S
Sarah0312
Guest
Hello all,
I am desperately in need of advice for my 18 year old nephew and his family.
He was diagnosed only two and a half years ago, so he hasn't really followed the usual path for CF. Since then, he has been in almost constant decline. He has had numerous hospitalizations, all of which a result of neglecting his treatments. It seems that he sees himself as invincible, and because of this he doesn't do his treatments, or does them sporadically.
One of the biggest issues right now is that he is 18, so he cannot be forced to be hospitalized or to do his treatments. He moved out and is living with his girlfriend. He dropped out of college. It just seems like he is giving up.
At his visit with his doctor today he was told that his numbers are so bad that he is a candidate for the transplant list - but that because he doesn't do his treatments, they wouldn't give him the transplant. My sister-in-law is devastated, but is at a total loss about what to do.
We are all so worried. The family is planning an intervention for this weekend.
So, my question: Does anyone have any advice? Or anything that you (as someone who has experience with CF (in any capacity)) think that he should know? Or anything at all???? I would greatly appreciate any guidance.
Thank you so much!
I am desperately in need of advice for my 18 year old nephew and his family.
He was diagnosed only two and a half years ago, so he hasn't really followed the usual path for CF. Since then, he has been in almost constant decline. He has had numerous hospitalizations, all of which a result of neglecting his treatments. It seems that he sees himself as invincible, and because of this he doesn't do his treatments, or does them sporadically.
One of the biggest issues right now is that he is 18, so he cannot be forced to be hospitalized or to do his treatments. He moved out and is living with his girlfriend. He dropped out of college. It just seems like he is giving up.
At his visit with his doctor today he was told that his numbers are so bad that he is a candidate for the transplant list - but that because he doesn't do his treatments, they wouldn't give him the transplant. My sister-in-law is devastated, but is at a total loss about what to do.
We are all so worried. The family is planning an intervention for this weekend.
So, my question: Does anyone have any advice? Or anything that you (as someone who has experience with CF (in any capacity)) think that he should know? Or anything at all???? I would greatly appreciate any guidance.
Thank you so much!