Grayson's going back to hospital

NanaOf8GirlsAndCounting · Apr 7, 2009

Well, back today again to the hospital for Grayson, she was in less then 2 weeks ago and had IV ABX and was allowed to come home and was on TOBI and Cipro and she has gotten worse. My daughter called me this morning just crying her eyes out. She is under so much stress it is concerning me. Grayson's weight is back on yellow which means she has dropped down under the 50% range but she is doing alot better eating now. Just coughing alot and blowing out of her diapers. What can I do to help Tiffany? Should she see a doctor? Maybe they need to put her on something? I just don't know anymore and no one can understand unless they have taken care of Grayson for any length of time. It is a full time job. She does a great job with her but I am more worried that Tiffany is overwhelmed at times. She has been through so much since Grayson birth. Alot of time spent at the hospital and away from the twins, broken hand and girls getting sick. What do you do to relieve the stress of the whole situation?

NanaOf8GirlsAndCounting · Apr 7, 2009

Well, back today again to the hospital for Grayson, she was in less then 2 weeks ago and had IV ABX and was allowed to come home and was on TOBI and Cipro and she has gotten worse. My daughter called me this morning just crying her eyes out. She is under so much stress it is concerning me. Grayson's weight is back on yellow which means she has dropped down under the 50% range but she is doing alot better eating now. Just coughing alot and blowing out of her diapers. What can I do to help Tiffany? Should she see a doctor? Maybe they need to put her on something? I just don't know anymore and no one can understand unless they have taken care of Grayson for any length of time. It is a full time job. She does a great job with her but I am more worried that Tiffany is overwhelmed at times. She has been through so much since Grayson birth. Alot of time spent at the hospital and away from the twins, broken hand and girls getting sick. What do you do to relieve the stress of the whole situation?

NanaOf8GirlsAndCounting · Apr 7, 2009

Well, back today again to the hospital for Grayson, she was in less then 2 weeks ago and had IV ABX and was allowed to come home and was on TOBI and Cipro and she has gotten worse. My daughter called me this morning just crying her eyes out. She is under so much stress it is concerning me. Grayson's weight is back on yellow which means she has dropped down under the 50% range but she is doing alot better eating now. Just coughing alot and blowing out of her diapers. What can I do to help Tiffany? Should she see a doctor? Maybe they need to put her on something? I just don't know anymore and no one can understand unless they have taken care of Grayson for any length of time. It is a full time job. She does a great job with her but I am more worried that Tiffany is overwhelmed at times. She has been through so much since Grayson birth. Alot of time spent at the hospital and away from the twins, broken hand and girls getting sick. What do you do to relieve the stress of the whole situation?

NanaOf8GirlsAndCounting · Apr 7, 2009

Well, back today again to the hospital for Grayson, she was in less then 2 weeks ago and had IV ABX and was allowed to come home and was on TOBI and Cipro and she has gotten worse. My daughter called me this morning just crying her eyes out. She is under so much stress it is concerning me. Grayson's weight is back on yellow which means she has dropped down under the 50% range but she is doing alot better eating now. Just coughing alot and blowing out of her diapers. What can I do to help Tiffany? Should she see a doctor? Maybe they need to put her on something? I just don't know anymore and no one can understand unless they have taken care of Grayson for any length of time. It is a full time job. She does a great job with her but I am more worried that Tiffany is overwhelmed at times. She has been through so much since Grayson birth. Alot of time spent at the hospital and away from the twins, broken hand and girls getting sick. What do you do to relieve the stress of the whole situation?

NanaOf8GirlsAndCounting · Apr 7, 2009

Well, back today again to the hospital for Grayson, she was in less then 2 weeks ago and had IV ABX and was allowed to come home and was on TOBI and Cipro and she has gotten worse. My daughter called me this morning just crying her eyes out. She is under so much stress it is concerning me. Grayson's weight is back on yellow which means she has dropped down under the 50% range but she is doing alot better eating now. Just coughing alot and blowing out of her diapers. What can I do to help Tiffany? Should she see a doctor? Maybe they need to put her on something? I just don't know anymore and no one can understand unless they have taken care of Grayson for any length of time. It is a full time job. She does a great job with her but I am more worried that Tiffany is overwhelmed at times. She has been through so much since Grayson birth. Alot of time spent at the hospital and away from the twins, broken hand and girls getting sick. What do you do to relieve the stress of the whole situation?

folione · Apr 7, 2009

I think everybody has to find the coping mechanisms that work for them: my wife and I are very different in a lot of the things we do to get through when our boy w/CF is sick. I tend to do best when I focus exclusively on the exact moment I'm in and thing I am doing at that second and not let my mind wander off it...it is an approach I picked up ages ago while in college from one of those groovy 60's books called "Remember, be here now" by Ramm Dass. (I guess I'm dating my self, eh?). My nature is to be a planner and try to nail down every eventuality - but the presence of CF in my life calls for a different personality to take over sometimes.

