Have doctor appointment tomorrow.

snowcone200 · Jun 30, 2008

I am really scared of going. It's been on my mind lately about seeing if I could stop treatment for my cystic fibrosis. I am having to go see the doctor 2 days earlier because I been having problems lately. If stopping treatment wasn't on my mind I could choose to either do home I.V antibiotics or go into the hospital. But with me wanting to stop treatment I don't know how things will go tomorrow. I am not really sick to the point where I get short of breath getting out of bed, but I know as of now I have a lung infection going possibly and my PFTS have been on the decline the past year or two. What I am asking here is what I Should do, I want to avoid going to the doctor so bad I don't want to disappoint them. But stopping treatment is something I feel like is right for me to do now at least. I don't know, I know I still need time to think probably.

But I've already started cutting ties with people who are close to me. The only person I ain't stop talking to is my mom but that because I live with her. I am 19 years old but she still helps me make appointments and helps me talk to my doctors about how I been doing and what I need. I know if I go tomorrow and talk about this stopping treatment stuff I will get a lot of criticism from my doctor because of course they don't wanna give up but I do. They all know I have problems with depression and I don't want them to just brush aside my choice thinking I am just choosing this way because I am suffering from depression. Also like I said earlier in this topic I am not really really sick. And I know even with stopping treatment suddenly now I could last a few years maybe not sure though. I guess what I am asking is what do you think I should do or handle this appointment tomorrow.

snowcone200 · Jun 30, 2008

I am really scared of going. It's been on my mind lately about seeing if I could stop treatment for my cystic fibrosis. I am having to go see the doctor 2 days earlier because I been having problems lately. If stopping treatment wasn't on my mind I could choose to either do home I.V antibiotics or go into the hospital. But with me wanting to stop treatment I don't know how things will go tomorrow. I am not really sick to the point where I get short of breath getting out of bed, but I know as of now I have a lung infection going possibly and my PFTS have been on the decline the past year or two. What I am asking here is what I Should do, I want to avoid going to the doctor so bad I don't want to disappoint them. But stopping treatment is something I feel like is right for me to do now at least. I don't know, I know I still need time to think probably.

But I've already started cutting ties with people who are close to me. The only person I ain't stop talking to is my mom but that because I live with her. I am 19 years old but she still helps me make appointments and helps me talk to my doctors about how I been doing and what I need. I know if I go tomorrow and talk about this stopping treatment stuff I will get a lot of criticism from my doctor because of course they don't wanna give up but I do. They all know I have problems with depression and I don't want them to just brush aside my choice thinking I am just choosing this way because I am suffering from depression. Also like I said earlier in this topic I am not really really sick. And I know even with stopping treatment suddenly now I could last a few years maybe not sure though. I guess what I am asking is what do you think I should do or handle this appointment tomorrow.

snowcone200 · Jun 30, 2008

I am really scared of going. It's been on my mind lately about seeing if I could stop treatment for my cystic fibrosis. I am having to go see the doctor 2 days earlier because I been having problems lately. If stopping treatment wasn't on my mind I could choose to either do home I.V antibiotics or go into the hospital. But with me wanting to stop treatment I don't know how things will go tomorrow. I am not really sick to the point where I get short of breath getting out of bed, but I know as of now I have a lung infection going possibly and my PFTS have been on the decline the past year or two. What I am asking here is what I Should do, I want to avoid going to the doctor so bad I don't want to disappoint them. But stopping treatment is something I feel like is right for me to do now at least. I don't know, I know I still need time to think probably.

But I've already started cutting ties with people who are close to me. The only person I ain't stop talking to is my mom but that because I live with her. I am 19 years old but she still helps me make appointments and helps me talk to my doctors about how I been doing and what I need. I know if I go tomorrow and talk about this stopping treatment stuff I will get a lot of criticism from my doctor because of course they don't wanna give up but I do. They all know I have problems with depression and I don't want them to just brush aside my choice thinking I am just choosing this way because I am suffering from depression. Also like I said earlier in this topic I am not really really sick. And I know even with stopping treatment suddenly now I could last a few years maybe not sure though. I guess what I am asking is what do you think I should do or handle this appointment tomorrow.

snowcone200 · Jun 30, 2008

I am really scared of going. It's been on my mind lately about seeing if I could stop treatment for my cystic fibrosis. I am having to go see the doctor 2 days earlier because I been having problems lately. If stopping treatment wasn't on my mind I could choose to either do home I.V antibiotics or go into the hospital. But with me wanting to stop treatment I don't know how things will go tomorrow. I am not really sick to the point where I get short of breath getting out of bed, but I know as of now I have a lung infection going possibly and my PFTS have been on the decline the past year or two. What I am asking here is what I Should do, I want to avoid going to the doctor so bad I don't want to disappoint them. But stopping treatment is something I feel like is right for me to do now at least. I don't know, I know I still need time to think probably.

