Great Strides Letter

rosesixtyfive

New member
Dear Friends and Family:

We need money to support cystic fibrosis research. We are asking everyone who loves Samuel to give us $10 or more for the Great Strides Walk coming up September 26, at Steele Creek Park at 1:00 p.m. We're not going to be shy about asking. As Sam's mommy, I'm planning to ask everyone who knows us and cares about what happens to this amazing little boy to give as much as possible.

I'm not a very bold person. I don't speak up sometimes when I should, but for this one thing, I am going to speak up for my child. When Brad and I were first told our son had cystic fibrosis, I had no idea what it meant. That first night, we had to leave our newborn baby with dozens of cords running medicines in and out of him. I remember when he first came off of pain medicine after his surgery, and I didn't know if he would make it through the night. My mother and I held hands in the darkness of his hospital room, praying. But Samuel's life is not about pain. It is about love and light. It is about watching him thrive.

I have this amazing dream. In it, Samuel is a grown man and I cry with joy every time I am near him. I don't just cry with joy when I look at him, I jump up and down and wrap my arms around him. It's because I know I'm not promised anything. 30 years ago, children with cystic fibrosis usually didn't live to go to grade school. Now, just look at them. It's all thanks to a few determined parents who wanted life and breathe and hope for their children. I am equally determined to make things as right as possible for my child.

Since Sam's birth, I have learned more about God's love, how deep it truly is. I thought God loved me less because he gave me a child who might be sick, but now I know he loves me more. To show God just how grateful I am, I am going to walk and raise funds for my child. It's an act of love, just like everything that Brad and I do now that we live with cystic fibrosis. Everything is an act of love, desperation, and resolve.

Thank you for your help. We love you all and are so glad we have you to cheer for Samuel every year of his life on earth.

God Bless,
Sam's Family
 

rosesixtyfive

New member
Dear Friends and Family:

We need money to support cystic fibrosis research. We are asking everyone who loves Samuel to give us $10 or more for the Great Strides Walk coming up September 26, at Steele Creek Park at 1:00 p.m. We're not going to be shy about asking. As Sam's mommy, I'm planning to ask everyone who knows us and cares about what happens to this amazing little boy to give as much as possible.

I'm not a very bold person. I don't speak up sometimes when I should, but for this one thing, I am going to speak up for my child. When Brad and I were first told our son had cystic fibrosis, I had no idea what it meant. That first night, we had to leave our newborn baby with dozens of cords running medicines in and out of him. I remember when he first came off of pain medicine after his surgery, and I didn't know if he would make it through the night. My mother and I held hands in the darkness of his hospital room, praying. But Samuel's life is not about pain. It is about love and light. It is about watching him thrive.

I have this amazing dream. In it, Samuel is a grown man and I cry with joy every time I am near him. I don't just cry with joy when I look at him, I jump up and down and wrap my arms around him. It's because I know I'm not promised anything. 30 years ago, children with cystic fibrosis usually didn't live to go to grade school. Now, just look at them. It's all thanks to a few determined parents who wanted life and breathe and hope for their children. I am equally determined to make things as right as possible for my child.

Since Sam's birth, I have learned more about God's love, how deep it truly is. I thought God loved me less because he gave me a child who might be sick, but now I know he loves me more. To show God just how grateful I am, I am going to walk and raise funds for my child. It's an act of love, just like everything that Brad and I do now that we live with cystic fibrosis. Everything is an act of love, desperation, and resolve.

Thank you for your help. We love you all and are so glad we have you to cheer for Samuel every year of his life on earth.

God Bless,
Sam's Family
 

rosesixtyfive

New member
<br />Dear Friends and Family:
<br />
<br />We need money to support cystic fibrosis research. We are asking everyone who loves Samuel to give us $10 or more for the Great Strides Walk coming up September 26, at Steele Creek Park at 1:00 p.m. We're not going to be shy about asking. As Sam's mommy, I'm planning to ask everyone who knows us and cares about what happens to this amazing little boy to give as much as possible.
<br />
<br />I'm not a very bold person. I don't speak up sometimes when I should, but for this one thing, I am going to speak up for my child. When Brad and I were first told our son had cystic fibrosis, I had no idea what it meant. That first night, we had to leave our newborn baby with dozens of cords running medicines in and out of him. I remember when he first came off of pain medicine after his surgery, and I didn't know if he would make it through the night. My mother and I held hands in the darkness of his hospital room, praying. But Samuel's life is not about pain. It is about love and light. It is about watching him thrive.
<br />
<br />I have this amazing dream. In it, Samuel is a grown man and I cry with joy every time I am near him. I don't just cry with joy when I look at him, I jump up and down and wrap my arms around him. It's because I know I'm not promised anything. 30 years ago, children with cystic fibrosis usually didn't live to go to grade school. Now, just look at them. It's all thanks to a few determined parents who wanted life and breathe and hope for their children. I am equally determined to make things as right as possible for my child.
<br />
<br />Since Sam's birth, I have learned more about God's love, how deep it truly is. I thought God loved me less because he gave me a child who might be sick, but now I know he loves me more. To show God just how grateful I am, I am going to walk and raise funds for my child. It's an act of love, just like everything that Brad and I do now that we live with cystic fibrosis. Everything is an act of love, desperation, and resolve.
<br />
<br />Thank you for your help. We love you all and are so glad we have you to cheer for Samuel every year of his life on earth.
<br />
<br />God Bless,
<br />Sam's Family
 

