HELP!!

[cysticfibrosisgirl]

Hey,

My name is Anika the doctors said I had cystic fibrosis and now they say they are not sure!!! I am soooo mad about all this.. I have no clue what to do anymore! I take 15 enzymes with everything I eat.. But I am having all I can do to even eat. My doctor WILL NOT EVEN LET ME DO NG-FEEDINGS SO I CAN EAT... All my food goes right thur me in my stools... I am sooo hungry I could cry.. They won't even put me in the hospital.. My stools have oil and mucus comming out all over!! I have lost 10 pounds and I have not been able to eat for weeks..

I sad what if I die... I am thinking the doctors want me to die now becuase they will not help me!!! They don't care what happens to me anymore!!! I know how to put in an NG-tube.. I was shown how at the ER.. But where do I get one if the doctors will not Rx one? Can I buy it on the web? Do any of you guys buy your tubefeeding things on the web??

If so tell me what and where to buy it...

I have the stuff to put in the tubefeeding bags.. I going to pay for it on my own.
I sick of doctors I will do it with out them.... HELP!!!

 

[cysticfibrosisgirl]

Hey,

My name is Anika the doctors said I had cystic fibrosis and now they say they are not sure!!! I am soooo mad about all this.. I have no clue what to do anymore! I take 15 enzymes with everything I eat.. But I am having all I can do to even eat. My doctor WILL NOT EVEN LET ME DO NG-FEEDINGS SO I CAN EAT... All my food goes right thur me in my stools... I am sooo hungry I could cry.. They won't even put me in the hospital.. My stools have oil and mucus comming out all over!! I have lost 10 pounds and I have not been able to eat for weeks..

I sad what if I die... I am thinking the doctors want me to die now becuase they will not help me!!! They don't care what happens to me anymore!!! I know how to put in an NG-tube.. I was shown how at the ER.. But where do I get one if the doctors will not Rx one? Can I buy it on the web? Do any of you guys buy your tubefeeding things on the web??

If so tell me what and where to buy it...

I have the stuff to put in the tubefeeding bags.. I going to pay for it on my own.
I sick of doctors I will do it with out them.... HELP!!!

 

[cysticfibrosisgirl]

Hey,

My name is Anika the doctors said I had cystic fibrosis and now they say they are not sure!!! I am soooo mad about all this.. I have no clue what to do anymore! I take 15 enzymes with everything I eat.. But I am having all I can do to even eat. My doctor WILL NOT EVEN LET ME DO NG-FEEDINGS SO I CAN EAT... All my food goes right thur me in my stools... I am sooo hungry I could cry.. They won't even put me in the hospital.. My stools have oil and mucus comming out all over!! I have lost 10 pounds and I have not been able to eat for weeks..

I sad what if I die... I am thinking the doctors want me to die now becuase they will not help me!!! They don't care what happens to me anymore!!! I know how to put in an NG-tube.. I was shown how at the ER.. But where do I get one if the doctors will not Rx one? Can I buy it on the web? Do any of you guys buy your tubefeeding things on the web??

If so tell me what and where to buy it...

I have the stuff to put in the tubefeeding bags.. I going to pay for it on my own.
I sick of doctors I will do it with out them.... HELP!!!

 

[Ratatosk]

Sorry you're having problems, especially with your new doctor. Are you going to the CF Center? Maybe you could contact the dietician and visit about ways to add more calories or get you interested in food again.

 

[Ratatosk]

Sorry you're having problems, especially with your new doctor. Are you going to the CF Center? Maybe you could contact the dietician and visit about ways to add more calories or get you interested in food again.

 

[Ratatosk]

Sorry you're having problems, especially with your new doctor. Are you going to the CF Center? Maybe you could contact the dietician and visit about ways to add more calories or get you interested in food again.