folione · Apr 7, 2009

I think everybody has to find the coping mechanisms that work for them: my wife and I are very different in a lot of the things we do to get through when our boy w/CF is sick. I tend to do best when I focus exclusively on the exact moment I'm in and thing I am doing at that second and not let my mind wander off it...it is an approach I picked up ages ago while in college from one of those groovy 60's books called "Remember, be here now" by Ramm Dass. (I guess I'm dating my self, eh?). My nature is to be a planner and try to nail down every eventuality - but the presence of CF in my life calls for a different personality to take over sometimes.

folione · Apr 7, 2009

I think everybody has to find the coping mechanisms that work for them: my wife and I are very different in a lot of the things we do to get through when our boy w/CF is sick. I tend to do best when I focus exclusively on the exact moment I'm in and thing I am doing at that second and not let my mind wander off it...it is an approach I picked up ages ago while in college from one of those groovy 60's books called "Remember, be here now" by Ramm Dass. (I guess I'm dating my self, eh?). My nature is to be a planner and try to nail down every eventuality - but the presence of CF in my life calls for a different personality to take over sometimes.

folione · Apr 7, 2009

I think everybody has to find the coping mechanisms that work for them: my wife and I are very different in a lot of the things we do to get through when our boy w/CF is sick. I tend to do best when I focus exclusively on the exact moment I'm in and thing I am doing at that second and not let my mind wander off it...it is an approach I picked up ages ago while in college from one of those groovy 60's books called "Remember, be here now" by Ramm Dass. (I guess I'm dating my self, eh?). My nature is to be a planner and try to nail down every eventuality - but the presence of CF in my life calls for a different personality to take over sometimes.

folione · Apr 7, 2009

I think everybody has to find the coping mechanisms that work for them: my wife and I are very different in a lot of the things we do to get through when our boy w/CF is sick. I tend to do best when I focus exclusively on the exact moment I'm in and thing I am doing at that second and not let my mind wander off it...it is an approach I picked up ages ago while in college from one of those groovy 60's books called "Remember, be here now" by Ramm Dass. (I guess I'm dating my self, eh?). My nature is to be a planner and try to nail down every eventuality - but the presence of CF in my life calls for a different personality to take over sometimes.

Rebjane · Apr 7, 2009

I have found exersize to be my way to relieve stress..When Maggie was in the hospital and there was no way i could leave the room; a stress reliever for me would be to read what I call brain candy books; Jodi Picoult or just some trashy novels...It's an escape without leaving the bedside; I would do it before Maggie would wake up at the hospital because I barely slept. I felt ALOT of guilt about missing out with my child without CF...My mother-in-law and father-in-law took my son to the museum or out for an ice cream. My sister helped out taking my son out with his cousin and he slept over their house when we couldn't come home. Making meals and helping out with laundry will relieve her load..My sister even gave my a little toiletry bag with toothpast and toothbrush shower gel, stuff to pull back my hair. I think she knew I wouldn't have even brushed my teeth if someone didn't tell me too. I'm sorry Things are so overwhelming right now. Sounds like your daughter has a fabulous mom.

Rebjane · Apr 7, 2009

I have found exersize to be my way to relieve stress..When Maggie was in the hospital and there was no way i could leave the room; a stress reliever for me would be to read what I call brain candy books; Jodi Picoult or just some trashy novels...It's an escape without leaving the bedside; I would do it before Maggie would wake up at the hospital because I barely slept. I felt ALOT of guilt about missing out with my child without CF...My mother-in-law and father-in-law took my son to the museum or out for an ice cream. My sister helped out taking my son out with his cousin and he slept over their house when we couldn't come home. Making meals and helping out with laundry will relieve her load..My sister even gave my a little toiletry bag with toothpast and toothbrush shower gel, stuff to pull back my hair. I think she knew I wouldn't have even brushed my teeth if someone didn't tell me too. I'm sorry Things are so overwhelming right now. Sounds like your daughter has a fabulous mom.

Rebjane · Apr 7, 2009

I have found exersize to be my way to relieve stress..When Maggie was in the hospital and there was no way i could leave the room; a stress reliever for me would be to read what I call brain candy books; Jodi Picoult or just some trashy novels...It's an escape without leaving the bedside; I would do it before Maggie would wake up at the hospital because I barely slept. I felt ALOT of guilt about missing out with my child without CF...My mother-in-law and father-in-law took my son to the museum or out for an ice cream. My sister helped out taking my son out with his cousin and he slept over their house when we couldn't come home. Making meals and helping out with laundry will relieve her load..My sister even gave my a little toiletry bag with toothpast and toothbrush shower gel, stuff to pull back my hair. I think she knew I wouldn't have even brushed my teeth if someone didn't tell me too. I'm sorry Things are so overwhelming right now. Sounds like your daughter has a fabulous mom.

