Holly,
I thought that I would start a new thread-didn't want to hijack the other one. We are military and our son was born in UT. (excellent clininc also--by the way). When his pulmonologist found out that we were moving here she very stongly recommended that we take Danny to Stanford. She raved about how proactive they are and about how they are always up on the latest treatments. Beacuase of the distance we decoded to go to the clininc at UC Davis--big mistake. After the first clinic visit I knew I hated it. We decided to give it one more try but after the second visit I came home and started calling all the different CF centers in the area. Obviously we chose Stanford. I called and talked with the pediatric nurse coordinator for the clinic. I talked with her for almost an hour and she was very nice and answered all my questions. Her name is Katherine Boyle. If you would like I can get you her number. I'm sure she would be able to give you lots of helpful info. Clinic days are Tues. and Fri. If you call any other day she usually gets back to you pretty quickly. Dr. Moss is our sons dr. He did say that he was taking a sabbatical--so not sure when he will be back, but they do have lots of other docs. The clinic itself is very easy to get to, lots of easy parking, they have a lab right in the clinic building. They are pretty good about being on time for appointments and they try to get you in and out as fast as they can. They will offer you a pager if you prefer not to wait in the waiting room. At our old clinic in UT everyone would gown, mask, and glove when they came into the room. I was a little disappointed that they don't do that here, but maybe UT was one of a few that did that? Anyway, if you would like any more info please let me know!
Nicole
I thought that I would start a new thread-didn't want to hijack the other one. We are military and our son was born in UT. (excellent clininc also--by the way). When his pulmonologist found out that we were moving here she very stongly recommended that we take Danny to Stanford. She raved about how proactive they are and about how they are always up on the latest treatments. Beacuase of the distance we decoded to go to the clininc at UC Davis--big mistake. After the first clinic visit I knew I hated it. We decided to give it one more try but after the second visit I came home and started calling all the different CF centers in the area. Obviously we chose Stanford. I called and talked with the pediatric nurse coordinator for the clinic. I talked with her for almost an hour and she was very nice and answered all my questions. Her name is Katherine Boyle. If you would like I can get you her number. I'm sure she would be able to give you lots of helpful info. Clinic days are Tues. and Fri. If you call any other day she usually gets back to you pretty quickly. Dr. Moss is our sons dr. He did say that he was taking a sabbatical--so not sure when he will be back, but they do have lots of other docs. The clinic itself is very easy to get to, lots of easy parking, they have a lab right in the clinic building. They are pretty good about being on time for appointments and they try to get you in and out as fast as they can. They will offer you a pager if you prefer not to wait in the waiting room. At our old clinic in UT everyone would gown, mask, and glove when they came into the room. I was a little disappointed that they don't do that here, but maybe UT was one of a few that did that? Anyway, if you would like any more info please let me know!
Nicole