gene thearpy

K

kelvinvale

New member
<img src="i/expressions/face-icon-small-confused.gif" border="0"> Hi, This is the first time that I have wrote to this site. I am Jen from Scotland. My son Leo has cf he is now 7 months old. I just wanted to ask if anyone has heard of gene thearapy? We where told that the chance of having another baby with cf is 1 in 4 we where then briefly told about the gene thearpy option. If we could get the chance of having an non cf baby should we take that opportunity? I just wanted to here some peoples views on the subject. Thanks
 
M

Mockingbird

New member
Is it <a target=_blank class=ftalternatingbarlinklarge href="http://www.medra.com">www.medra.com</a>? I didn't think we were able to do that in the US yet.

<div class="FTQUOTE"><begin quote>Medra, Inc. can make the arrangements for receiving the Human Fetal Stem Cell Treatment. At the present time the therapy is administered in the Dominican Republic. (A one hour and forty-five minute flight from Miami.)</end quote></div>

I guess I was right. =-) They kind of make it sound like a miracle cure, which makes me suspicious.

Anyway, according to a Wikipedia article:<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Gene_therapy">http://en.wikipedia.org/wiki/Gene_therapy</a> the benefits are short-lived, and require a life-time of treatments.

Is this what what you were talking about, Jen, or is it something different? Anyway, as far as I can tell, it's all still very experimental.
 
J

JRPandTJP

New member
Is this the same as genetic prescreening where the fertilized eggs are checked for CF then a IUI is done? Or is this in reference to the gene therapy for a CF baby who is born with it?

We have talked about the 25% chance thing alot lately. Our first doesn't have CF or second does...I envisioned our lives with a third but we are not feeling right about the odds or doing the genetic IVF thing either. I he had been my first I most likely would have done the genetice prescreening thing. Adoption is on our minds at times but he is only 2 so we feel we want to sit with it before we do anything permenent. It is a very tough and very personal decision...one I agonize over whenever I see a pregnant or nursing mom ;=)

I don't think I answered a question but I wondered what was meant by genetic therapy.

Jody
 
D

damiensmom

New member
Very suspicious, I recieved an information packet from medra and fetal stem cell research. Embrionic (embroys) stem cells are called undifferentiated cells boimedical research claims they have the potentail to be turned into any type of tissue or blood cell. For example nerve cells could be developed, genetically alterd to express protiens in various diseases. I find it all intresting but I am not taking my son to the dominican rebublic. I do wonder what will come of stem cells when medicine advances.
 
D

damiensmom

New member
I was curious as to what scotlands medical laws were on gene therapy were. And what information they had on it. I know it is illegail here but is it and to what extent elsewhere.
 
K

kelvinvale

New member
<img src="i/expressions/face-icon-small-confused.gif" border="0">

We were using the term gene therapy incorrectly. Genetic prescreening appears to be the correct term.

We are about to approach our clinic in Glasgow to start the ball rolling. The treatment would be administred in London.

It appears to be the only way ahead. Do we take a chance of 1/4. Although the odds are in our favour. We have however met some couples with 2/3 CF Kids.

Gary and jen
 
W

welshgirl

New member
gary and jen, good luck to you both if you go ahead with the egg screening<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
You must log in or register to reply here.
Top