G tube placement

kitomd21

New member
Was wondering how common it is for CFers to require G tube placement...any suggestions as to how they can be avoided? I know they can make life a lot easier in terms of caloric/fat intake, but are they necessary if enzymes are being taken as prescribed? Are G tubes necessary because the enzymes aren't working as well?
 

kitomd21

New member
Was wondering how common it is for CFers to require G tube placement...any suggestions as to how they can be avoided? I know they can make life a lot easier in terms of caloric/fat intake, but are they necessary if enzymes are being taken as prescribed? Are G tubes necessary because the enzymes aren't working as well?
 

kitomd21

New member
Was wondering how common it is for CFers to require G tube placement...any suggestions as to how they can be avoided? I know they can make life a lot easier in terms of caloric/fat intake, but are they necessary if enzymes are being taken as prescribed? Are G tubes necessary because the enzymes aren't working as well?
 

kitomd21

New member
Was wondering how common it is for CFers to require G tube placement...any suggestions as to how they can be avoided? I know they can make life a lot easier in terms of caloric/fat intake, but are they necessary if enzymes are being taken as prescribed? Are G tubes necessary because the enzymes aren't working as well?
 

kitomd21

New member
Was wondering how common it is for CFers to require G tube placement...any suggestions as to how they can be avoided? I know they can make life a lot easier in terms of caloric/fat intake, but are they necessary if enzymes are being taken as prescribed? Are G tubes necessary because the enzymes aren't working as well?
 

just1more

New member
Can't answer how common.

However, no you still have to have a functioning enzyme level/combination in order to digest the food.

The major benefits of a g-tube are that you can ingest large qty of calories w/o having to eat. This is often needed/desired when you are ill as you rarely feel like eating. It can also help with a little one to keep up their body weight.

Studies have shown that a healthy weight is a strong indicator in overall CF health, so if you are unable to maintain orally many Dr's will push for the g-tube so they can keep you well nurished.
 

just1more

New member
Can't answer how common.

However, no you still have to have a functioning enzyme level/combination in order to digest the food.

The major benefits of a g-tube are that you can ingest large qty of calories w/o having to eat. This is often needed/desired when you are ill as you rarely feel like eating. It can also help with a little one to keep up their body weight.

Studies have shown that a healthy weight is a strong indicator in overall CF health, so if you are unable to maintain orally many Dr's will push for the g-tube so they can keep you well nurished.
 

just1more

New member
Can't answer how common.

However, no you still have to have a functioning enzyme level/combination in order to digest the food.

The major benefits of a g-tube are that you can ingest large qty of calories w/o having to eat. This is often needed/desired when you are ill as you rarely feel like eating. It can also help with a little one to keep up their body weight.

Studies have shown that a healthy weight is a strong indicator in overall CF health, so if you are unable to maintain orally many Dr's will push for the g-tube so they can keep you well nurished.
 

just1more

New member
Can't answer how common.

However, no you still have to have a functioning enzyme level/combination in order to digest the food.

The major benefits of a g-tube are that you can ingest large qty of calories w/o having to eat. This is often needed/desired when you are ill as you rarely feel like eating. It can also help with a little one to keep up their body weight.

Studies have shown that a healthy weight is a strong indicator in overall CF health, so if you are unable to maintain orally many Dr's will push for the g-tube so they can keep you well nurished.
 

just1more

New member
Can't answer how common.
<br />
<br />However, no you still have to have a functioning enzyme level/combination in order to digest the food.
<br />
<br />The major benefits of a g-tube are that you can ingest large qty of calories w/o having to eat. This is often needed/desired when you are ill as you rarely feel like eating. It can also help with a little one to keep up their body weight.
<br />
<br />Studies have shown that a healthy weight is a strong indicator in overall CF health, so if you are unable to maintain orally many Dr's will push for the g-tube so they can keep you well nurished.
<br />
 
M

Mommafirst

Guest
My daughter is mostly pancreatic sufficient, but takes enzymes even though the tests show she doesn't need them. She is scheduled to have a g-tube next month. <img src="i/expressions/face-icon-small-sad.gif" border="0"> We've tried everything to get her to gain weight, crazy high cal foods, night time pediasure drinking, etc. We have gotten to the point where her failure to thrive is impacting her liklihood of growing large enough lungs to best fight this disease. So we have consented to do the tube.

I don't know that there is much you can do to avoid it, if your child just doesn't grow well even with enzymes. I don't think all CF kids (or even half) have g-tubes, but there is a percentage that do.

The way I see it now is that the median age of survival has increased over the past couple of decades due to people sitting in the corner doing nothing to help their CF. It comes from using all the reactive and proactive medical advances that have come available to us. The g-tube is just one of those things. And if it will help in the long run, than its worth it.
 
M

Mommafirst

Guest
My daughter is mostly pancreatic sufficient, but takes enzymes even though the tests show she doesn't need them. She is scheduled to have a g-tube next month. <img src="i/expressions/face-icon-small-sad.gif" border="0"> We've tried everything to get her to gain weight, crazy high cal foods, night time pediasure drinking, etc. We have gotten to the point where her failure to thrive is impacting her liklihood of growing large enough lungs to best fight this disease. So we have consented to do the tube.

I don't know that there is much you can do to avoid it, if your child just doesn't grow well even with enzymes. I don't think all CF kids (or even half) have g-tubes, but there is a percentage that do.

