Have you become more introverted and anti-social as your health declines?

nocode

New member
Hi,
I have never been very good at keeping friends around, I guess I have always enjoyed being on my own. However, I still went out a lot and interacted with others quite a lot. As time went by, I am now around 30% FEV1 and I have literally lost all interest in being with other people. I am taking anti-depressants and I no longer have depressive thoughts, quite the contrary, I feel comfortable with my life. I also live with my boyfriend so it's not like I'm completely isolated from the world. But my family says that it's not normal/ healthy to go through life without intimate friendships. I think this is also related to my health, but I'm not sure anymore.. I am a 29 year old female.

So, what role does your health play in your social life?

Vera
 
S

setLOVEfree

Guest
You could literally be describing my life. I don't know if its because I can't fit in because I can't work full time so I can't contribute to a conversation regarding work. I'm physically unable to do physical activities such as hiking , water skiing, or anything that gets me out of breath.
I very much keep to myself. I have very few friends and I'm ok with that most of the time. My best friend passed away unexpectedly. So that was tough. I kinda feel alone now. But like you I live with my boyfriend. That's even hard at times because I cannot contribute financially as he can because I only get disability since I cannot currently work. My fev1 dropped to 22% so that was a major hit.
So yes, I'm like you. I keep to myself a lot. But overall I'm pretty much ok with that.
Kelli
35 years old
 
I haven't literally lost all interest in being with other people it's just harder to do things social. My FeVI is between 26-30% and I have been in the hospital 5 times in the last year. Each stint last 3 weeks plus a week or so of being sick and other week of recovery so CF takes away about 6 weeks of my life each time.
I am not sad because i know people love me and i can't be around them but it makes it hard to be involved in things socail. i can't handle nights as well or too much activity in the week. i am afraid to plan and pay for things ie camping trips 6 months in the future because i don't know if i am going to be sick or well and i will loose money on deposits if i am sick.
i am single and would like to be more involed in my church's single group but it gets hard when i am constatly sick.
most of my friends and family have kids and families so it's hard to do things with them. whenever i get togehter with married girls, all they talk about are their kids and husband. i get bored with those two topics and don't tend to go.
i do try to meet meet but they do some crazy things or annoying things that make me not what to be friends with them. ie. this guy, on my birthday, gave me a card that said happy birthday to my sister but later he disclosed that he thought we were dating. we are not. the last thing anything with him was in the summer and i hardly talk to the guy expect on sundays when he goes to church. but then i keep the talk to a minium because i don't want to encourage him
i guess, I am a loner with a handful of good friends but it gets a little lonely from time to time bc they have boyfriends, families and jobs.
i guess this is why i am drawn to this website because i can identify with many who knows excatly what i am thinking and feeling. I wish i can meet more people but don't have the energy.
 

bigstar

New member
I think i feel for you guys. Im a loner too. I know many people but i have a few real friends. I dont mind staying in by myself. I enjoy my own company. I find so many people extremely annoying as they keep bugging me with their huge dramas (boyfriend troubles, friend troubles, money problems, gossips etc) I find all these things so lame and boring and ANNOYING. Especially when i dont ever talk to these people about my problems because i dont think they would understand and i dont trust them either. And as Iamqueenofeverything said "i am afraid to plan and pay for things ie camping trips 6 months in the future" because i tend to avoid those kinds of situations that i cant do my meds and im not sure if this is the right way to spend my money.

"i guess, I am a loner with a handful of good friends but it gets a little lonely from time to time bc they have boyfriends, families and jobs." Exactly! However i dont think theres something wrong with enjoying your own company. Maybe there are not the right people in our lives at the moment and we should wait until they come along. I used to get really lonely sometimes when i was living on my own (college) because all my friends had boyfriends and enjoyed wild nights out which i was bored and unwilling to go through. Now that im back with my parents (that what we do in Greece - especially now with the economic crisis) i dont get lonely. I enjoy being with people that can listen and make me laugh and have a good time with. But i definitely prefer being alone than torturing myself by hanging out with people i dont like. Life is too short for this.
 

beautifulsoul

Super Moderator
I think this is a good subject to be brought to attention.

