GOING CRAZY!! NEED HELP!!

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Zakarymom

New member
I have a 13 month old son named Zakary. He went in for his sweat test on Wed of this week. Today we hear back from the doctor that his test will need to be repeated due to the fact there was not enough sweat. He is supposed to have 79 something and only had like 49. I am not sure excactly what they mean but I know he didn't sweat enough. My question is does this having any meaning. I did request rather then doing another sweat test that we do genetic testing. Although I am not excactly sure what that intells. What I have gathered is a blood test or swab test, is this right? It just seems like this is ongoing and my husband and are just going crazy not knowing the "for sure" anwser. I knwo you all know excactly how that is. I just wanted some advice. I am just rather nervous about the results we heard today because she clearly stated that it was bad news and they also have talked to me about treatment therapy. I just WANT TO KNOW CF or no CF! Any help good or bad thoughts would be greatly appriciated!
Thanks Everyone!
 
Z

Zakarymom

New member
I have a 13 month old son named Zakary. He went in for his sweat test on Wed of this week. Today we hear back from the doctor that his test will need to be repeated due to the fact there was not enough sweat. He is supposed to have 79 something and only had like 49. I am not sure excactly what they mean but I know he didn't sweat enough. My question is does this having any meaning. I did request rather then doing another sweat test that we do genetic testing. Although I am not excactly sure what that intells. What I have gathered is a blood test or swab test, is this right? It just seems like this is ongoing and my husband and are just going crazy not knowing the "for sure" anwser. I knwo you all know excactly how that is. I just wanted some advice. I am just rather nervous about the results we heard today because she clearly stated that it was bad news and they also have talked to me about treatment therapy. I just WANT TO KNOW CF or no CF! Any help good or bad thoughts would be greatly appriciated!
Thanks Everyone!
 
Z

Zakarymom

New member
I have a 13 month old son named Zakary. He went in for his sweat test on Wed of this week. Today we hear back from the doctor that his test will need to be repeated due to the fact there was not enough sweat. He is supposed to have 79 something and only had like 49. I am not sure excactly what they mean but I know he didn't sweat enough. My question is does this having any meaning. I did request rather then doing another sweat test that we do genetic testing. Although I am not excactly sure what that intells. What I have gathered is a blood test or swab test, is this right? It just seems like this is ongoing and my husband and are just going crazy not knowing the "for sure" anwser. I knwo you all know excactly how that is. I just wanted some advice. I am just rather nervous about the results we heard today because she clearly stated that it was bad news and they also have talked to me about treatment therapy. I just WANT TO KNOW CF or no CF! Any help good or bad thoughts would be greatly appriciated!
Thanks Everyone!
 
C

cfboy

New member
ok umm best of luck to both of u but holly u cant just say he has cf, one ur only 9 and u dont know everything there is to know about him or his situation, also he might not there are many other things that could be wrong and just wait for the doctor to tell u.
 
C

cfboy

New member
ok umm best of luck to both of u but holly u cant just say he has cf, one ur only 9 and u dont know everything there is to know about him or his situation, also he might not there are many other things that could be wrong and just wait for the doctor to tell u.
 
C

cfboy

New member
ok umm best of luck to both of u but holly u cant just say he has cf, one ur only 9 and u dont know everything there is to know about him or his situation, also he might not there are many other things that could be wrong and just wait for the doctor to tell u.
 
B

beatCF

New member
you know what i have cf and i know what im saying ok!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
 
B

beatCF

New member
you know what i have cf and i know what im saying ok!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
 
B

beatCF

New member
you know what i have cf and i know what im saying ok!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
 
C

cfboy

New member
okay i have cf too im alot older than u and i still dont know everything about it, so for u to come out and just say he has it when u dont know anything about his situation is bullshit.
 
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cfboy

New member
okay i have cf too im alot older than u and i still dont know everything about it, so for u to come out and just say he has it when u dont know anything about his situation is bullshit.
 
C

cfboy

New member
okay i have cf too im alot older than u and i still dont know everything about it, so for u to come out and just say he has it when u dont know anything about his situation is bullshit.
 
D

dogsrule

New member
Ok you guys are acting like little kids here. This woman needs advice, if I were you I would wait til what the doc has to say. Just pray and be with your loved ones thats the best thing you can do <img src="i/expressions/face-icon-small-smile.gif" border="0">. I hope he doesn't have CF, keep us posted <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh Holly, I'm 18 and I'm still learning about CF. The best thing you can do is study about this disease as much as you can. My question is, why not have a blood test done? Thats how my parents found out. Best of luck to you and your family. <img src="i/expressions/face-icon-small-smile.gif" border="0">



Christina 18 w/cf
 
D

dogsrule

New member
Ok you guys are acting like little kids here. This woman needs advice, if I were you I would wait til what the doc has to say. Just pray and be with your loved ones thats the best thing you can do <img src="i/expressions/face-icon-small-smile.gif" border="0">. I hope he doesn't have CF, keep us posted <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh Holly, I'm 18 and I'm still learning about CF. The best thing you can do is study about this disease as much as you can. My question is, why not have a blood test done? Thats how my parents found out. Best of luck to you and your family. <img src="i/expressions/face-icon-small-smile.gif" border="0">



Christina 18 w/cf
 
D

dogsrule

New member
Ok you guys are acting like little kids here. This woman needs advice, if I were you I would wait til what the doc has to say. Just pray and be with your loved ones thats the best thing you can do <img src="i/expressions/face-icon-small-smile.gif" border="0">. I hope he doesn't have CF, keep us posted <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh Holly, I'm 18 and I'm still learning about CF. The best thing you can do is study about this disease as much as you can. My question is, why not have a blood test done? Thats how my parents found out. Best of luck to you and your family. <img src="i/expressions/face-icon-small-smile.gif" border="0">



Christina 18 w/cf
 
B

beatCF

New member
you know what maybe he does not have cf everyone has to take a sweat test fine maybe i don't know wha t i was saying!!!!!!!!!!!!!!!!!!!!!BYE!!!!!!!!!!!!!!!!!!
 
B

beatCF

New member
you know what maybe he does not have cf everyone has to take a sweat test fine maybe i don't know wha t i was saying!!!!!!!!!!!!!!!!!!!!!BYE!!!!!!!!!!!!!!!!!!
 
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