This year is our first ever Great Strides walk. I need some opinions. I had always planned to take Philip with us to the walk. It is for him, after all. I am slightly concerned about whether there is a huge danger with him being there. I know people with B. cepecia are not supposed to be there, but I also know people may not know they are carrying some bugs. I obviously would not let anyone handle him. I would assume he will be in his stroller the whole time.He will be 11 months old at the time of the walk. Any thoughts??? Thanks guys!
Great Strides
- Thread starter petnurse
- Start date
This year is our first ever Great Strides walk. I need some opinions. I had always planned to take Philip with us to the walk. It is for him, after all. I am slightly concerned about whether there is a huge danger with him being there. I know people with B. cepecia are not supposed to be there, but I also know people may not know they are carrying some bugs. I obviously would not let anyone handle him. I would assume he will be in his stroller the whole time.He will be 11 months old at the time of the walk. Any thoughts??? Thanks guys!
This year is our first ever Great Strides walk. I need some opinions. I had always planned to take Philip with us to the walk. It is for him, after all. I am slightly concerned about whether there is a huge danger with him being there. I know people with B. cepecia are not supposed to be there, but I also know people may not know they are carrying some bugs. I obviously would not let anyone handle him. I would assume he will be in his stroller the whole time.He will be 11 months old at the time of the walk. Any thoughts??? Thanks guys!
This year is our first ever Great Strides walk. I need some opinions. I had always planned to take Philip with us to the walk. It is for him, after all. I am slightly concerned about whether there is a huge danger with him being there. I know people with B. cepecia are not supposed to be there, but I also know people may not know they are carrying some bugs. I obviously would not let anyone handle him. I would assume he will be in his stroller the whole time.He will be 11 months old at the time of the walk. Any thoughts??? Thanks guys!
This year is our first ever Great Strides walk. I need some opinions. I had always planned to take Philip with us to the walk. It is for him, after all. I am slightly concerned about whether there is a huge danger with him being there. I know people with B. cepecia are not supposed to be there, but I also know people may not know they are carrying some bugs. I obviously would not let anyone handle him. I would assume he will be in his stroller the whole time.He will be 11 months old at the time of the walk. Any thoughts??? Thanks guys!
If he's going to be confined to his stroller, stays with your group. You should be fine. Bring along hand sanitizer, your own pen to sign in with. Avoid the community food that isn't individually wrapped -- pizza, donuts, cookies -- that everyone tends to dig in.
DS is 6 and we started going when he was a baby -- he stayed in his stroller, stayed with our group; however, when he was 4 we stopped bringing him for awhile because the walk became more successful and there were a lot of kids running around that I didn't know. I think the clinic dietician was concerned as well as she said "wow there are a LOT of kids on that playground"
And being that the walk was held at a park with a huge playground, we had to explain to him and family members that he couldn't play there -- had to wait until we got home with a promise we'd take him to a different park. I know a couple other families who did the same thing or left their CF kids at home.
DS did go last year. We explained about not being able to go on the playground, having one of us get any food for him.
DS is 6 and we started going when he was a baby -- he stayed in his stroller, stayed with our group; however, when he was 4 we stopped bringing him for awhile because the walk became more successful and there were a lot of kids running around that I didn't know. I think the clinic dietician was concerned as well as she said "wow there are a LOT of kids on that playground"
And being that the walk was held at a park with a huge playground, we had to explain to him and family members that he couldn't play there -- had to wait until we got home with a promise we'd take him to a different park. I know a couple other families who did the same thing or left their CF kids at home.
DS did go last year. We explained about not being able to go on the playground, having one of us get any food for him.
If he's going to be confined to his stroller, stays with your group. You should be fine. Bring along hand sanitizer, your own pen to sign in with. Avoid the community food that isn't individually wrapped -- pizza, donuts, cookies -- that everyone tends to dig in.
DS is 6 and we started going when he was a baby -- he stayed in his stroller, stayed with our group; however, when he was 4 we stopped bringing him for awhile because the walk became more successful and there were a lot of kids running around that I didn't know. I think the clinic dietician was concerned as well as she said "wow there are a LOT of kids on that playground"
And being that the walk was held at a park with a huge playground, we had to explain to him and family members that he couldn't play there -- had to wait until we got home with a promise we'd take him to a different park. I know a couple other families who did the same thing or left their CF kids at home.
DS did go last year. We explained about not being able to go on the playground, having one of us get any food for him.
DS is 6 and we started going when he was a baby -- he stayed in his stroller, stayed with our group; however, when he was 4 we stopped bringing him for awhile because the walk became more successful and there were a lot of kids running around that I didn't know. I think the clinic dietician was concerned as well as she said "wow there are a LOT of kids on that playground"
And being that the walk was held at a park with a huge playground, we had to explain to him and family members that he couldn't play there -- had to wait until we got home with a promise we'd take him to a different park. I know a couple other families who did the same thing or left their CF kids at home.