But I've already started cutting ties with people who are close to me. The only person I ain't stop talking to is my mom but that because I live with her. I am 19 years old but she still helps me make appointments and helps me talk to my doctors about how I been doing and what I need. I know if I go tomorrow and talk about this stopping treatment stuff I will get a lot of criticism from my doctor because of course they don't wanna give up but I do. They all know I have problems with depression and I don't want them to just brush aside my choice thinking I am just choosing this way because I am suffering from depression. Also like I said earlier in this topic I am not really really sick. And I know even with stopping treatment suddenly now I could last a few years maybe not sure though. I guess what I am asking is what do you think I should do or handle this appointment tomorrow.

snowcone200 · Jun 30, 2008

I am really scared of going. It's been on my mind lately about seeing if I could stop treatment for my cystic fibrosis. I am having to go see the doctor 2 days earlier because I been having problems lately. If stopping treatment wasn't on my mind I could choose to either do home I.V antibiotics or go into the hospital. But with me wanting to stop treatment I don't know how things will go tomorrow. I am not really sick to the point where I get short of breath getting out of bed, but I know as of now I have a lung infection going possibly and my PFTS have been on the decline the past year or two. What I am asking here is what I Should do, I want to avoid going to the doctor so bad I don't want to disappoint them. But stopping treatment is something I feel like is right for me to do now at least. I don't know, I know I still need time to think probably.
 
 But I've already started cutting ties with people who are close to me. The only person I ain't stop talking to is my mom but that because I live with her. I am 19 years old but she still helps me make appointments and helps me talk to my doctors about how I been doing and what I need. I know if I go tomorrow and talk about this stopping treatment stuff I will get a lot of criticism from my doctor because of course they don't wanna give up but I do. They all know I have problems with depression and I don't want them to just brush aside my choice thinking I am just choosing this way because I am suffering from depression. Also like I said earlier in this topic I am not really really sick. And I know even with stopping treatment suddenly now I could last a few years maybe not sure though. I guess what I am asking is what do you think I should do or handle this appointment tomorrow.

Skye · Jun 30, 2008

I doubt you will find anyone on this board who will tell you to stop your treatment if that is the choice you want to make. My advice would to be oppen and honest with your doctors and your care-giver.....your mom deserves that honesty. I know that you don't want depression to be figured in the mix.....that is not an easy one to disregard though and you need to consider it even if you feel it is not a huge contributor to your decision. You should also consider some counseling. I think others stated in your last post that you have some misinformation about end-stage CF. Please don't make a decision that a year from now or 5 years from now you wish you had not made. Please let others around you know how discouraged you are and let them know what you are thinking.

Skye · Jun 30, 2008

I doubt you will find anyone on this board who will tell you to stop your treatment if that is the choice you want to make. My advice would to be oppen and honest with your doctors and your care-giver.....your mom deserves that honesty. I know that you don't want depression to be figured in the mix.....that is not an easy one to disregard though and you need to consider it even if you feel it is not a huge contributor to your decision. You should also consider some counseling. I think others stated in your last post that you have some misinformation about end-stage CF. Please don't make a decision that a year from now or 5 years from now you wish you had not made. Please let others around you know how discouraged you are and let them know what you are thinking.

Skye · Jun 30, 2008

I doubt you will find anyone on this board who will tell you to stop your treatment if that is the choice you want to make. My advice would to be oppen and honest with your doctors and your care-giver.....your mom deserves that honesty. I know that you don't want depression to be figured in the mix.....that is not an easy one to disregard though and you need to consider it even if you feel it is not a huge contributor to your decision. You should also consider some counseling. I think others stated in your last post that you have some misinformation about end-stage CF. Please don't make a decision that a year from now or 5 years from now you wish you had not made. Please let others around you know how discouraged you are and let them know what you are thinking.

