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Glutathione
- Thread starter anonymous
- Start date
Hi Dave,
I dont know of a Canadian web site, but i order mine thru iherb.com
I've been ordering from them since i started using Gsh, and i am very happy with their service. The brand they carry is Jarrow and i have no complaints about the product at all <img src="i/expressions/face-icon-small-smile.gif" border="0">
~Diane 39 / cf / diabetes / b.cepacia
I dont know of a Canadian web site, but i order mine thru iherb.com
I've been ordering from them since i started using Gsh, and i am very happy with their service. The brand they carry is Jarrow and i have no complaints about the product at all <img src="i/expressions/face-icon-small-smile.gif" border="0">
~Diane 39 / cf / diabetes / b.cepacia
If you go to Google and enter in "Journal of Cystic Fibrosis" the search engine will lead you to "Science Direct". Once you click on the Science Direct listing, it will take you to the Journal of Cystic Fibrosis.
Look for the the titled article: Improved glutathione status in young adult patients with cystic fibrosis supplemented with whey protein. Volume 2, Issue 4, December 2003, Pages 195-198.
Look for the the titled article: Improved glutathione status in young adult patients with cystic fibrosis supplemented with whey protein. Volume 2, Issue 4, December 2003, Pages 195-198.
Hi Dave,
The most amazing improvement that i noticed right away within the first days of using it , was that i started having more energy like i used to, before i got b.cepacia. I also get sick less often, and when i do get sick, it isnt as severe ( thank God). I feel less congested when i take it regularly. Having b.cepacia has changed a lot in my life, one being that i always felt tired and run down. I also got sick more often, and started to feel as if i were in a downward spiral after i had to have two pulmonary embolizations due to very large bleeds 2 years ago. After i got out of the hospital i decided i had to do something, anything i could, to find something to help get me out of the bad cycle i was in. I started reading about gsh, and got info from some cf patients that had used it and had success. i discussed it with my Dr. and he wasnt against it as long as i didnt stop my regular treatments ,and also as long as i only took it orally. I rodered it and when it arrived i took my first dose....500 mg. along with 500 mg. of vit.C to help with the uptake. That very day when i came home from work i felt like i wanted to do some yard work, which is unusual for me to have the energy to do anything like that after work. The energy level has stayed with me the whole time and i thank God, i finally feel like i used to before b.cepacia came into my life. I am now able to be more active which is what i used to be like. I still get sick here and there, but it isnt like it used to be. I used to get sick to the point where i could barely walk room to room without being totally out of breath. I wouldnt be able to go to work,or even take a shower because i was so tired and had No energy .It used to scare the crap out of me to get to that point. I am more than thrilled to say since starting gsh, my sick days are less severe and i am still able to go to work and do things normally.<img src="i/expressions/face-icon-small-happy.gif" border="0"> I thank God that i found gsh and i hope that anyone who tries it , finds good results as i have.
~Diane 39 / cf / diabetes / b.cepacia
The most amazing improvement that i noticed right away within the first days of using it , was that i started having more energy like i used to, before i got b.cepacia. I also get sick less often, and when i do get sick, it isnt as severe ( thank God). I feel less congested when i take it regularly. Having b.cepacia has changed a lot in my life, one being that i always felt tired and run down. I also got sick more often, and started to feel as if i were in a downward spiral after i had to have two pulmonary embolizations due to very large bleeds 2 years ago. After i got out of the hospital i decided i had to do something, anything i could, to find something to help get me out of the bad cycle i was in. I started reading about gsh, and got info from some cf patients that had used it and had success. i discussed it with my Dr. and he wasnt against it as long as i didnt stop my regular treatments ,and also as long as i only took it orally. I rodered it and when it arrived i took my first dose....500 mg. along with 500 mg. of vit.C to help with the uptake. That very day when i came home from work i felt like i wanted to do some yard work, which is unusual for me to have the energy to do anything like that after work. The energy level has stayed with me the whole time and i thank God, i finally feel like i used to before b.cepacia came into my life. I am now able to be more active which is what i used to be like. I still get sick here and there, but it isnt like it used to be. I used to get sick to the point where i could barely walk room to room without being totally out of breath. I wouldnt be able to go to work,or even take a shower because i was so tired and had No energy .It used to scare the crap out of me to get to that point. I am more than thrilled to say since starting gsh, my sick days are less severe and i am still able to go to work and do things normally.<img src="i/expressions/face-icon-small-happy.gif" border="0"> I thank God that i found gsh and i hope that anyone who tries it , finds good results as i have.
