HAPPY NEW LUNG DAY TO JOHNNNNN

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JennifersHope

New member
Hi Guys,

Anyone who talks to me on here has heard me talk about my friend John... He has single handedly been the one who has influenced me to accept my DX of Cf. He and his girlfriend Jenny have become two of my dearest friends...

John was dx with Cepacia last year and his health plummeted so fast.. He has been in the hospital for so long now.. Today he got his call for lungs.. they have a match for him....

Please keep him in your thoughts and prayers.. I know he is going to pull through and amaze the doctors at how well he does..

He fought so hard to get listed for lungs, he wouldn't take NO for an answer.. He is and was determined to get transplanted .. He even got the hospital he is at to change their policy on transplanting cepacia patients...

I am so proud of him .. what a fighter..

GO JOHN

Love

Jennifer
 
J

JennifersHope

New member
It is amazing.. They have already started him on antirejection medication.. He is getting EKGS. blood work and all the other pre op work that needs to be done.. He signed the consent form...

They expect the surgery to be about 8 hours long.... That is nothing in light of all JOhn has been through....

At least he gets to sleep though this... All his loved ones have to bounce off the walls... Yikessssssssssssssssssssssssssssssssssssss......

I can't wait till in a few weeks he is catching up on posts on here and he comes across this one.... All the preop jitters.... he is going to call me a dork for sure.... and coming from him, I wear the name proudly

Go John Go.. Love you. .. Believe in you..

What in the heck am I going to do with myself the next 8 hours.. Probably talk on the phone back and forth with Jenny.. Oh how I wish I could be there... I am for sure going to fly out there once he gets settled back at his temporary apartment or maybe at the latest when he gets home..

I know him, he is full of life....He will be back to living life soon

His birthday is in a few days.. I have been debating what to get him.... Now I know

. I am buying him a new toy for his birthday.. I don't care what ever he wants.. a new skateboard.. a kayack.. crud I will even buy him a yacht.. Just as long as he gets better

New lungs What a birthday present....

Also don't forget the donor's family who is going through such a horrible loss right now.... I can't imagine how horrible it is for them.... I know John will bring honor to the life of the one who didn't make it...
 
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izemmom

New member
Jen - are these your friends who are in Wisconsin? If so, and he's getting his transplant at Froedert Hospital in Milwaukee, please let me know how I can help them. I can take his girlfreind some home cooked meals, run errands... whatver they need. I'm close by and would love to help. PM me if I can be of any assistance during his recovery period.
 
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coltsfan715

New member
That is such great news Jenn. I remember you talking of him often. I am so glad he got the call and will have you guys and especially him in my thoughts.

LOTS of prayers are being sent his way!!!

Lindsey
 
J

JennifersHope

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>

Jen - are these your friends who are in Wisconsin? If so, and he's getting his transplant at Froedert Hospital in Milwaukee, please let me know how I can help them. I can take his girlfreind some home cooked meals, run errands... whatver they need. I'm close by and would love to help. PM me if I can be of any assistance during his recovery period.</end quote></div>



OH TAMI THAT IS SO SWEET OF YOU.. HE ACTUALLY IS BEING TRANSPLANTED AT THE UNIVERSITY OF MN.. FAIRVIEW HOSPITAL...

IS THAT TO FAR FROM WERE YOU ARE? YES THESE ARE MY FRIENDS FROM WISCONSIN........

THEY WILL BE STAYING IN A HOTEL THERE FOR THREE MONTHS POST OPERATIVELY... I KNOW JENNY WOULD LOVE HOME COOKED MEALS.. SHE HATES THE HOSPITAL FOOD..BUT i HAVE NO IDEA HOW FAR AWAY THAT IS.. WHEN I GO SEE THEM I HAVE ALWAYS FLOWN INTO MNPLS AIRPORT.. AND THEY LIVE ABOUT AN HOUR FROM THERE..