Skye · Jun 30, 2008

I doubt you will find anyone on this board who will tell you to stop your treatment if that is the choice you want to make. My advice would to be oppen and honest with your doctors and your care-giver.....your mom deserves that honesty. I know that you don't want depression to be figured in the mix.....that is not an easy one to disregard though and you need to consider it even if you feel it is not a huge contributor to your decision. You should also consider some counseling. I think others stated in your last post that you have some misinformation about end-stage CF. Please don't make a decision that a year from now or 5 years from now you wish you had not made. Please let others around you know how discouraged you are and let them know what you are thinking.

Skye · Jun 30, 2008

I doubt you will find anyone on this board who will tell you to stop your treatment if that is the choice you want to make. My advice would to be oppen and honest with your doctors and your care-giver.....your mom deserves that honesty. I know that you don't want depression to be figured in the mix.....that is not an easy one to disregard though and you need to consider it even if you feel it is not a huge contributor to your decision. You should also consider some counseling. I think others stated in your last post that you have some misinformation about end-stage CF. Please don't make a decision that a year from now or 5 years from now you wish you had not made. Please let others around you know how discouraged you are and let them know what you are thinking.

Solo · Jun 30, 2008

Well, as Syke has said don't expect anyone on this board to advise you to discount your treatments. With that being said, I'm absolutely certain your doctor's are going to strongly advise against it, if they didn't, what kind of doctor would he be? I remember when I was 17, I informed the doctors' that I was tired of treating my CF and when I became a legal adult I was going to stop. He gave me a serious talk mostly hammering home the fact that once I turn 18 that doesn't mean my CF will go away. If I would've followed through with my little scheme back then, I don't even know if I would be here now, and if I was I'd now I'd regret it. But it's totally your body and your choice, don't let anyone through a guilt trip on you. YOU are the pilot of your own airplane, if you choose to take that plane down, I really don't believe that anyone can tell you otherwise. Good luck!

Solo · Jun 30, 2008

Well, as Syke has said don't expect anyone on this board to advise you to discount your treatments. With that being said, I'm absolutely certain your doctor's are going to strongly advise against it, if they didn't, what kind of doctor would he be? I remember when I was 17, I informed the doctors' that I was tired of treating my CF and when I became a legal adult I was going to stop. He gave me a serious talk mostly hammering home the fact that once I turn 18 that doesn't mean my CF will go away. If I would've followed through with my little scheme back then, I don't even know if I would be here now, and if I was I'd now I'd regret it. But it's totally your body and your choice, don't let anyone through a guilt trip on you. YOU are the pilot of your own airplane, if you choose to take that plane down, I really don't believe that anyone can tell you otherwise. Good luck!

Solo · Jun 30, 2008

Well, as Syke has said don't expect anyone on this board to advise you to discount your treatments. With that being said, I'm absolutely certain your doctor's are going to strongly advise against it, if they didn't, what kind of doctor would he be? I remember when I was 17, I informed the doctors' that I was tired of treating my CF and when I became a legal adult I was going to stop. He gave me a serious talk mostly hammering home the fact that once I turn 18 that doesn't mean my CF will go away. If I would've followed through with my little scheme back then, I don't even know if I would be here now, and if I was I'd now I'd regret it. But it's totally your body and your choice, don't let anyone through a guilt trip on you. YOU are the pilot of your own airplane, if you choose to take that plane down, I really don't believe that anyone can tell you otherwise. Good luck!

Solo · Jun 30, 2008

Well, as Syke has said don't expect anyone on this board to advise you to discount your treatments. With that being said, I'm absolutely certain your doctor's are going to strongly advise against it, if they didn't, what kind of doctor would he be? I remember when I was 17, I informed the doctors' that I was tired of treating my CF and when I became a legal adult I was going to stop. He gave me a serious talk mostly hammering home the fact that once I turn 18 that doesn't mean my CF will go away. If I would've followed through with my little scheme back then, I don't even know if I would be here now, and if I was I'd now I'd regret it. But it's totally your body and your choice, don't let anyone through a guilt trip on you. YOU are the pilot of your own airplane, if you choose to take that plane down, I really don't believe that anyone can tell you otherwise. Good luck!