Rebjane · Apr 7, 2009

I have found exersize to be my way to relieve stress..When Maggie was in the hospital and there was no way i could leave the room; a stress reliever for me would be to read what I call brain candy books; Jodi Picoult or just some trashy novels...It's an escape without leaving the bedside; I would do it before Maggie would wake up at the hospital because I barely slept. I felt ALOT of guilt about missing out with my child without CF...My mother-in-law and father-in-law took my son to the museum or out for an ice cream. My sister helped out taking my son out with his cousin and he slept over their house when we couldn't come home. Making meals and helping out with laundry will relieve her load..My sister even gave my a little toiletry bag with toothpast and toothbrush shower gel, stuff to pull back my hair. I think she knew I wouldn't have even brushed my teeth if someone didn't tell me too. I'm sorry Things are so overwhelming right now. Sounds like your daughter has a fabulous mom.

Rebjane · Apr 7, 2009

I have found exersize to be my way to relieve stress..When Maggie was in the hospital and there was no way i could leave the room; a stress reliever for me would be to read what I call brain candy books; Jodi Picoult or just some trashy novels...It's an escape without leaving the bedside; I would do it before Maggie would wake up at the hospital because I barely slept. I felt ALOT of guilt about missing out with my child without CF...My mother-in-law and father-in-law took my son to the museum or out for an ice cream. My sister helped out taking my son out with his cousin and he slept over their house when we couldn't come home. Making meals and helping out with laundry will relieve her load..My sister even gave my a little toiletry bag with toothpast and toothbrush shower gel, stuff to pull back my hair. I think she knew I wouldn't have even brushed my teeth if someone didn't tell me too. I'm sorry Things are so overwhelming right now. Sounds like your daughter has a fabulous mom.

JORDYSMOM · Apr 7, 2009

I'm so sorry to hear that Grayson is back in. I know this is very hard on everyone.

I'm sure that Tiffany doesn't want to leave Graysons side for a minute, but if she could just take a day to go do something fun with the twins, it might help. Everyone needs a break.

A mild antidepressant may be of some help too. When Jordan was tiny, I spoke to my family doctor, because I was so stressed out, and not sleeping because he wasn't sleeping, because he couldn't breathe or was throwing up. I didn't even have a CF dx then, but I had the CF problems. My doctor explained that the medicine couldn't make the stress go away, but that it would make it easier for my brain to handle it all. It really did help me.

I'll be praying for your family Cheryl.

Stacey

JORDYSMOM · Apr 7, 2009

I'm so sorry to hear that Grayson is back in. I know this is very hard on everyone.

I'm sure that Tiffany doesn't want to leave Graysons side for a minute, but if she could just take a day to go do something fun with the twins, it might help. Everyone needs a break.

A mild antidepressant may be of some help too. When Jordan was tiny, I spoke to my family doctor, because I was so stressed out, and not sleeping because he wasn't sleeping, because he couldn't breathe or was throwing up. I didn't even have a CF dx then, but I had the CF problems. My doctor explained that the medicine couldn't make the stress go away, but that it would make it easier for my brain to handle it all. It really did help me.

I'll be praying for your family Cheryl.

Stacey

JORDYSMOM · Apr 7, 2009

I'm so sorry to hear that Grayson is back in. I know this is very hard on everyone.

I'm sure that Tiffany doesn't want to leave Graysons side for a minute, but if she could just take a day to go do something fun with the twins, it might help. Everyone needs a break.

A mild antidepressant may be of some help too. When Jordan was tiny, I spoke to my family doctor, because I was so stressed out, and not sleeping because he wasn't sleeping, because he couldn't breathe or was throwing up. I didn't even have a CF dx then, but I had the CF problems. My doctor explained that the medicine couldn't make the stress go away, but that it would make it easier for my brain to handle it all. It really did help me.

I'll be praying for your family Cheryl.

Stacey

JORDYSMOM · Apr 7, 2009

I'm so sorry to hear that Grayson is back in. I know this is very hard on everyone.

I'm sure that Tiffany doesn't want to leave Graysons side for a minute, but if she could just take a day to go do something fun with the twins, it might help. Everyone needs a break.

A mild antidepressant may be of some help too. When Jordan was tiny, I spoke to my family doctor, because I was so stressed out, and not sleeping because he wasn't sleeping, because he couldn't breathe or was throwing up. I didn't even have a CF dx then, but I had the CF problems. My doctor explained that the medicine couldn't make the stress go away, but that it would make it easier for my brain to handle it all. It really did help me.

I'll be praying for your family Cheryl.

Stacey

JORDYSMOM · Apr 7, 2009

I'm so sorry to hear that Grayson is back in. I know this is very hard on everyone.
 
 I'm sure that Tiffany doesn't want to leave Graysons side for a minute, but if she could just take a day to go do something fun with the twins, it might help. Everyone needs a break.
 
 A mild antidepressant may be of some help too. When Jordan was tiny, I spoke to my family doctor, because I was so stressed out, and not sleeping because he wasn't sleeping, because he couldn't breathe or was throwing up. I didn't even have a CF dx then, but I had the CF problems. My doctor explained that the medicine couldn't make the stress go away, but that it would make it easier for my brain to handle it all. It really did help me.
 
 I'll be praying for your family Cheryl.
 
 Stacey

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