I JUST GOT OFF THE PHONE WITH HER, THE SURGERY IS SCHEDULED FOR 1 AM THEIR TIME 2 AM MINE....... JOHN IS GETTING BLOOD RIGHT NOW, THEN HE HAS TO TAKE A ANTI MICROBIAL SHOWER,, HE IS VERY WEAK.... BUT HE HAS A SPARKLE IN HIS EYES....
 
J

JennifersHope

New member
Thanks Blake I fixed it.. I don't know why I made the post in all caps either.. Just so excited...

Blake that is so nice of you to offer them meals.... In a few days when things settle down, I will try to see what they need.... I just love how supportive the CF community is.... It just is wonderful source of love and support..

Jennifer
 
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Diane

New member
I am THRILLED to hear this news about John <img src="i/expressions/face-icon-small-happy.gif" border="0"> . I remember praying for him in the past when you wrote about him and how things weren't going well for him . I wish him the all the best and a speedy recovery. GO JOHN !!!!!!!!!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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blackchameleon

New member
    JEEPERS JEN, wot an anxious little time u
have now! you know , some people just ooze a certain quality that
if you could bottle would secure your financial future. John
obviously has it, and from what ive read on here so do u Jen,<br>
as well as many other people in here. WOT A FAIR DINKUM WONDERFUL
WEB SITE!! i shall keep my eyes open for updates. GIDDY UP
JOHN.......YEEHAAA.
 
S

Seana30

New member
Jennifer,

What wonderful news!! John, his family, and friends are in my thoughts. Please keep us updated.

Seana
 
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kayleesgrandma

New member
I love this kind of news--and can you feel the buzz going on here! It's great news Jen--will keep both him and Jenny in my thoughts and prayers.
 
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Marjolein

New member
Wow Jenn, this is such good news!

Go John!!!

I remember John's post on the other board, always so full of life. And then you gave us all the news last year that he was getting so bad. Hard to imagine after seeing the pics for instance. I really hoped he could get listed and get his tx in time.

And now he got his call, what wonderful news to wake up with on this sunny sundaymorning. I'm really happy for him, Jenny, his family and friends and specially you too Jenn.

I'm going to follow this site a lot today and hoping for positive updates

Love, Marjolein
 
L

Landy

New member
How exciting! Any updates yet??
Also, did I miss the link to a website for him that has updates posted?
 
J

JennifersHope

New member
Okay the latest news is

THE LUNGS ARE IN.. AND HE IS DOING GREAT...

Right now the lungs are in, John and the lungs are getting along great.... and so far things are smooth....He is still in surgery they have to close him up now.. but thank God the lungs are in.. and doing great..

Jenny just told me one of the drs came out and told her that he was going to do great.....

Sorry I didn't post in the middle of the night, I was talking to her but I was trying to sleep in between.

He should be going to his room soon.. I will post more as I know it....

THanks for all the support

Jennifer
 
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NoExcuses

New member
wow that's great news. thank you so much for keeping us posted. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JennifersHope

New member
Thanks everyone who is asking.. it means a lot to me...

John is out of surgery.. They were just getting ready to go in to see him now.. He needed quite a bit of blood during the surgery because his platelett count was so low.

They said he tolerated the surgery really well and is doing great... He has a some bleeding around the surgical site, which they expected because the platletts are what help you blood to clot and not bleed.

They gave him some meds to clot his blood.. The doctor is happy with how things are going.....

I will post more as I hear it.. I am going to work at 3 today so there will be about a 10 hour gap in between posts..

I may move it to my blog but I will for sure post... I think it is amazing to say the least.. and I am thrilled..

Now when John gets better he is going to have to be more of a regular poster on here so you can see why I make such a fuss about him..

Jenny is going to call me as soon as she is done seeing him... I will let you know..

Love and Appreciation,

Jennifer
 
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coltsfan715

New member
That is so great to hear that everything went well and he is doing good! I am so happy for him and his girlfriend, family and you. I can only imagine how giddy you are going to be at work tonight <img src="i/expressions/face-icon-small-smile.gif" border="0">

Can't wait to hear more.

Lindsey
 
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