I am so angry at the medical world just now. We have fought this desease all these years not knowing. They would always tell Danny you drink to much ( when older), you do not follow my instructions. But thank the Lord a doctor in Georgia has him on the right track. But getting the boy on SSI is next to impossible. Do you know some ideas that would help. Just the cost of meds is killing us.
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Grandson just diagnosed at age 24
- Thread starter armeylias
- Start date
I am so angry at the medical world just now. We have fought this desease all these years not knowing. They would always tell Danny you drink to much ( when older), you do not follow my instructions. But thank the Lord a doctor in Georgia has him on the right track. But getting the boy on SSI is next to impossible. Do you know some ideas that would help. Just the cost of meds is killing us.
I am so angry at the medical world just now. We have fought this desease all these years not knowing. They would always tell Danny you drink to much ( when older), you do not follow my instructions. But thank the Lord a doctor in Georgia has him on the right track. But getting the boy on SSI is next to impossible. Do you know some ideas that would help. Just the cost of meds is killing us.
I'm sorry I can't answer your specific question but if you haven't already, post this on the Adult forum. Not everyone reads this one. I know you are relieved to get a diagnosis, finally, so that you can get the right treatmemt. Good luck.
Dana
Mom to Katy (3, cf) and Kyra 96, no cf)
Dana
Mom to Katy (3, cf) and Kyra 96, no cf)
I'm sorry I can't answer your specific question but if you haven't already, post this on the Adult forum. Not everyone reads this one. I know you are relieved to get a diagnosis, finally, so that you can get the right treatmemt. Good luck.
Dana
Mom to Katy (3, cf) and Kyra 96, no cf)
Dana
Mom to Katy (3, cf) and Kyra 96, no cf)
I'm sorry I can't answer your specific question but if you haven't already, post this on the Adult forum. Not everyone reads this one. I know you are relieved to get a diagnosis, finally, so that you can get the right treatmemt. Good luck.
Dana
Mom to Katy (3, cf) and Kyra 96, no cf)
Dana
Mom to Katy (3, cf) and Kyra 96, no cf)
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>armeylias</b></i>
I am so angry at the medical world just now. We have fought this desease all these years not knowing. They would always tell Danny you drink to much ( when older), you do not follow my instructions. But thank the Lord a doctor in Georgia has him on the right track. But getting the boy on SSI is next to impossible. Do you know some ideas that would help. Just the cost of meds is killing us.</end quote></div>
I would suggest contacting Beth Suffian. SHe is an attorney/advocate for CFers who has CF herself. She practices out of Texas, but helps people all over the USA.
Beth Sufian is a partner of the law firm Sufian & Passamano in Houston. She was diagnosed with CF at the age of 9 and has dedicated herself to helping those in need.
To learn more about Sufian and the Sufian & Passamano law firm visit www.sufianpassamano.com.
Their contact information is:
Sufian & Passamano, L.L.P.
811 Rusk Avenue, Suite 712
Houston, Texas 77002
Telephone: 713-224-1166
Facsimile: 713-224-1161
E-mail:
BethSufian@aol.com
JamesPassamano@aol.com
I am so angry at the medical world just now. We have fought this desease all these years not knowing. They would always tell Danny you drink to much ( when older), you do not follow my instructions. But thank the Lord a doctor in Georgia has him on the right track. But getting the boy on SSI is next to impossible. Do you know some ideas that would help. Just the cost of meds is killing us.</end quote></div>
I would suggest contacting Beth Suffian. SHe is an attorney/advocate for CFers who has CF herself. She practices out of Texas, but helps people all over the USA.
Beth Sufian is a partner of the law firm Sufian & Passamano in Houston. She was diagnosed with CF at the age of 9 and has dedicated herself to helping those in need.
To learn more about Sufian and the Sufian & Passamano law firm visit www.sufianpassamano.com.
Their contact information is:
Sufian & Passamano, L.L.P.