Solo · Jun 30, 2008

Well, as Syke has said don't expect anyone on this board to advise you to discount your treatments. With that being said, I'm absolutely certain your doctor's are going to strongly advise against it, if they didn't, what kind of doctor would he be? I remember when I was 17, I informed the doctors' that I was tired of treating my CF and when I became a legal adult I was going to stop. He gave me a serious talk mostly hammering home the fact that once I turn 18 that doesn't mean my CF will go away. If I would've followed through with my little scheme back then, I don't even know if I would be here now, and if I was I'd now I'd regret it. But it's totally your body and your choice, don't let anyone through a guilt trip on you. YOU are the pilot of your own airplane, if you choose to take that plane down, I really don't believe that anyone can tell you otherwise. Good luck!

AnD · Jun 30, 2008

I think that if you want your doctor and friends and family to take you seriously, you should get treated for your depression before discontinuing your treatments. Let them know what you are thinking (discontinuing treatment) but tell them that you are willing to get treated for your depression first. They will think it is all about your being depressed- who wouldn't? And maybe you will even change your mind once you have your mind and emotions in a better place. Depression can affect your body's health too- alot.

Being depressed is kinda like being sick with cf- It can happen slowly, and you get so used to being on the low end, you don't realize how far down you are until you get treated and get better.

Like the others have said, be honest above all- you should always tell your doctor the truth anyways, and your mother deserves it. Good luck with your appointment, and I'll be praying for you.

AnD · Jun 30, 2008

I think that if you want your doctor and friends and family to take you seriously, you should get treated for your depression before discontinuing your treatments. Let them know what you are thinking (discontinuing treatment) but tell them that you are willing to get treated for your depression first. They will think it is all about your being depressed- who wouldn't? And maybe you will even change your mind once you have your mind and emotions in a better place. Depression can affect your body's health too- alot.

Being depressed is kinda like being sick with cf- It can happen slowly, and you get so used to being on the low end, you don't realize how far down you are until you get treated and get better.

Like the others have said, be honest above all- you should always tell your doctor the truth anyways, and your mother deserves it. Good luck with your appointment, and I'll be praying for you.

AnD · Jun 30, 2008

I think that if you want your doctor and friends and family to take you seriously, you should get treated for your depression before discontinuing your treatments. Let them know what you are thinking (discontinuing treatment) but tell them that you are willing to get treated for your depression first. They will think it is all about your being depressed- who wouldn't? And maybe you will even change your mind once you have your mind and emotions in a better place. Depression can affect your body's health too- alot.

Being depressed is kinda like being sick with cf- It can happen slowly, and you get so used to being on the low end, you don't realize how far down you are until you get treated and get better.

Like the others have said, be honest above all- you should always tell your doctor the truth anyways, and your mother deserves it. Good luck with your appointment, and I'll be praying for you.

AnD · Jun 30, 2008

I think that if you want your doctor and friends and family to take you seriously, you should get treated for your depression before discontinuing your treatments. Let them know what you are thinking (discontinuing treatment) but tell them that you are willing to get treated for your depression first. They will think it is all about your being depressed- who wouldn't? And maybe you will even change your mind once you have your mind and emotions in a better place. Depression can affect your body's health too- alot.

Being depressed is kinda like being sick with cf- It can happen slowly, and you get so used to being on the low end, you don't realize how far down you are until you get treated and get better.

Like the others have said, be honest above all- you should always tell your doctor the truth anyways, and your mother deserves it. Good luck with your appointment, and I'll be praying for you.

AnD · Jun 30, 2008

I think that if you want your doctor and friends and family to take you seriously, you should get treated for your depression before discontinuing your treatments. Let them know what you are thinking (discontinuing treatment) but tell them that you are willing to get treated for your depression first. They will think it is all about your being depressed- who wouldn't? And maybe you will even change your mind once you have your mind and emotions in a better place. Depression can affect your body's health too- alot.
 
 Being depressed is kinda like being sick with cf- It can happen slowly, and you get so used to being on the low end, you don't realize how far down you are until you get treated and get better.
 
 Like the others have said, be honest above all- you should always tell your doctor the truth anyways, and your mother deserves it. Good luck with your appointment, and I'll be praying for you.

Have doctor appointment tomorrow.

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