~Diane 39 / cf / diabetes / b.cepacia
Dave, you might want to take a look at these sites..........
http://members5.boardhost.com/CFGSH/
http://members.tripod.com/uvicf/research/glutathione.htm
http://aolsearch.aol.com/aol/search?invocationType=bottomsearchbox.%2Faol%2Fjsp%2Fsearch.jsp&query=glutathione+and+cystic+fibrosis&x=30&y=7
~Diane 39 / cf / diabetes / b.cepacia
http://members5.boardhost.com/CFGSH/
http://members.tripod.com/uvicf/research/glutathione.htm
http://aolsearch.aol.com/aol/search?invocationType=bottomsearchbox.%2Faol%2Fjsp%2Fsearch.jsp&query=glutathione+and+cystic+fibrosis&x=30&y=7
~Diane 39 / cf / diabetes / b.cepacia
Hi Diane,
My name is Denise and I am 30 w/CFRD. First, let me wish you all a Merry Christmas and a happy new year!
Secondly Diane have you ever tried Curcumin? I am a little nervous to try gsh and Curcumin but i hear of so many ppl having great results. My doctor just recently put me on 3% Hypertonic Sodium chloride as she said that it has been shown in studies to thin the mucus. So i have to see if i have results from this. i just got out of the hospital today and am going to continue my IV's at home. At least i am home for Christmas....
So Diane i hope you are keeping well -do you mind if i ask how yours PFT's are. My are low at the moment but my doctor said "denise don't get alarmed you are only on IV's 5 days they will go back to baseline" which for me is about 48%..... So say a prayer that they so i have to go back and see her next Wednesday!
Well i am off to bed as i have to be up early to do my IV's
Take care!
Denise
My name is Denise and I am 30 w/CFRD. First, let me wish you all a Merry Christmas and a happy new year!
Secondly Diane have you ever tried Curcumin? I am a little nervous to try gsh and Curcumin but i hear of so many ppl having great results. My doctor just recently put me on 3% Hypertonic Sodium chloride as she said that it has been shown in studies to thin the mucus. So i have to see if i have results from this. i just got out of the hospital today and am going to continue my IV's at home. At least i am home for Christmas....
So Diane i hope you are keeping well -do you mind if i ask how yours PFT's are. My are low at the moment but my doctor said "denise don't get alarmed you are only on IV's 5 days they will go back to baseline" which for me is about 48%..... So say a prayer that they so i have to go back and see her next Wednesday!
Well i am off to bed as i have to be up early to do my IV's
Take care!
Denise
Hi Dave and Denise,
Dave, right now i am taking 1500 to 2000 mgs. per day ( spaced apart of coarse). I take 500 mg. three or 4 times a day with 500 mg vit.C each dose.
Denise ,
here are my pft's this year......................
------------ FEV1 --------- FVC
Feb. 2004 43% ------- 64%
June 2004 44% ------- 65%
Sept. 2004 45% ------- 67%
Nov. 2004 43% ------- 59% wasnt feeling well and went on an iv
Nov. 2004 47% ------- 68% ( two weeks later)
I also gained a few pounds in the year also......
Dave, right now i am taking 1500 to 2000 mgs. per day ( spaced apart of coarse). I take 500 mg. three or 4 times a day with 500 mg vit.C each dose.
Denise ,
here are my pft's this year......................
------------ FEV1 --------- FVC
Feb. 2004 43% ------- 64%
June 2004 44% ------- 65%
Sept. 2004 45% ------- 67%
Nov. 2004 43% ------- 59% wasnt feeling well and went on an iv
Nov. 2004 47% ------- 68% ( two weeks later)
I also gained a few pounds in the year also......
Hi Kris,
It isnt a cf drug, it is a homepathic type of drug. I read about it first in ladies home journal and then got onto the gsh message board about it, and starting talking to people that have had success with it and decided to try it. There are studies being done to try to get it approved as a cf treatment. Whether or not it gets approved, i will still use it, because it has made a dramatic difference for me.
Like Dave said, read up on it and decide for yourself.<img src="i/expressions/face-icon-small-smile.gif" border="0">
~Diane 39 / cf / diabetes / b.cepacia
It isnt a cf drug, it is a homepathic type of drug. I read about it first in ladies home journal and then got onto the gsh message board about it, and starting talking to people that have had success with it and decided to try it. There are studies being done to try to get it approved as a cf treatment. Whether or not it gets approved, i will still use it, because it has made a dramatic difference for me.
Like Dave said, read up on it and decide for yourself.<img src="i/expressions/face-icon-small-smile.gif" border="0">
~Diane 39 / cf / diabetes / b.cepacia
Diane,
My son is 10 years old and has had B Cepatia since he was 4 years old. He never had any lung problems before the cepacia and then it took about a year for it to start affecting him. He's had a hard couple of years. He doesnt seem to have any "grey" area, he is either really healthy and active or very sick with high fevers. In fact he can seem really well one day and wake up the next morning with a high fever and we are heading to CHOP with full blown pneumonia. He is very athletic and plays several sports, but its been hard because he has been going into the hospital about every 3 months. My mother has been very active looking for alternatives for him, since the "traditional" drugs arent keeping him healthy. We also cleared everything with our CF docs. We started him on GSH over the summer and what a difference it has made! Although he was in the hospital once since then, it was nothing like his usual bout of 7 days of high fevers. He had a low grade fever and it lasted 1-2 days. His PFT's were much better than his usual admissions. He's FEV1 is usually in the 80's but tends to drop to the 30's when he's admitted. This past time it was in the 60's. It was so nice not to see him suffer so much. He too would not have the energy to walk. This past time we couldnt keep him down. We got approval from the docs to let us give him the GSH at the hospital (we brought our own). He does 2 inhaled and 2 oral tablets per day.
