Going back to CF Clinic

Tcole

New member
Last week i called the CF Clinic about Graycie coughing and having a snotty nose. They said to go to her ped just to have them listening to her. We went last friday and found she never got rid of the ear infection that she had a month ago. Lungs seemed fine. Breathing a little fast but was 96% level. Got sent home with another antibiotic, Omnicef. Today she's worse. Coughed all nite long. She can't breathe. Chokes when she eats cuz she can't breathe. Then she gags trying to swollow because so much mucus. I am so frusterated. Then on top of everything one daughter threw up in middle of nite and i was up cleaning her up and bedding. We have been so sick this winter. I am checking my other kids why they been sick. But thats another story.
 

Tcole

New member
Last week i called the CF Clinic about Graycie coughing and having a snotty nose. They said to go to her ped just to have them listening to her. We went last friday and found she never got rid of the ear infection that she had a month ago. Lungs seemed fine. Breathing a little fast but was 96% level. Got sent home with another antibiotic, Omnicef. Today she's worse. Coughed all nite long. She can't breathe. Chokes when she eats cuz she can't breathe. Then she gags trying to swollow because so much mucus. I am so frusterated. Then on top of everything one daughter threw up in middle of nite and i was up cleaning her up and bedding. We have been so sick this winter. I am checking my other kids why they been sick. But thats another story.
 

Tcole

New member
Last week i called the CF Clinic about Graycie coughing and having a snotty nose. They said to go to her ped just to have them listening to her. We went last friday and found she never got rid of the ear infection that she had a month ago. Lungs seemed fine. Breathing a little fast but was 96% level. Got sent home with another antibiotic, Omnicef. Today she's worse. Coughed all nite long. She can't breathe. Chokes when she eats cuz she can't breathe. Then she gags trying to swollow because so much mucus. I am so frusterated. Then on top of everything one daughter threw up in middle of nite and i was up cleaning her up and bedding. We have been so sick this winter. I am checking my other kids why they been sick. But thats another story.
 

Tcole

New member
Last week i called the CF Clinic about Graycie coughing and having a snotty nose. They said to go to her ped just to have them listening to her. We went last friday and found she never got rid of the ear infection that she had a month ago. Lungs seemed fine. Breathing a little fast but was 96% level. Got sent home with another antibiotic, Omnicef. Today she's worse. Coughed all nite long. She can't breathe. Chokes when she eats cuz she can't breathe. Then she gags trying to swollow because so much mucus. I am so frusterated. Then on top of everything one daughter threw up in middle of nite and i was up cleaning her up and bedding. We have been so sick this winter. I am checking my other kids why they been sick. But thats another story.
 

Tcole

New member
Last week i called the CF Clinic about Graycie coughing and having a snotty nose. They said to go to her ped just to have them listening to her. We went last friday and found she never got rid of the ear infection that she had a month ago. Lungs seemed fine. Breathing a little fast but was 96% level. Got sent home with another antibiotic, Omnicef. Today she's worse. Coughed all nite long. She can't breathe. Chokes when she eats cuz she can't breathe. Then she gags trying to swollow because so much mucus. I am so frusterated. Then on top of everything one daughter threw up in middle of nite and i was up cleaning her up and bedding. We have been so sick this winter. I am checking my other kids why they been sick. But thats another story.
 

Ratatosk

Administrator
Staff member
Poor Grayson. Did the clinic ever do a culture and to see what abx might work best for her. I had a similar experience when DS was a baby -- I was forever holding him over sinks, floor drains, etc. 'cuz he would cough so hard he'd vomit. Took him to the regular clinic and was told his lungs were clear and that "they (cfers) cough, that's what they do"

Few weeks later still coughing, took him to the CF doctor and was told he had bronchitis. Did a culture and he was culturing an enterbactor bug that he probably picked up at the NICU. Grr!

IMO give the CF clinic a call and see if you can get her in. Sometimes regular peds doctors don't know what to listen or look for..

I hope she feels better soon and that the rest of your kids remain healthy.
 

Ratatosk

Administrator
Staff member
Poor Grayson. Did the clinic ever do a culture and to see what abx might work best for her. I had a similar experience when DS was a baby -- I was forever holding him over sinks, floor drains, etc. 'cuz he would cough so hard he'd vomit. Took him to the regular clinic and was told his lungs were clear and that "they (cfers) cough, that's what they do"

Few weeks later still coughing, took him to the CF doctor and was told he had bronchitis. Did a culture and he was culturing an enterbactor bug that he probably picked up at the NICU. Grr!

IMO give the CF clinic a call and see if you can get her in. Sometimes regular peds doctors don't know what to listen or look for..

I hope she feels better soon and that the rest of your kids remain healthy.
 

Ratatosk

Administrator
Staff member
Poor Grayson. Did the clinic ever do a culture and to see what abx might work best for her. I had a similar experience when DS was a baby -- I was forever holding him over sinks, floor drains, etc. 'cuz he would cough so hard he'd vomit. Took him to the regular clinic and was told his lungs were clear and that "they (cfers) cough, that's what they do"

Few weeks later still coughing, took him to the CF doctor and was told he had bronchitis. Did a culture and he was culturing an enterbactor bug that he probably picked up at the NICU. Grr!

IMO give the CF clinic a call and see if you can get her in. Sometimes regular peds doctors don't know what to listen or look for..

I hope she feels better soon and that the rest of your kids remain healthy.
 

Ratatosk

Administrator
Staff member
Poor Grayson. Did the clinic ever do a culture and to see what abx might work best for her. I had a similar experience when DS was a baby -- I was forever holding him over sinks, floor drains, etc. 'cuz he would cough so hard he'd vomit. Took him to the regular clinic and was told his lungs were clear and that "they (cfers) cough, that's what they do"

Few weeks later still coughing, took him to the CF doctor and was told he had bronchitis. Did a culture and he was culturing an enterbactor bug that he probably picked up at the NICU. Grr!

IMO give the CF clinic a call and see if you can get her in. Sometimes regular peds doctors don't know what to listen or look for..

I hope she feels better soon and that the rest of your kids remain healthy.
 

Ratatosk

Administrator
Staff member
Poor Grayson. Did the clinic ever do a culture and to see what abx might work best for her. I had a similar experience when DS was a baby -- I was forever holding him over sinks, floor drains, etc. 'cuz he would cough so hard he'd vomit. Took him to the regular clinic and was told his lungs were clear and that "they (cfers) cough, that's what they do"
<br />
<br />Few weeks later still coughing, took him to the CF doctor and was told he had bronchitis. Did a culture and he was culturing an enterbactor bug that he probably picked up at the NICU. Grr!
<br />
<br />IMO give the CF clinic a call and see if you can get her in. Sometimes regular peds doctors don't know what to listen or look for..
<br />
<br />I hope she feels better soon and that the rest of your kids remain healthy.
 

kmhbeauty

New member
poor baby, It breaks my heart when the young people suffer. Its horrible. I hope there will be a cure someday for us all
 

kmhbeauty

New member
poor baby, It breaks my heart when the young people suffer. Its horrible. I hope there will be a cure someday for us all
 

kmhbeauty

New member
poor baby, It breaks my heart when the young people suffer. Its horrible. I hope there will be a cure someday for us all
 

kmhbeauty

New member
poor baby, It breaks my heart when the young people suffer. Its horrible. I hope there will be a cure someday for us all
 

kmhbeauty

New member
poor baby, It breaks my heart when the young people suffer. Its horrible. I hope there will be a cure someday for us all
 
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