811 Rusk Avenue, Suite 712
Houston, Texas 77002
Telephone: 713-224-1166
Facsimile: 713-224-1161
E-mail:
BethSufian@aol.com
JamesPassamano@aol.com
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>armeylias</b></i>
I am so angry at the medical world just now. We have fought this desease all these years not knowing. They would always tell Danny you drink to much ( when older), you do not follow my instructions. But thank the Lord a doctor in Georgia has him on the right track. But getting the boy on SSI is next to impossible. Do you know some ideas that would help. Just the cost of meds is killing us.</end quote></div>
I would suggest contacting Beth Suffian. SHe is an attorney/advocate for CFers who has CF herself. She practices out of Texas, but helps people all over the USA.
Beth Sufian is a partner of the law firm Sufian & Passamano in Houston. She was diagnosed with CF at the age of 9 and has dedicated herself to helping those in need.
To learn more about Sufian and the Sufian & Passamano law firm visit www.sufianpassamano.com.
Their contact information is:
Sufian & Passamano, L.L.P.
811 Rusk Avenue, Suite 712
Houston, Texas 77002
Telephone: 713-224-1166
Facsimile: 713-224-1161
E-mail:
BethSufian@aol.com
JamesPassamano@aol.com
I am so angry at the medical world just now. We have fought this desease all these years not knowing. They would always tell Danny you drink to much ( when older), you do not follow my instructions. But thank the Lord a doctor in Georgia has him on the right track. But getting the boy on SSI is next to impossible. Do you know some ideas that would help. Just the cost of meds is killing us.</end quote></div>
I would suggest contacting Beth Suffian. SHe is an attorney/advocate for CFers who has CF herself. She practices out of Texas, but helps people all over the USA.
Beth Sufian is a partner of the law firm Sufian & Passamano in Houston. She was diagnosed with CF at the age of 9 and has dedicated herself to helping those in need.
To learn more about Sufian and the Sufian & Passamano law firm visit www.sufianpassamano.com.
Their contact information is:
Sufian & Passamano, L.L.P.
811 Rusk Avenue, Suite 712
Houston, Texas 77002
Telephone: 713-224-1166
Facsimile: 713-224-1161
E-mail:
BethSufian@aol.com
JamesPassamano@aol.com
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>armeylias</b></i>
I am so angry at the medical world just now. We have fought this desease all these years not knowing. They would always tell Danny you drink to much ( when older), you do not follow my instructions. But thank the Lord a doctor in Georgia has him on the right track. But getting the boy on SSI is next to impossible. Do you know some ideas that would help. Just the cost of meds is killing us.</end quote></div>
I would suggest contacting Beth Suffian. SHe is an attorney/advocate for CFers who has CF herself. She practices out of Texas, but helps people all over the USA.
Beth Sufian is a partner of the law firm Sufian & Passamano in Houston. She was diagnosed with CF at the age of 9 and has dedicated herself to helping those in need.
To learn more about Sufian and the Sufian & Passamano law firm visit www.sufianpassamano.com.
Their contact information is:
Sufian & Passamano, L.L.P.
811 Rusk Avenue, Suite 712
Houston, Texas 77002
Telephone: 713-224-1166
Facsimile: 713-224-1161
E-mail:
BethSufian@aol.com
JamesPassamano@aol.com
I am so angry at the medical world just now. We have fought this desease all these years not knowing. They would always tell Danny you drink to much ( when older), you do not follow my instructions. But thank the Lord a doctor in Georgia has him on the right track. But getting the boy on SSI is next to impossible. Do you know some ideas that would help. Just the cost of meds is killing us.</end quote></div>
I would suggest contacting Beth Suffian. SHe is an attorney/advocate for CFers who has CF herself. She practices out of Texas, but helps people all over the USA.
Beth Sufian is a partner of the law firm Sufian & Passamano in Houston. She was diagnosed with CF at the age of 9 and has dedicated herself to helping those in need.
To learn more about Sufian and the Sufian & Passamano law firm visit www.sufianpassamano.com.
Their contact information is:
Sufian & Passamano, L.L.P.
811 Rusk Avenue, Suite 712
Houston, Texas 77002
Telephone: 713-224-1166
Facsimile: 713-224-1161
E-mail:
BethSufian@aol.com
JamesPassamano@aol.com