The way I see it now is that the median age of survival has increased over the past couple of decades due to people sitting in the corner doing nothing to help their CF. It comes from using all the reactive and proactive medical advances that have come available to us. The g-tube is just one of those things. And if it will help in the long run, than its worth it.
 
M

Mommafirst

Guest
My daughter is mostly pancreatic sufficient, but takes enzymes even though the tests show she doesn't need them. She is scheduled to have a g-tube next month. <img src="i/expressions/face-icon-small-sad.gif" border="0"> We've tried everything to get her to gain weight, crazy high cal foods, night time pediasure drinking, etc. We have gotten to the point where her failure to thrive is impacting her liklihood of growing large enough lungs to best fight this disease. So we have consented to do the tube.

I don't know that there is much you can do to avoid it, if your child just doesn't grow well even with enzymes. I don't think all CF kids (or even half) have g-tubes, but there is a percentage that do.

The way I see it now is that the median age of survival has increased over the past couple of decades due to people sitting in the corner doing nothing to help their CF. It comes from using all the reactive and proactive medical advances that have come available to us. The g-tube is just one of those things. And if it will help in the long run, than its worth it.
 
M

Mommafirst

Guest
My daughter is mostly pancreatic sufficient, but takes enzymes even though the tests show she doesn't need them. She is scheduled to have a g-tube next month. <img src="i/expressions/face-icon-small-sad.gif" border="0"> We've tried everything to get her to gain weight, crazy high cal foods, night time pediasure drinking, etc. We have gotten to the point where her failure to thrive is impacting her liklihood of growing large enough lungs to best fight this disease. So we have consented to do the tube.

I don't know that there is much you can do to avoid it, if your child just doesn't grow well even with enzymes. I don't think all CF kids (or even half) have g-tubes, but there is a percentage that do.

The way I see it now is that the median age of survival has increased over the past couple of decades due to people sitting in the corner doing nothing to help their CF. It comes from using all the reactive and proactive medical advances that have come available to us. The g-tube is just one of those things. And if it will help in the long run, than its worth it.
 
M

Mommafirst

Guest
My daughter is mostly pancreatic sufficient, but takes enzymes even though the tests show she doesn't need them. She is scheduled to have a g-tube next month. <img src="i/expressions/face-icon-small-sad.gif" border="0"> We've tried everything to get her to gain weight, crazy high cal foods, night time pediasure drinking, etc. We have gotten to the point where her failure to thrive is impacting her liklihood of growing large enough lungs to best fight this disease. So we have consented to do the tube.
<br />
<br />I don't know that there is much you can do to avoid it, if your child just doesn't grow well even with enzymes. I don't think all CF kids (or even half) have g-tubes, but there is a percentage that do.
<br />
<br />The way I see it now is that the median age of survival has increased over the past couple of decades due to people sitting in the corner doing nothing to help their CF. It comes from using all the reactive and proactive medical advances that have come available to us. The g-tube is just one of those things. And if it will help in the long run, than its worth it.
 

Jane

Digital opinion leader
G-tubes are becoming much more common in people with CF. A few years back there was a big study that showed the correlation between lung function and weight. Instead of allowing patients to loose weight and compromise their overall health, doctors now encourage g-tubes.

In discussions we've had here before, adult patients discourage it because it is invasive. Others see it like a failure to keep yourself healthy.

In my opinion, like Tom said it is just another thing to keep people with CF healthy. My kids both have them (4 years) and I can say with certainty that it has improved their health.
 

Jane

Digital opinion leader
G-tubes are becoming much more common in people with CF. A few years back there was a big study that showed the correlation between lung function and weight. Instead of allowing patients to loose weight and compromise their overall health, doctors now encourage g-tubes.

In discussions we've had here before, adult patients discourage it because it is invasive. Others see it like a failure to keep yourself healthy.

In my opinion, like Tom said it is just another thing to keep people with CF healthy. My kids both have them (4 years) and I can say with certainty that it has improved their health.
 

Jane

Digital opinion leader
G-tubes are becoming much more common in people with CF. A few years back there was a big study that showed the correlation between lung function and weight. Instead of allowing patients to loose weight and compromise their overall health, doctors now encourage g-tubes.

In discussions we've had here before, adult patients discourage it because it is invasive. Others see it like a failure to keep yourself healthy.

In my opinion, like Tom said it is just another thing to keep people with CF healthy. My kids both have them (4 years) and I can say with certainty that it has improved their health.
 

Jane

Digital opinion leader
G-tubes are becoming much more common in people with CF. A few years back there was a big study that showed the correlation between lung function and weight. Instead of allowing patients to loose weight and compromise their overall health, doctors now encourage g-tubes.

In discussions we've had here before, adult patients discourage it because it is invasive. Others see it like a failure to keep yourself healthy.

In my opinion, like Tom said it is just another thing to keep people with CF healthy. My kids both have them (4 years) and I can say with certainty that it has improved their health.
 

Jane

Digital opinion leader
G-tubes are becoming much more common in people with CF. A few years back there was a big study that showed the correlation between lung function and weight. Instead of allowing patients to loose weight and compromise their overall health, doctors now encourage g-tubes.
<br />
<br />In discussions we've had here before, adult patients discourage it because it is invasive. Others see it like a failure to keep yourself healthy.
<br />
<br />In my opinion, like Tom said it is just another thing to keep people with CF healthy. My kids both have them (4 years) and I can say with certainty that it has improved their health.
 
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