I'm in a similar financial situation like Kelli is. (setLOVEfree) I live with my boyfriend as well. I often become quite lonely while he's at work for 9 hours a day, 5 days a week. I don't really have any friends that I actually hang out with or share a close bond. Most of the people I consider friends are people I've met online (on here, face book and other personal hobby websites) After being secluded for so long before my transplant and even for a little bit afterwards, I became used to it. It was tough for me at such a young age (13) I think that has effected me a bit with being anti social as I've grown up. It doesn't bother me too much anymore because my boyfriend isn't a very social person himself besides when he is working. So, we have each other :)

I enjoy my own company most of the time. I prefer to do certain things alone. My artistic talents keep me busy! bigstar mentioned being annoyed by others drama, gossip and personal problems. I feel like I'm much more mature than other young women my age therefore, such things as boyfriend troubles, gossip and pimples don't really interest me and can be annoying sometimes. (not always) I do care for my friends and I try to be there to listen. I tend to befriend people that are older than me. There is more to talk about in general and I feel like they are more understanding of certain situations.
 

nmw0615

New member
I can only echo what others have said. However, I will add that I started out as an introverted person, but once my health started to decline, I became more so. Sometimes it is because I just feel too tired and worn down to go out and enjoy things. Other times it is because I feel I just don't connect well with others my age. I tend to let drama pass me by, choosing to focus on the things I can affect and change instead of things I can't.

I've found a few friends in a writing group I belong to. They are all older than I am by quite a bit, but I don't feel that's too important. I like these people and I know that since I can trust them to read what I write, I trust them with pretty much anything else.

My grandparents constantly try to get me to join a church group, hoping I will meet new people there. Unfortunately, my faith beliefs don't really align with those types of groups and I know I'd end up feeling more out of touch than I already do.

In the end, I do have friends. Do I wish I could be a little more social and extroverted? Sure, but I also know that I'd find myself annoyed and frustrated more often than not. I'm content with how my life is at the moment and that's what is important to me.
 

nocode

New member
Thank you all for your feedback. It seems we all feel very similarly and it's nice to know this sort of thing is probably common. If I think about it, there are a lot of people who do not suffer from any health conditions and yet are very introverted and prefer their own company. I just got so used to "blaming" cf for everything that happens in my life (good and bad) that sometimes I do not know where to draw the line between "me" and "cf", that's why I tend to see myself as "the person with cf". It can all get pretty confusing.

Back to the main topic - On one hand, I feel that I don't want to hang out with others because I don't have much energy, because it's hard to keep up with them, or - like setLOVEfree said - I don't have a job anymore that I can talk about, etc. On the other, I remember when I was in my teens/early 20s and I had way more energy than now, I still preferred to do the so called social activities on my own, so I guess it's a bit of both.
 

regina65

New member
I am the same way the only people I hang out with is my family . It helps that my girls are grown . We like to shop together and do crafts. I love to sew and make my granddaughter clothes . That is a big past time. But as far as doing a lot of the things my boyfriend likes to do I cant because most of our friends smoke and they go 4 wheeling which I don't care for it is dangerous for one, and its always dusty or in a lot of water. I am terrified of water. And you have to be careful too because people will go shopping with the flu or whatever with no consideration for others .
 

beautifulsoul

Super Moderator
Back to the main topic - On one hand, I feel that I don't want to hang out with others because I don't have much energy, because it's hard to keep up with them, or - like setLOVEfree said - I don't have a job anymore that I can talk about, etc. On the other, I remember when I was in my teens/early 20s and I had way more energy than now, I still preferred to do the so called social activities on my own, so I guess it's a bit of both.

I differ just a bit from you ladies. I have been transplanted so being anti-social or introverted doesn't really apply because of lack of physical activity. (don't get me wrong, I use my new lungs!) Mine is more like, I stopped going to school when I was 12 and really missed a lot of high school as well. I never got a job after I graduated so that is more to the reason why I personally enjoy my own company. I agree with the working situation mentioned. If you have no real job then there isn't much conversation going on. Everyone I've talked with has said they have met many of their past and present friends AT work. Even my boyfriend has told me how he met all of his current friends. When he arrives home from work he is usually telling me about how his day was or if anything happened (good or bad) I can understand to a certain degree how some of you may feel even though I haven't worked before.

