Great Strides-take kids wcf or not?

anonymous

New member
Hi, I am just curious what those who have kids w CF and participate in Great Strides do - take the kids or not? I forgot to ask my daughters CF doctor at clinic last week so I will email them to see what they say but I would like to know what other people do too...

My daughter is not quite 2 years old and we have a big group of people who can keep an eye on her to make sure she stays away from strangers (in case they also have CF)...but it still makes me nervous.

Thanks for any input!
 

anonymous

New member
I asked our pulm about this the first year we participated in our great strides walk. She said to use common sense and have fun. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I was glad we took our son - he was the star of our "team" and had lots of fun. I'm a bit neurotic so I carried plenty of hand gel with me and kept a good eye on him (he was so young at the time). One year, we didn't take him because he had a nasty cough and I was wanting to protect other cf kids that I knew WOULD be at the walk. I'd take your clinic's advice, but if they give you the thumbs up, just go and have fun!

Carey
 

anonymous

New member
We have always taken our children on the walk, they have a great time and i think it really gets all of us more involved and Kait loves it when her friends and family members walk with her.

Kaitsmom<img src="i/expressions/rose.gif" border="0">
 

thefrogprincess

New member
There are lots of kids at the walk I go to (Seattle). Just don't take her if she is sick, and understand that there is a chance that she could catch something. Find out how long the walk is and think of taking a stroller, she could get tired if its too long (the Seattle walk is about 4 miles and takes about 1 1/2 hours because of lots of hills).
 

anonymous

New member
Sorry i am off the subject a bit but never been to a Great Strides walk here in Oz. (i will enquire to whether we have them, if not, give me some info and we can start)
What happens for them to be so much fun for kids and families. How long are they? What do you mean your child was the star of your team? Who are they organised by? I really would appreciate information.
Thanks in anticipation. Our cf pulm has said that to be outside in the open air with others with cf is fine and to use common sense.
T
 

anonymous

New member
We take both of our children to the walk. They just hang around our friends and family. Most of the time they are no where near other families, so I don't see it as a problem, especially since we are outside. I have a lot more problems taking them to clinic.
Sharon, mom to Sophia, 3.5 and Jack, 1.5 both with cf
 

anonymous

New member
Great Strides is sponsored by The Cystic Fibrosis Foundation. Ours in Houston lasts a few hours (sign-up, walk, party afterwards). Here is a link to find more info.
<a target=new class=ftalternatingbarlinklarge href="http://www.cff.org/great_strides/
">http://www.cff.org/great_strides/
</a>
Sharon
 

rose4cale

New member
We take our kids too. Last year was our first year and Cale had a great time. I think the majority of CFers and their families are aware of the concerns in exposing each other so they are just as cautious as us. I do have to mention that there was a fundraising 'ball' around here a couple of weeks ago. They held it at a place that smokes--and questioned why we were asking if there were going to be a lot of CFers there. So maybe all people aren't quite as aware as I would like to think.
 

anonymous

New member
Hi T, our walk is held at a minor league baseball field...Fazolis & Dairy Queen provide free food for the walkers, each walker gets a ticket to the evening baseball game, the team mascot will be there, music is played over the speakers, etc so it will be all kinds of family fun. We have organized a team in my daughters honor (Team Sydney bc Sydney is her name) so I suppose she will also be "the star" of our team in a sense bc all of our walkers (30+ people) are walking to support her (and our family and the thousands of others wcf too). Hopefully there is a walk in your area (our nearest walk is 40 minutes away, but we are still making a big deal of it!) so you can participate in this important event!!

Hope that helps!
Kelli (mom of Sydney 22 months wcf)
<a target=new class=ftalternatingbarlinklarge href="http://sydneymyers-ivil.tripod.com/">http://sydneymyers-ivil.tripod.com/</a>
 

kybert

New member
T, australia does have great strides. its held in autumn or spring and its fine for cf patients to go.

what happens? well there is enterntainment for the kiddies, sausage sizzles, raffles etc.
how long is it? the one in perth is held in autumn and its 3.5 km long i think. im a slow walker and it takes me about an hour to finish. im not sure if all states have them and how long they are but they wouldnt be over 5 km.
whats a team? you can register as a team instead of individually. so you could gather up 20 people to participate and call them whatever you want and have a theme. im not sure about the star thing. to me that sounds like a littlely has stolen the show <img src="i/expressions/face-icon-small-wink.gif" border="0">
who are they organised by? the members of the cf association in your state.
 
C

CFlat

Guest
We took our daughter to the walk...she loved it! I just wouldn't let her play with children you don't know while she is there. Adults with CF will know to stay away. Remember your daughter deserves to have fun too...so take her!
 
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