G Tube?

Topazbutterfly

New member
I see a lot of posts that refer to a G-tube. I only have a vague idea of what it is, so please pardon my ignorance, but exactly what is it, and how common is it for kids with CF to have one? Is the tube in permanently? <img src="i/expressions/face-icon-small-blush.gif" border="0">
Thank you!
 

NoDayButToday

New member
You are certainly not ignorant- and besides the only way to learn is to ask!

I'm not sure what the percentage is, but I'd say a decent amount of CF children get G-Tubes at some point (I also believe they are becoming more commonplace). Some kids get them because they have so much trouble digesting that they are malnourished. Some kids, like myself, get them because at a certain degree of lung involvement with CF, you burn massive amounts of calories just breathing, fighting infections etc. I was in fact chubby before I had lung involvement!

I have what is called a Bard Button. The surgery to put it in was minimally invasive. It looks a bit like what you would inflate a pool toy with it (wher you put your mouth). It's a permanent thing in general (they can be reversed, but it also can stay in and not necessarily be used for a time). As you grow, your tube may have to be 'exchanged' for a better fit.
 
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