I'm glad you were able to receive some responses Vera :)
 

Twistofchaos

New member
Some extraverted CF'ers seem to be doing ok in this area but I think if you have some disposition of being introverted then CF is almost a sure way for a person to end up a quirky loner.

For me there seems to be always this duality in socialising.
One, people don't know about my CF and I can talk on a fairly straight level but I feel I am hiding this big dark secret, where I have to be very careful with my words and behaviour and I am putting on an act. Not much fun.
Two, people know about my CF but it immediately throws up this wall of inequality and just when I start to feel almost a little understood, like clockwork once in a while there'll come these completely idiotic misconceptions to show infact there's no understanding at all and I'm back feeling very alone and maybe betrayed. Also not much fun.

Then they say "we all got something" and that's true to some extent but having to grow up with the perspective that a life with CF offers can make us grow up a little different than our peers or atleast come to have different appreciations.
Ie.. I can't seem to do smalltalk. At all.. I just can't talk about cellphones, cars, football or gossip or within 1 minute do my best to steer it to some deep philosophical conversation or..I can put on a comedic show but even there I do my best to go full on confrontational and wish to explore the craziness and depths of the comedic topic at hand.

When I do something I seem to have this urge to find substance or something meaningful because there's this voice in the back of my head telling me to get the most out of whatever situation or person and I think it has a lot to do with growing up with the idea of a limited lifespan.

But that's kinda good and I like it.. It's just hard to find people that share this sentiment. (they're out there, but they're hard to find.)
Hmm..talking to others with CF can be quite nice but it's like we wish to overcompensate what we can't do with other people and it usually ends up going full on competitive with our CF and all that we know about it.

But being a loner isn't bad. Knowing you can't really rely on others is a good lesson and life has a LOT to offer regardless. Some days it's rough but I imagine keeping up with a busy social life and it's pressure also has it's moments.
 

markinohio

New member
Twistifchoas, I don't know if it's CF related thing, but you have described to to a tee. I am not the talker or social butterfly in our family. When we go places, my wife does most of the talking. I very much do not like the "small talk" or "chit chat". I considered myself a soft talker or mumbler and am often asked to repeat myself when talking. I seldom talk in a group settting and am quite content to be a listener. I do not have alot of friends and I am okay with that. I like being alone and not talking, but I also love that I have a wife and two boys whom I will talk to with no problem.
 

dmac

New member
Hi folks, I hope I'm not too late to join the conversation. My story is a little bit different in that I'm 62. I've always enjoyed either the company of others or my own company. I was much more sociable when I was younger, but still limited in many ways due to the illness. I loved playing softball in school but had to stop by the 7th grade as I would cough up blood every time I tried to run. So I would find other methods of enjoyment with others. I was able to work part time until I was 45 -- I was an assistant librarian and loved the interaction with people. When the doctor told me it was time for me to stop working because it was too much for me, getting sick too often and all, it was a great shock to go from my job to essentially nothing. Working through that life changing time was difficult. I remember being depressed, frustrated, and so on. But then I decided ok, this is a new chapter in my life. Starting over. So, what do I do now. I've always kind of wanted to write, and I realized I now had the perfect opportunity. Since then I've written 5 books and am working on my 6th. I also write articles for two community newsletters - one is for the Cape Cod COPD Support Group and the other for the DY Women's club which is a community organization that does fundraising for places like the shelter for women and children who are victims of domestic abuse. I guess what I'm trying to show is that just because our life seems to be forcing us to be "alone" it doesn't mean we can't interact in some new way. I go to the women's club meetings (held once a month Sept - May) when I am healthy enough. This winter I was on iv antibiotics then oral ones for most of the winter so I missed several months but stayed in touch with the gals through emails, letters and calls. I probably wouldn't have gone during the winter anyway as it was flu season. We do have to be careful. The gals all understand about my having CF and that it limits my involvement but they make me feel included just the same and I contribute in ways that I'm able. I would like to suggest the idea of seeing if there is a women's club in your area. I believe some of you "youngsters" might enjoy the company of older gals -- they are sure to be a good bunch as the clubs are so community oriented, they are all about helping others. It's a good feeling to be part of such an organization. You'll probably be the youngest one there and that'll be fun. If you want to email me to ask more about it, I'd be glad to give you my email address. There's a time to be quiet and alone, we definitely need that -- some weeks I won't go out of the house at all unless it's to the doctor -- but there's also a time to give of ourselves in whatever way we are able. It's a boost to ourselves, mind, body and soul. That's just based on my own experience but I've heard others talk about the lift it gives them. Don't know if any of that is of interest, but wanted to share one more way of dealing with the aloneness we all have to deal with by being different, by our limitations, and the special knowledge that we have -- every moment of life is precious. Thanks for letting me add my thoughts. D.
 

