Has anyone ever been able to get rid of their g-tube?

[Mommafirst]

Alyssa got her feeding tube last November. Since then, she has gone from under the 5th percentile for BMI to almost the 70th percentile!!! She's doing fantastic and looks like a totally different kid.

Now that she is caught up and above the CF center's requirement of 50th percentile BMI, I'd like to consider a weaning trial to see if she can continue to grow and gain on her own. We only use the feeding tube at night -- 2 cans of Kids Essentials 1.5. Her eating has gotten a little better, she has grown an interest in foods like shakes and pediasure. I am hopeful that if we drop the feeding tube we can keep her weight up orally. But when I mention the desire to move her towards this, her doctor and nutritionist look at me with this look that seems to say, "wow she doesn't get it".

So I'm wondering if I'm being in denial and that I shouldn't count on ever getting rid of the tube? Is it possible that her body just need a bit of a boost and with good nutrition an staying on top of everything that she could wean from the tube?

Or perhaps this is something I should take on myself without the center's direction and show that she can maintain and gain with less and less going throught the tube?

 

[Mommafirst]

Alyssa got her feeding tube last November. Since then, she has gone from under the 5th percentile for BMI to almost the 70th percentile!!! She's doing fantastic and looks like a totally different kid.

Now that she is caught up and above the CF center's requirement of 50th percentile BMI, I'd like to consider a weaning trial to see if she can continue to grow and gain on her own. We only use the feeding tube at night -- 2 cans of Kids Essentials 1.5. Her eating has gotten a little better, she has grown an interest in foods like shakes and pediasure. I am hopeful that if we drop the feeding tube we can keep her weight up orally. But when I mention the desire to move her towards this, her doctor and nutritionist look at me with this look that seems to say, "wow she doesn't get it".

So I'm wondering if I'm being in denial and that I shouldn't count on ever getting rid of the tube? Is it possible that her body just need a bit of a boost and with good nutrition an staying on top of everything that she could wean from the tube?

Or perhaps this is something I should take on myself without the center's direction and show that she can maintain and gain with less and less going throught the tube?

 

[Mommafirst]

Alyssa got her feeding tube last November. Since then, she has gone from under the 5th percentile for BMI to almost the 70th percentile!!! She's doing fantastic and looks like a totally different kid.

Now that she is caught up and above the CF center's requirement of 50th percentile BMI, I'd like to consider a weaning trial to see if she can continue to grow and gain on her own. We only use the feeding tube at night -- 2 cans of Kids Essentials 1.5. Her eating has gotten a little better, she has grown an interest in foods like shakes and pediasure. I am hopeful that if we drop the feeding tube we can keep her weight up orally. But when I mention the desire to move her towards this, her doctor and nutritionist look at me with this look that seems to say, "wow she doesn't get it".

So I'm wondering if I'm being in denial and that I shouldn't count on ever getting rid of the tube? Is it possible that her body just need a bit of a boost and with good nutrition an staying on top of everything that she could wean from the tube?

Or perhaps this is something I should take on myself without the center's direction and show that she can maintain and gain with less and less going throught the tube?

 

[Mommafirst]

Alyssa got her feeding tube last November. Since then, she has gone from under the 5th percentile for BMI to almost the 70th percentile!!! She's doing fantastic and looks like a totally different kid.

Now that she is caught up and above the CF center's requirement of 50th percentile BMI, I'd like to consider a weaning trial to see if she can continue to grow and gain on her own. We only use the feeding tube at night -- 2 cans of Kids Essentials 1.5. Her eating has gotten a little better, she has grown an interest in foods like shakes and pediasure. I am hopeful that if we drop the feeding tube we can keep her weight up orally. But when I mention the desire to move her towards this, her doctor and nutritionist look at me with this look that seems to say, "wow she doesn't get it".

So I'm wondering if I'm being in denial and that I shouldn't count on ever getting rid of the tube? Is it possible that her body just need a bit of a boost and with good nutrition an staying on top of everything that she could wean from the tube?

Or perhaps this is something I should take on myself without the center's direction and show that she can maintain and gain with less and less going throught the tube?

 

[Mommafirst]

Alyssa got her feeding tube last November. Since then, she has gone from under the 5th percentile for BMI to almost the 70th percentile!!! She's doing fantastic and looks like a totally different kid.
<br />
<br />Now that she is caught up and above the CF center's requirement of 50th percentile BMI, I'd like to consider a weaning trial to see if she can continue to grow and gain on her own. We only use the feeding tube at night -- 2 cans of Kids Essentials 1.5. Her eating has gotten a little better, she has grown an interest in foods like shakes and pediasure. I am hopeful that if we drop the feeding tube we can keep her weight up orally. But when I mention the desire to move her towards this, her doctor and nutritionist look at me with this look that seems to say, "wow she doesn't get it".
<br />
<br />So I'm wondering if I'm being in denial and that I shouldn't count on ever getting rid of the tube? Is it possible that her body just need a bit of a boost and with good nutrition an staying on top of everything that she could wean from the tube?
<br />
<br />Or perhaps this is something I should take on myself without the center's direction and show that she can maintain and gain with less and less going throught the tube?