DS did go last year. We explained about not being able to go on the playground, having one of us get any food for him.
If he's going to be confined to his stroller, stays with your group. You should be fine. Bring along hand sanitizer, your own pen to sign in with. Avoid the community food that isn't individually wrapped -- pizza, donuts, cookies -- that everyone tends to dig in.
DS is 6 and we started going when he was a baby -- he stayed in his stroller, stayed with our group; however, when he was 4 we stopped bringing him for awhile because the walk became more successful and there were a lot of kids running around that I didn't know. I think the clinic dietician was concerned as well as she said "wow there are a LOT of kids on that playground"
And being that the walk was held at a park with a huge playground, we had to explain to him and family members that he couldn't play there -- had to wait until we got home with a promise we'd take him to a different park. I know a couple other families who did the same thing or left their CF kids at home.
DS did go last year. We explained about not being able to go on the playground, having one of us get any food for him.
DS is 6 and we started going when he was a baby -- he stayed in his stroller, stayed with our group; however, when he was 4 we stopped bringing him for awhile because the walk became more successful and there were a lot of kids running around that I didn't know. I think the clinic dietician was concerned as well as she said "wow there are a LOT of kids on that playground"
And being that the walk was held at a park with a huge playground, we had to explain to him and family members that he couldn't play there -- had to wait until we got home with a promise we'd take him to a different park. I know a couple other families who did the same thing or left their CF kids at home.
DS did go last year. We explained about not being able to go on the playground, having one of us get any food for him.
If he's going to be confined to his stroller, stays with your group. You should be fine. Bring along hand sanitizer, your own pen to sign in with. Avoid the community food that isn't individually wrapped -- pizza, donuts, cookies -- that everyone tends to dig in.
DS is 6 and we started going when he was a baby -- he stayed in his stroller, stayed with our group; however, when he was 4 we stopped bringing him for awhile because the walk became more successful and there were a lot of kids running around that I didn't know. I think the clinic dietician was concerned as well as she said "wow there are a LOT of kids on that playground"
And being that the walk was held at a park with a huge playground, we had to explain to him and family members that he couldn't play there -- had to wait until we got home with a promise we'd take him to a different park. I know a couple other families who did the same thing or left their CF kids at home.
DS did go last year. We explained about not being able to go on the playground, having one of us get any food for him.
DS is 6 and we started going when he was a baby -- he stayed in his stroller, stayed with our group; however, when he was 4 we stopped bringing him for awhile because the walk became more successful and there were a lot of kids running around that I didn't know. I think the clinic dietician was concerned as well as she said "wow there are a LOT of kids on that playground"
And being that the walk was held at a park with a huge playground, we had to explain to him and family members that he couldn't play there -- had to wait until we got home with a promise we'd take him to a different park. I know a couple other families who did the same thing or left their CF kids at home.
DS did go last year. We explained about not being able to go on the playground, having one of us get any food for him.
If he's going to be confined to his stroller, stays with your group. You should be fine. Bring along hand sanitizer, your own pen to sign in with. Avoid the community food that isn't individually wrapped -- pizza, donuts, cookies -- that everyone tends to dig in.
<br />
<br />DS is 6 and we started going when he was a baby -- he stayed in his stroller, stayed with our group; however, when he was 4 we stopped bringing him for awhile because the walk became more successful and there were a lot of kids running around that I didn't know. I think the clinic dietician was concerned as well as she said "wow there are a LOT of kids on that playground"
<br />
<br />And being that the walk was held at a park with a huge playground, we had to explain to him and family members that he couldn't play there -- had to wait until we got home with a promise we'd take him to a different park. I know a couple other families who did the same thing or left their CF kids at home.
<br />
<br />DS did go last year. We explained about not being able to go on the playground, having one of us get any food for him.
<br />
<br />DS is 6 and we started going when he was a baby -- he stayed in his stroller, stayed with our group; however, when he was 4 we stopped bringing him for awhile because the walk became more successful and there were a lot of kids running around that I didn't know. I think the clinic dietician was concerned as well as she said "wow there are a LOT of kids on that playground"
<br />
<br />And being that the walk was held at a park with a huge playground, we had to explain to him and family members that he couldn't play there -- had to wait until we got home with a promise we'd take him to a different park. I know a couple other families who did the same thing or left their CF kids at home.
<br />
<br />DS did go last year. We explained about not being able to go on the playground, having one of us get any food for him.