iefisherman

New member
Nocode, I'm a 30 year old male and i went through the same thing. I was married for 8 years and when I got divorced I was afraid of the outside world. When i met my wife i was fairly healthy, nothing holding me back but now i bounce around in the 30% to upper 20%. I didn't have a social life being married and i was happy like that. I found myself alone and afraid of meeting people. The cough always gives it away and you know you cant meet people without some explaination for everything. Plus all the other issues that come along with it. I got the nerve up to ask a girl at work to come over and watch a movie. I was scared as hell. We got talking and we became good friends, and then started dating and she moved in with me shortly after. It was scary to let someone into my life, but when you have some people that know you and accept everything in your life you wont trade it in. Nothing wrong with liking to be alone, but dont sell your self short because you are scared or unsure of what will happen. Most people will understand, and if they don't then you don't need them in your life. Best of luck to you!
 

lilmac1177

New member
i, too, have always been what i call a "homebody" ... i truly enjoy being home w/ my boyfriend (he's also a homebody) and furbabies (they're also homebodies LOL)! i don't necessarily attribute it to having CF so much as i've just always enjoyed it this way. but then, i suppose if anything, i've always said CF helped me in that i was never out partying, drinking, smoking, etc., therefore affecting my health. i'd like to think, in some way, that it's bought me a few extra years!

i do have friends, each and every one knows i have CF and have never treated me any differently. those who do like to go out all the time just understand that i don't, but for the most part will still ask even when they know the answer is probably "no". most all my close friends have husbands and children, so it works out well because they don't typically go out to party either. i'd just as soon spend time w/ my best friend and her family ... and i've adopted her children as my own! haha and, of course, most my fellow friends who have CF i've met thru these forums or on Facebook, and i consider them as special as friends i could see everyday! it does help to know we all go thru similar issues, both w/ our disease and personal...
 

azdesertrat

New member
I know I've become much more introverted. It started back in late '04 when my health really started failing.
I still keep in touch with a few of my friends but nothing like I used to. I'm at home most of the time. If I go out its usually to go to a DR app't. or to the pharmacy to pick up a 'script. I think a lot of this is because most of my friends still work.
About the only friend I have that doesn't work is my ATV riding buddy. Every thing has become so expensive now; its hard to dig up the extra money needed to take a quad trip.
I can't say I'm real happy being so introverted either. It sucks. I really liked my job & I enjoyed seeing & talking with my co-workers.
Sometimes I go back to see my former boss. She's always happy to see me BUT: it is a business place & not a social club.
The people I used to work with just can't stop work to shoot the breeze with me.
Oh well...
 

piggylu

New member
Vera, you hit the nail on the head!! I can totally relate to how you feel!!
May i ask what Anti-depressant/s work for any of you? I hVe been on a rollercoaster for a few years trying to find one that helps/works. I am on Paxil now and only notice it helps with anxiety but not much with depression or social issues.
Thanks for any input!!!
 

azdesertrat

New member
I don't take any anti-depressants. I tried several different AD's & they did nothing. I figured, if they don't work, why take them?
My Dog is a real help. I talk to her alot! Call me crazy, I don't care.
She is also good to make me excercise. She is an Australian Cattle Dog & they are very lively! They have to get out & play daily.
I would reccomend a dog for anyone suffering depression. It seems to work for me.
Hope this helps.
 

nocode

New member
piggylu - I am on Zoloft 50 mg daily and it does wonders for me as far as depression goes. But since it doesn't make me feel social I have been wondering if I suffer from social anxiety or if it's just my personality.. that's why I posted this.

azdesertrat - My desire to have a dog is huge but I live in a rented house in the Netherlands and they don't allow pets. I have however agreed with my boyfriend that next time we move we'll absolutely choose a house where they allow pets (I NEED A DOG) and also...no stairs. :)
 
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