help with infertilty and cf

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ILoveMyCFHubby

New member
Hi, I am 23 years old and my husband who is 27 has CF. I know that most males with CF are sterile but I have heard a lot about some type of in vitro that can be done to possibly allow men w/ CF to have children. My husband and I want a child and are curious about this procedure. If anyone knows anything about it I would greatly appreciate any information you have on it or any links that any of you might know to this type of research. Also I am interested in finding out info about adoption. I read on one cf website that some adoption agencies give patients w/ cf a hard time when it comes to the adoption process. Thanks for your time.ILOVEMYCFHUBBYMelissa N Michael <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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anonymous

New member
I did a little research online & I will paste a website address to this (or will attempt to).Get ready, it's a long one. Hope this helps & good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">http://web.ask.com/redir?bpg=http%3a%2f%2fweb.ask.com%2fweb%3fq%3dinfertility%2bin%2bcystic%2bfibrosis%26o%3d0%26page%3d3&q=infertility+in+cystic+fibrosis&u=http%3a%2f%2ftm.wc.ask.com%2fr%3ft%3dan%26s%3da%26uid%3d0393673CCA8ADCDE3%26sid%3d1BBB0FF48FEE7A404%26qid%3d01AD362B1CB96F42BCB2AFEF7604E58B%26io%3d0%26sv%3dza5cb0db1%26o%3d0%26ask%3dinfertility%2bin%2bcystic%2bfibrosis%26uip%3dcdbcd0a6%26en%3dte%26eo%3d-100%26pt%3dCF%2bCurrents%2b-%2bVolume%2b10%253a%2bNumber%2b3%26ac%3d7%26qs%3d0%26pg%3d3%26ep%3d1%26te_par%3d102%26te_id%3d%26u%3dhttp%3a%2f%2fwww.cfcare.com%2fcfcv10n3.htm&s=a&bu=http%3a%2f%2fwww.cfcare.com%2fcfcv10n3.htm&qte=0&o=0
 
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anonymous

New member
It's not that CF men shoot blanks, most have very active sperm. It's that there is thick mucus in the ducts that block the sperm. Is your husband at an acredited Adult CF clinic? That's very important when it comes to family planning. Check the CF foundation website to find the clinic closest to you if he's not. My clinic offers all kinds of family planning and genetic counseling. They will also be able to put you in touch with fertility experts who have experience with CF. You will want to have yourself screened for CF if you haven't already. Adoption is a wonderful choice. I would suggest discussing it with your CF clinic social worker, they know all kinds of laws or at least where to get the information.Good luck,Debbie22 yr old w/ CF
 
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anonymous

New member
A lot of men with CF have CBAVD, congenital bilateral absense of the vas deferens... they make sperm, but there is no duct for it to mix with the semen. A visit with a urologist could tell you if that is the case.If so - the option is IVF with ICSI. It's expensive - but it works. (They take a bit of a testicle, extract the sperm, inject one sperm into one of your eggs, and implact into the womb).
 
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anonymous

New member
My fiance has CF, he's 26. I have mentioned a few times that he should somehow be tested to see if we will be able to have children. He seems too embarassed to even mention it to his doctor at his regular check-ups. Any ideas on what I should do? Or should I just leave the subject alone? He has said he is scared we will find out that we can't have children and that I won't want to marry him anymore. I have tried to assure him that is not the case and that I feel I should know going in to our marriage our options about children, if we have any. I would appreciate any help or advice. Thanks.
 
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anonymous

New member
I think you are absolutly right. I know your fiance is embarassed and frightened, but he is being selfish. YOu have every right to know what the options are. On the flip side you need to be genetically screened with a blood test to see if you are a CF carrier, even if there is no CF in your family history. I know you may sometimes avoid topics beacuse you don't want to upset him. Perhaps discuss this with a family planning counselor togeather. However, since you are already planning to wed, it might be something to discuss after marriage. He WILL need to be checked (and so must you), but if you two are already planning a life togeather it shouldn't matter. There are many options open to CF men. If he is at an acredited Adult CF clinic, they should be able to advise you both. My clinic has a wonderful social worker who has office hours just for family members and spouses of patients.Debbie22 w/ CF
 
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