T
TonyaH
Guest
I think you hit the nail on the head when you mentioned that between appointments, it is very difficult to know what bugs you may have contracted. Not only that, but quarterly cultures, in my oppinion, are not the least bit conclusive as to what is truly growing in the lungs. The sample could have been coughed up from any one of the many airways in the lungs, so in my mind, so much can be missed.
The one thing you have going for you is that Phillip is still young and in a stroller. You can very easily keep others from getting near him, touching him, breathing on him...
However, precautions at CF events are not taken seriously at all. Cfers should not touch anything that another cfer touches. Yet, Great Strides sites often have buffet lunches after the walk, silent auctions have pens that are picked up and set back down by many guests, etc. I worked for the CFF at the time that they started requiring chapters to include the B.Cepacia blurb on all of their invites. Verbage on invites is not enough. Most chapters miss some of the most obvious means of cross-infection at events.
Others may disagree, but I think Phillip is okay this year. My son will probably walk with us, but you won't find any of us mingling afterward, and certainly not standing in a buffet line for lunch. I know it stinks that we have to do this, but I would rather be safe than sorry.
The one thing you have going for you is that Phillip is still young and in a stroller. You can very easily keep others from getting near him, touching him, breathing on him...
However, precautions at CF events are not taken seriously at all. Cfers should not touch anything that another cfer touches. Yet, Great Strides sites often have buffet lunches after the walk, silent auctions have pens that are picked up and set back down by many guests, etc. I worked for the CFF at the time that they started requiring chapters to include the B.Cepacia blurb on all of their invites. Verbage on invites is not enough. Most chapters miss some of the most obvious means of cross-infection at events.
Others may disagree, but I think Phillip is okay this year. My son will probably walk with us, but you won't find any of us mingling afterward, and certainly not standing in a buffet line for lunch. I know it stinks that we have to do this, but I would rather be safe than sorry.
T
TonyaH
Guest
I think you hit the nail on the head when you mentioned that between appointments, it is very difficult to know what bugs you may have contracted. Not only that, but quarterly cultures, in my oppinion, are not the least bit conclusive as to what is truly growing in the lungs. The sample could have been coughed up from any one of the many airways in the lungs, so in my mind, so much can be missed.
The one thing you have going for you is that Phillip is still young and in a stroller. You can very easily keep others from getting near him, touching him, breathing on him...
However, precautions at CF events are not taken seriously at all. Cfers should not touch anything that another cfer touches. Yet, Great Strides sites often have buffet lunches after the walk, silent auctions have pens that are picked up and set back down by many guests, etc. I worked for the CFF at the time that they started requiring chapters to include the B.Cepacia blurb on all of their invites. Verbage on invites is not enough. Most chapters miss some of the most obvious means of cross-infection at events.
Others may disagree, but I think Phillip is okay this year. My son will probably walk with us, but you won't find any of us mingling afterward, and certainly not standing in a buffet line for lunch. I know it stinks that we have to do this, but I would rather be safe than sorry.
The one thing you have going for you is that Phillip is still young and in a stroller. You can very easily keep others from getting near him, touching him, breathing on him...
However, precautions at CF events are not taken seriously at all. Cfers should not touch anything that another cfer touches. Yet, Great Strides sites often have buffet lunches after the walk, silent auctions have pens that are picked up and set back down by many guests, etc. I worked for the CFF at the time that they started requiring chapters to include the B.Cepacia blurb on all of their invites. Verbage on invites is not enough. Most chapters miss some of the most obvious means of cross-infection at events.
Others may disagree, but I think Phillip is okay this year. My son will probably walk with us, but you won't find any of us mingling afterward, and certainly not standing in a buffet line for lunch. I know it stinks that we have to do this, but I would rather be safe than sorry.
T
TonyaH
Guest
I think you hit the nail on the head when you mentioned that between appointments, it is very difficult to know what bugs you may have contracted. Not only that, but quarterly cultures, in my oppinion, are not the least bit conclusive as to what is truly growing in the lungs. The sample could have been coughed up from any one of the many airways in the lungs, so in my mind, so much can be missed.
The one thing you have going for you is that Phillip is still young and in a stroller. You can very easily keep others from getting near him, touching him, breathing on him...
However, precautions at CF events are not taken seriously at all. Cfers should not touch anything that another cfer touches. Yet, Great Strides sites often have buffet lunches after the walk, silent auctions have pens that are picked up and set back down by many guests, etc. I worked for the CFF at the time that they started requiring chapters to include the B.Cepacia blurb on all of their invites. Verbage on invites is not enough. Most chapters miss some of the most obvious means of cross-infection at events.
Others may disagree, but I think Phillip is okay this year. My son will probably walk with us, but you won't find any of us mingling afterward, and certainly not standing in a buffet line for lunch. I know it stinks that we have to do this, but I would rather be safe than sorry.
