Well, I first posted about this in the uk when i was really down and concerned about my daughter. Have since joined here and have also found the forum a great help- we're all in the same boat aren't we?It's now almost a month since she came out of hospital after being admitted with a bad infection. Just wanted to post and say that her lung function has shot up by almost 30%and that part of that increase has been since she came home- was so down at the time but feel so pleased at the moment (think change to IVs and physio routine has shaken things up a bit) .I know that CF will always challenge and do battle with us, but just for now, I feel like we are on the right side of things. My daughter's friend is staying over tonight and they are both singing on her karaoke as I write (don't think either of them should look at singing as a career choice!) and it's just so lovely to feel so 'normal' for a bit after our recent scares, if that makes sense. Just lovely to watch them both tuck into a pile of chips and her friend say, 'oy!have you had your creon?' !
Just feeling happy today
BBB2 xxx
Just feeling happy today
BBB2 xxx