HAPPY CYSTIC FIBROSIS AWARENESS MONTH!!
Shout it from the rooftops and let everyone know that this is CF awareness month! Spread the word and talk to people about this horrible disease!
We still need a cure!
May Declared National Cystic Fibrosis Awareness Month
The Cystic Fibrosis Foundation praised the U.S. Senate for officially recognizing May as National Cystic Fibrosis Awareness Month and encouraging public awareness and understanding of CF.
Introduced by Senators Patty Murray (D-Wash.) and Jim Inhofe (R-Okla.), the legislation calls attention to cystic fibrosis, a fatal, genetic disease, and supports research to find a cure.
"We are thrilled to have the Senate's support for our mission to find a cure for cystic fibrosis. We are making dramatic progress in the development of new therapies for the disease and in extending life expectancy," said Robert J. Beall, Ph.D., president and CEO of the Foundation. "On behalf of all those affected by CF, we thank Senators Murray and Inhofe for their leadership and commitment to the cystic fibrosis community.
So as many of us with cf wrote into our congress and suggested that May should be Cystic Fibrosis Awareness Month.. Well they pased it along with bush signing for it to.. Here is the letter they wrote back to us...
Dear Friend,
We have some exciting news. We are pleased to tell you that, over the past seven days, Congress and the President took action on four separate bills that champion the rights and health of people with cystic fibrosis.
The Cystic Fibrosis Foundation played a hand in each of the following developments:
The Senate officially recognized May 2008 as National Cystic Fibrosis Awareness Month.
Congress passed the Genetic Information Nondiscrimination Act (GINA) today. This law makes it illegal for employers and insurance companies to discriminate based on genetic information.
President Bush signed into law the Newborn Screening Saves Lives Act, which provides resources and funding for new and existing newborn screening programs through 2012.
The House of Representatives reauthorized the Small Business Innovation Research (SBIR) program. This program awards grants to small biotechnology companies that conduct important CF research.
Each of these initiatives has tremendous potential to help people with CF. These bills help increase awareness of cystic fibrosis, focus research funding on CF, and establish critical legal protections to help people with the disease live longer, healthier lives. Click here to learn more.
Shout it from the rooftops and let everyone know that this is CF awareness month! Spread the word and talk to people about this horrible disease!
We still need a cure!
May Declared National Cystic Fibrosis Awareness Month
The Cystic Fibrosis Foundation praised the U.S. Senate for officially recognizing May as National Cystic Fibrosis Awareness Month and encouraging public awareness and understanding of CF.
Introduced by Senators Patty Murray (D-Wash.) and Jim Inhofe (R-Okla.), the legislation calls attention to cystic fibrosis, a fatal, genetic disease, and supports research to find a cure.
"We are thrilled to have the Senate's support for our mission to find a cure for cystic fibrosis. We are making dramatic progress in the development of new therapies for the disease and in extending life expectancy," said Robert J. Beall, Ph.D., president and CEO of the Foundation. "On behalf of all those affected by CF, we thank Senators Murray and Inhofe for their leadership and commitment to the cystic fibrosis community.
So as many of us with cf wrote into our congress and suggested that May should be Cystic Fibrosis Awareness Month.. Well they pased it along with bush signing for it to.. Here is the letter they wrote back to us...
Dear Friend,
We have some exciting news. We are pleased to tell you that, over the past seven days, Congress and the President took action on four separate bills that champion the rights and health of people with cystic fibrosis.
The Cystic Fibrosis Foundation played a hand in each of the following developments:
The Senate officially recognized May 2008 as National Cystic Fibrosis Awareness Month.
Congress passed the Genetic Information Nondiscrimination Act (GINA) today. This law makes it illegal for employers and insurance companies to discriminate based on genetic information.
President Bush signed into law the Newborn Screening Saves Lives Act, which provides resources and funding for new and existing newborn screening programs through 2012.
The House of Representatives reauthorized the Small Business Innovation Research (SBIR) program. This program awards grants to small biotechnology companies that conduct important CF research.
Each of these initiatives has tremendous potential to help people with CF. These bills help increase awareness of cystic fibrosis, focus research funding on CF, and establish critical legal protections to help people with the disease live longer, healthier lives. Click here to learn more.