We feel the same way, whether this drug is approved for CF use or not it will continue to be a part of his therapy.
Have a happy and healthy New Year!
Caren
My son is 10 years old and has had B Cepatia since he was 4 years old. He never had any lung problems before the cepacia and then it took about a year for it to start affecting him. He's had a hard couple of years. He doesnt seem to have any "grey" area, he is either really healthy and active or very sick with high fevers. In fact he can seem really well one day and wake up the next morning with a high fever and we are heading to CHOP with full blown pneumonia. He is very athletic and plays several sports, but its been hard because he has been going into the hospital about every 3 months. My mother has been very active looking for alternatives for him, since the "traditional" drugs arent keeping him healthy. We also cleared everything with our CF docs. We started him on GSH over the summer and what a difference it has made! Although he was in the hospital once since then, it was nothing like his usual bout of 7 days of high fevers. He had a low grade fever and it lasted 1-2 days. His PFT's were much better than his usual admissions. He's FEV1 is usually in the 80's but tends to drop to the 30's when he's admitted. This past time it was in the 60's. It was so nice not to see him suffer so much. He too would not have the energy to walk. This past time we couldnt keep him down. We got approval from the docs to let us give him the GSH at the hospital (we brought our own). He does 2 inhaled and 2 oral tablets per day.
We feel the same way, whether this drug is approved for CF use or not it will continue to be a part of his therapy.
Have a happy and healthy New Year!
Caren
If you go to Google and enter in "Journal of Cystic Fibrosis" the search engine will lead you to "ScienceDirect" at the top of the page. Once you click on the Science Direct listing, it will take you to the Journal of Cystic Fibrosis.
Look for the titled article: Improved glutathione status in young adult patients with cystic fibrosis supplemented with whey protein. Volume 2, Issue 4, December 2003, Pages 195-198.
Diane, you seem to be very informed with regards to glutathione. You talk about all of these message boards, chat rooms, but can you give me ONE, SCIENTIFIC PUBLISHED ARTICLE SHOWING THAT GLUTATHIONE PILLS WORK...
Look for the titled article: Improved glutathione status in young adult patients with cystic fibrosis supplemented with whey protein. Volume 2, Issue 4, December 2003, Pages 195-198.
Diane, you seem to be very informed with regards to glutathione. You talk about all of these message boards, chat rooms, but can you give me ONE, SCIENTIFIC PUBLISHED ARTICLE SHOWING THAT GLUTATHIONE PILLS WORK...
Joblazer86
New member
I was using gsh in the summer for about 3 months and thought that it was not doing anything so stopped. Then I noticed that I had less energy and it was harder to fight infections off. So started it again in Nov. and have felt a little better but I have not had significant improvements like people have had on the gsh message board. If you use it when your young it looks like it is more beneficial. I will keep using the gsh until I am put on the list for a lung transplant
Caren,
How THRILLED i am to hear your son is benefitting from gsh!!!!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
and to whoever wrote this.................................................................
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"Diane, you seem to be very informed with regards to glutathione. You talk about all of these message boards, chat rooms, but can you give me ONE, SCIENTIFIC PUBLISHED ARTICLE SHOWING THAT GLUTATHIONE PILLS WORK... "
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No ,i cant give you a published article, because since it isnt approved for cf use it wouldnt be published yet.
Who needs a published article anyway? if it works, it works. Just seeing it in a published article doesnt mean anything. There are published articles about a lot of things, but that doesnt mean they work. There are also non published articles about things and that doesnt mean they dont work. If you try it and it works, then thats all the proof you need isnt it?
~Diane 39 / cf / diabetes / b.cepacia
How THRILLED i am to hear your son is benefitting from gsh!!!!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
and to whoever wrote this.................................................................
------------------------------------------------------------------------------------------------------------------------------------------
"Diane, you seem to be very informed with regards to glutathione. You talk about all of these message boards, chat rooms, but can you give me ONE, SCIENTIFIC PUBLISHED ARTICLE SHOWING THAT GLUTATHIONE PILLS WORK... "
------------------------------------------------------------------------------------------------------------------------------------------
No ,i cant give you a published article, because since it isnt approved for cf use it wouldnt be published yet.
Who needs a published article anyway? if it works, it works. Just seeing it in a published article doesnt mean anything. There are published articles about a lot of things, but that doesnt mean they work. There are also non published articles about things and that doesnt mean they dont work. If you try it and it works, then thats all the proof you need isnt it?
~Diane 39 / cf / diabetes / b.cepacia
Joblazer86
New member
My hospital has not said anything and I had told them that I am using it.