I am very interested in starting the GSH therapy but, I had a few reserves!!
1. Cepacia 2.Taking the GSH oral with NAC.
I got incontact with Dr. C. BISHOP and gave him some background information on me and CF. I was just nerevous and did not want to do anything stupid. Below is what he said.
"Paulina,"
We have no data to suggest that patients with B Cepacia will be harmed if they use GSH. Since GSH is still experimental, we wanted to err on the side of caution. That is why we suggested that patients with B Cepacia not use inhaled GSH. One idea would be to start with N-Acetyl-Cysteine or NAC. NAC increases the level of GSH in the liver and the blood. You could then see how you do and decide if you want to try the inhaled GSH if you do OK with the oral. The dose the folks at Sanford are using is about 2.5 grams per day of NAC. This should be taken throughout the day, 500 mg 5 times per day. The body rapidly absorbs the NAC and the Cysteine is then synthesized into GSH.
Clark
It is totally up to ones self to start the Therapy. I have read and read about the GSH and I felt I wanted to give it ago. Also from reading from one of the Forums you guys have shared your experiences regarding the therapy. So I felt for me I would start.
I only started yesterday and starting of slowly 1,200 for a week. Then will in crease.
Fingers crossed for all on the Therapy. I will start the GSH inhaliation when I see how I mangage oral. I ws just nerevous with the Cepacia.
Sunflower
--------------
36yrs old
Dx's 3half yrs.
ABPA/B.CCepacia (sept 06 Cepacia)
1. Cepacia 2.Taking the GSH oral with NAC.
I got incontact with Dr. C. BISHOP and gave him some background information on me and CF. I was just nerevous and did not want to do anything stupid. Below is what he said.
"Paulina,"
We have no data to suggest that patients with B Cepacia will be harmed if they use GSH. Since GSH is still experimental, we wanted to err on the side of caution. That is why we suggested that patients with B Cepacia not use inhaled GSH. One idea would be to start with N-Acetyl-Cysteine or NAC. NAC increases the level of GSH in the liver and the blood. You could then see how you do and decide if you want to try the inhaled GSH if you do OK with the oral. The dose the folks at Sanford are using is about 2.5 grams per day of NAC. This should be taken throughout the day, 500 mg 5 times per day. The body rapidly absorbs the NAC and the Cysteine is then synthesized into GSH.
Clark
It is totally up to ones self to start the Therapy. I have read and read about the GSH and I felt I wanted to give it ago. Also from reading from one of the Forums you guys have shared your experiences regarding the therapy. So I felt for me I would start.
I only started yesterday and starting of slowly 1,200 for a week. Then will in crease.
Fingers crossed for all on the Therapy. I will start the GSH inhaliation when I see how I mangage oral. I ws just nerevous with the Cepacia.
Sunflower
--------------
36yrs old
Dx's 3half yrs.
ABPA/B.CCepacia (sept 06 Cepacia)