I've been reading about the Whole30 diet/approach to eating (http://whole30.com/whole30-program-rules/ and in the book, "It Starts With Food") and could not find a thread on this forum. Whether based on food sensitivities, overactive immune systems, etc., inflammation is a true enemy for the general population for sure and certainly for CFers. Adopting their recommended nutritional approach would be extremely difficult, but what I'm reading hits home regarding fighting systemic inflammation--a key problem in CF. Of course there are loads of testimonials from people with serious disease (not CF) who saw incredible improvement on their 30-day challenge, but every diet book ALWAYS has compelling testimonials. It sells books and products, right.
My concern for my two CFers is with their nutrient absorption and weight GAIN, not loss. For my DDs' entire lives, they've been encouraged by their CF team to eat, eat, EAT calorie-rich foods regardless of where the calories came from. This has always made me feel uncomfortable (the amount of processed food they eat), but I was consistently reassured it was fine. I don't think it's fine!!!! My younger DD, 15yo, has been on tube feedings overnight for 7 years to get an additional 1000+ calories (towards 3,000 calorie daily goal). Our insurance this year stopped covering enteral feeding and I'm left with how to make up the calories when there's only so much food one can comfortably eat. DD lost 3 pounds in the 3 months she hasn't been doing the feeds. She got a nissen fundoplication 7 years ago and has since had an issue with the volume of food she can eat and gets queasy easily
Now how to make up calories without loading her up with JUNK!!
Would love to hear what you all have to say!
My concern for my two CFers is with their nutrient absorption and weight GAIN, not loss. For my DDs' entire lives, they've been encouraged by their CF team to eat, eat, EAT calorie-rich foods regardless of where the calories came from. This has always made me feel uncomfortable (the amount of processed food they eat), but I was consistently reassured it was fine. I don't think it's fine!!!! My younger DD, 15yo, has been on tube feedings overnight for 7 years to get an additional 1000+ calories (towards 3,000 calorie daily goal). Our insurance this year stopped covering enteral feeding and I'm left with how to make up the calories when there's only so much food one can comfortably eat. DD lost 3 pounds in the 3 months she hasn't been doing the feeds. She got a nissen fundoplication 7 years ago and has since had an issue with the volume of food she can eat and gets queasy easily
Now how to make up calories without loading her up with JUNK!! Would love to hear what you all have to say!