinklarge href="http://www.cff.org/living_with_cf/insurance_and_assistance_programs/">http://www.cff.org/living_with_cf/insurance_and_assistance_programs/</a> .
Note that what's available often varies by state (look at the last link on that page).
Also, though Massachusetts isn't on that site, if you are officially declared disabled, then you are eligible for what's called Commonhealth insurance.
Commonhealth insurance is billed on a sliding scale depending on whether or not you work at least 40 hours a month and depending on total family income.
For specifics in your state, you can probably call the state's insurance bureau.
Good luck.
-LisaV