The one thing you have going for you is that Phillip is still young and in a stroller. You can very easily keep others from getting near him, touching him, breathing on him...
However, precautions at CF events are not taken seriously at all. Cfers should not touch anything that another cfer touches. Yet, Great Strides sites often have buffet lunches after the walk, silent auctions have pens that are picked up and set back down by many guests, etc. I worked for the CFF at the time that they started requiring chapters to include the B.Cepacia blurb on all of their invites. Verbage on invites is not enough. Most chapters miss some of the most obvious means of cross-infection at events.
Others may disagree, but I think Phillip is okay this year. My son will probably walk with us, but you won't find any of us mingling afterward, and certainly not standing in a buffet line for lunch. I know it stinks that we have to do this, but I would rather be safe than sorry.
T
TonyaH
Guest
I think you hit the nail on the head when you mentioned that between appointments, it is very difficult to know what bugs you may have contracted. Not only that, but quarterly cultures, in my oppinion, are not the least bit conclusive as to what is truly growing in the lungs. The sample could have been coughed up from any one of the many airways in the lungs, so in my mind, so much can be missed.
The one thing you have going for you is that Phillip is still young and in a stroller. You can very easily keep others from getting near him, touching him, breathing on him...
However, precautions at CF events are not taken seriously at all. Cfers should not touch anything that another cfer touches. Yet, Great Strides sites often have buffet lunches after the walk, silent auctions have pens that are picked up and set back down by many guests, etc. I worked for the CFF at the time that they started requiring chapters to include the B.Cepacia blurb on all of their invites. Verbage on invites is not enough. Most chapters miss some of the most obvious means of cross-infection at events.
Others may disagree, but I think Phillip is okay this year. My son will probably walk with us, but you won't find any of us mingling afterward, and certainly not standing in a buffet line for lunch. I know it stinks that we have to do this, but I would rather be safe than sorry.
The one thing you have going for you is that Phillip is still young and in a stroller. You can very easily keep others from getting near him, touching him, breathing on him...
However, precautions at CF events are not taken seriously at all. Cfers should not touch anything that another cfer touches. Yet, Great Strides sites often have buffet lunches after the walk, silent auctions have pens that are picked up and set back down by many guests, etc. I worked for the CFF at the time that they started requiring chapters to include the B.Cepacia blurb on all of their invites. Verbage on invites is not enough. Most chapters miss some of the most obvious means of cross-infection at events.
Others may disagree, but I think Phillip is okay this year. My son will probably walk with us, but you won't find any of us mingling afterward, and certainly not standing in a buffet line for lunch. I know it stinks that we have to do this, but I would rather be safe than sorry.
T
TonyaH
Guest
I think you hit the nail on the head when you mentioned that between appointments, it is very difficult to know what bugs you may have contracted. Not only that, but quarterly cultures, in my oppinion, are not the least bit conclusive as to what is truly growing in the lungs. The sample could have been coughed up from any one of the many airways in the lungs, so in my mind, so much can be missed.
<br />
<br />The one thing you have going for you is that Phillip is still young and in a stroller. You can very easily keep others from getting near him, touching him, breathing on him...
<br />
<br />However, precautions at CF events are not taken seriously at all. Cfers should not touch anything that another cfer touches. Yet, Great Strides sites often have buffet lunches after the walk, silent auctions have pens that are picked up and set back down by many guests, etc. I worked for the CFF at the time that they started requiring chapters to include the B.Cepacia blurb on all of their invites. Verbage on invites is not enough. Most chapters miss some of the most obvious means of cross-infection at events.
<br />
<br />Others may disagree, but I think Phillip is okay this year. My son will probably walk with us, but you won't find any of us mingling afterward, and certainly not standing in a buffet line for lunch. I know it stinks that we have to do this, but I would rather be safe than sorry.
<br />
<br />The one thing you have going for you is that Phillip is still young and in a stroller. You can very easily keep others from getting near him, touching him, breathing on him...
<br />
<br />However, precautions at CF events are not taken seriously at all. Cfers should not touch anything that another cfer touches. Yet, Great Strides sites often have buffet lunches after the walk, silent auctions have pens that are picked up and set back down by many guests, etc. I worked for the CFF at the time that they started requiring chapters to include the B.Cepacia blurb on all of their invites. Verbage on invites is not enough. Most chapters miss some of the most obvious means of cross-infection at events.
<br />
<br />Others may disagree, but I think Phillip is okay this year. My son will probably walk with us, but you won't find any of us mingling afterward, and certainly not standing in a buffet line for lunch. I know it stinks that we have to do this, but I would rather be safe than sorry.