 

[Brad]

I have never had a G tube.But I have a friend who did.
He got it when He was 12 or so as I remember. He kept it
for 4 years or so, He began lifting weights and now 27
He is built very well and is very strong.
He is doing well.

I am sure there are others who will add much more.
I do not know what the stats are, But I know it can be done.

 

[Brad]

I have never had a G tube.But I have a friend who did.
He got it when He was 12 or so as I remember. He kept it
for 4 years or so, He began lifting weights and now 27
He is built very well and is very strong.
He is doing well.

I am sure there are others who will add much more.
I do not know what the stats are, But I know it can be done.

 

[Brad]

I have never had a G tube.But I have a friend who did.
He got it when He was 12 or so as I remember. He kept it
for 4 years or so, He began lifting weights and now 27
He is built very well and is very strong.
He is doing well.

I am sure there are others who will add much more.
I do not know what the stats are, But I know it can be done.

 

[Brad]

I have never had a G tube.But I have a friend who did.
He got it when He was 12 or so as I remember. He kept it
for 4 years or so, He began lifting weights and now 27
He is built very well and is very strong.
He is doing well.

I am sure there are others who will add much more.
I do not know what the stats are, But I know it can be done.

 

[Brad]

<br /> I have never had a G tube.But I have a friend who did.
<br />He got it when He was 12 or so as I remember. He kept it
<br /> for 4 years or so, He began lifting weights and now 27
<br /> He is built very well and is very strong.
<br /> He is doing well.
<br />
<br /> I am sure there are others who will add much more.
<br /> I do not know what the stats are, But I know it can be done.

 

[JazzysMom]

As Brad mentions it has been done.

I can see why the doctors would be concerned. Definitely a lengthy trial without using it & just doing everything orally would be needed before actually having it removed.

If she gets sick & drops wait easily the oral thing might not work so easy. I think that is where the doctors probably worry.

 

[JazzysMom]

As Brad mentions it has been done.

I can see why the doctors would be concerned. Definitely a lengthy trial without using it & just doing everything orally would be needed before actually having it removed.

If she gets sick & drops wait easily the oral thing might not work so easy. I think that is where the doctors probably worry.

 

[JazzysMom]

As Brad mentions it has been done.

I can see why the doctors would be concerned. Definitely a lengthy trial without using it & just doing everything orally would be needed before actually having it removed.

If she gets sick & drops wait easily the oral thing might not work so easy. I think that is where the doctors probably worry.

 

[JazzysMom]

As Brad mentions it has been done.

I can see why the doctors would be concerned. Definitely a lengthy trial without using it & just doing everything orally would be needed before actually having it removed.

If she gets sick & drops wait easily the oral thing might not work so easy. I think that is where the doctors probably worry.

 

[JazzysMom]

As Brad mentions it has been done.
<br />
<br />I can see why the doctors would be concerned. Definitely a lengthy trial without using it & just doing everything orally would be needed before actually having it removed.
<br />
<br />If she gets sick & drops wait easily the oral thing might not work so easy. I think that is where the doctors probably worry.
<br />
<br />

 

[lrbloms]

I had a gtube placed when I was 12. I gained 30 pounds in a year. Then I quit doing night feedings. I didn't use my tube for two years in which I was involved in sports and high school activities. I was able to maintain my weight, so my doctors allowed me to take it out. I am now almost 29 and have yet to have weight problems. I actually have to montitor my intake as to not put on too much weight. Hope this helps your decision.

 

[lrbloms]

I had a gtube placed when I was 12. I gained 30 pounds in a year. Then I quit doing night feedings. I didn't use my tube for two years in which I was involved in sports and high school activities. I was able to maintain my weight, so my doctors allowed me to take it out. I am now almost 29 and have yet to have weight problems. I actually have to montitor my intake as to not put on too much weight. Hope this helps your decision.

 

[lrbloms]

I had a gtube placed when I was 12. I gained 30 pounds in a year. Then I quit doing night feedings. I didn't use my tube for two years in which I was involved in sports and high school activities. I was able to maintain my weight, so my doctors allowed me to take it out. I am now almost 29 and have yet to have weight problems. I actually have to montitor my intake as to not put on too much weight. Hope this helps your decision.

 

[lrbloms]

I had a gtube placed when I was 12. I gained 30 pounds in a year. Then I quit doing night feedings. I didn't use my tube for two years in which I was involved in sports and high school activities. I was able to maintain my weight, so my doctors allowed me to take it out. I am now almost 29 and have yet to have weight problems. I actually have to montitor my intake as to not put on too much weight. Hope this helps your decision.

 

[lrbloms]

I had a gtube placed when I was 12. I gained 30 pounds in a year. Then I quit doing night feedings. I didn't use my tube for two years in which I was involved in sports and high school activities. I was able to maintain my weight, so my doctors allowed me to take it out. I am now almost 29 and have yet to have weight problems. I actually have to montitor my intake as to not put on too much weight. Hope this helps your decision.