LouLou

New member
Great letter!
It's very heartfelt and compassionate.

My only suggestion is to maybe add one fact/statistic to it to help give numbers to the more numerical readers you may be sending it to.

You could add the number of drugs in the pipeline after this sentance in your letter...
<i>It's all thanks to a few determined parents who wanted life and breathe and hope for their children. I am equally determined to make things as right as possible for my child.</i>


or the number of hours of treatment (include nebs, pills, extra snacks, tube feeding, etc.) Sam does each day at the point when you talk about watching him thrive (ie. depite doing x, y and z.

Hope this helps!

And thanks for fund raising!!
 

LouLou

New member
Great letter!
It's very heartfelt and compassionate.

My only suggestion is to maybe add one fact/statistic to it to help give numbers to the more numerical readers you may be sending it to.

You could add the number of drugs in the pipeline after this sentance in your letter...
<i>It's all thanks to a few determined parents who wanted life and breathe and hope for their children. I am equally determined to make things as right as possible for my child.</i>


or the number of hours of treatment (include nebs, pills, extra snacks, tube feeding, etc.) Sam does each day at the point when you talk about watching him thrive (ie. depite doing x, y and z.

Hope this helps!

And thanks for fund raising!!
 

LouLou

New member
Great letter!
<br />It's very heartfelt and compassionate.
<br />
<br />My only suggestion is to maybe add one fact/statistic to it to help give numbers to the more numerical readers you may be sending it to.
<br />
<br />You could add the number of drugs in the pipeline after this sentance in your letter...
<br /><i>It's all thanks to a few determined parents who wanted life and breathe and hope for their children. I am equally determined to make things as right as possible for my child.</i>
<br />
<br />
<br />or the number of hours of treatment (include nebs, pills, extra snacks, tube feeding, etc.) Sam does each day at the point when you talk about watching him thrive (ie. depite doing x, y and z.
<br />
<br />Hope this helps!
<br />
<br />And thanks for fund raising!!
 
M

Mommafirst

Guest
I think its great. I like Lauren's suggestions too. I think you spoke from your heart and it would be very difficult for someone who loves you and your son to deny a very direct, heartfelt, and easy request as you are making here.

You might want to mention that the CFF dedicates 90 cents from each dollar right back into research for medicines, treatments and a cure. They are a very responsible non-profit with the money we entrust them with. And almost all the recent breakthroughs in CF have come as a direct result of the input of the CFF.

Also when you say "now just look at them" you are assuming that all your recipients know the current median survival age and how much hope there is. You should place a year in there to express that.

Great job! keep up the hard work!
 
M

Mommafirst

Guest
I think its great. I like Lauren's suggestions too. I think you spoke from your heart and it would be very difficult for someone who loves you and your son to deny a very direct, heartfelt, and easy request as you are making here.

You might want to mention that the CFF dedicates 90 cents from each dollar right back into research for medicines, treatments and a cure. They are a very responsible non-profit with the money we entrust them with. And almost all the recent breakthroughs in CF have come as a direct result of the input of the CFF.

Also when you say "now just look at them" you are assuming that all your recipients know the current median survival age and how much hope there is. You should place a year in there to express that.

Great job! keep up the hard work!
 
M

Mommafirst

Guest
I think its great. I like Lauren's suggestions too. I think you spoke from your heart and it would be very difficult for someone who loves you and your son to deny a very direct, heartfelt, and easy request as you are making here.
<br />
<br />You might want to mention that the CFF dedicates 90 cents from each dollar right back into research for medicines, treatments and a cure. They are a very responsible non-profit with the money we entrust them with. And almost all the recent breakthroughs in CF have come as a direct result of the input of the CFF.
<br />
<br />Also when you say "now just look at them" you are assuming that all your recipients know the current median survival age and how much hope there is. You should place a year in there to express that.
<br />
<br />Great job! keep up the hard work!
 
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