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help!!
- Thread starter lexmark
- Start date
Our daughter is 3 yrs old and was diagnosed at 2 months. She is doing well and I know the diagnosis is hard but it gets easier.My advice to youListen to the doctors because they know best...but follow your gutt too.Don't skip on therapy.Let him lead a normal life and do the things he has always done.WASH YOUR HANDS to keep germs away.Love him.
My son was diagnosed at birth--I can appreciate your grief---however--you will grow from this--your son is already special--and the meds. and doctors have far more going for us than they did----Paul is 13 now and doing well--------YES do the treatments---sometimes its hard to make ourselves to do what needs to be done because we are tried-but keeping lungs clear is most important--your doctor should have a dietian assigned to you ---- but the more calories the better--------hang in ---it does become part of your day ---<img src="i/expressions/heart.gif" border="0">---also the cf site is most helpful--God Bless and strenghten you--and your son
Again, be sure to keep up with the treatments & CPT. My son is also 3 years old and was diagnosised at 2 months . We've had our typical CF ups & downs. Always go with what you feel your child needs at that particular time & don't back down. The doctors do know what's best fro ypur child, but sometimes you have to be persistant with the nurse. I'm a nurse myself & sometimes we forget that everybody is an individual. You as a parent will begin to know day to day as to how your child is doing. Don't second guess yourself & you'll both be fine!!!
I am 28yrs old I have a 5yr old daughter with CF being scared is ok but you will also learn having a CF child is amazing and a incredible exp. because of her I have a whole new out look on life and we just keep getting stronger and so will you so hang in there and know we are all here if you need anything