hey everyone

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anonymous

New member
Hell everyone my name is aaron. i am 17 and i live in sc. i do not have cystic fibrosis but my gf does and i worry bout her all the time. anyway thats a different topic. i am a seniour in high school and i have a huge year round seniour project i have to do.i was wondering if anyone living with cf on here could help me out. the more interviews i get the better. if you live around the greenville area or know someone living wit cf living round greenville that would like to help me out then i would more then love to contact you sometime. we can just do a simple interview if u like or i can put your cf story into it. whatever you would like to do. i will be attending the great strides cf walk in greenvill in oct. if anyone else is going to the walk and would like to maybe talk to me there that would be great to. the more i get here the better i do. this project decides wether i graduate or not so im trying to do really good. i know its just a dumb school project but any help givin would be much appreciated. contact me at the info below. thanks alot

Email: maise_l12003@yahoo.com
AIM screenname: maise101
 
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AbsintheSorrow

New member
Well I live in onnecticut, but could you use me via online? I'd be happy to help you out with an interview if you can do it online, or on the phone or something. Let me know. You can post back here or IM or email me.
IM= AbsintheSorrow
Email= AbsintheSorrow@yahoo.com
 
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anonymous

New member
Hey Aaron, My name is Steve and i am a 16yr male with cf. I live in pennsylvania but you can also send me emails. My email address is Hellieger1@hotmail.com, Plz email with any questions you have.
 
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tiffanystar

New member
hey aaron its me tiffany (angelstar123678) i just want to tell you that good that you know about cystic fibrosis because not a lot of people know about it.Tell crystal i said hi.
 
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brittandaric

New member
Its wonderful learning about new stuff esspecially since I didnt even know CF excisted intil my nephew was born a couple of years ago. He is the joy how my life !!!! I wonder every night if he will make thru the next day. Will people make fun of him when he goes to school in his later years? He is three years old and started pre-school a couple of weeks ago. He was so excited! He has made new friends and learns new songs every day and comes home so happy and cheerful! Will all that changes when he is older and he starts to understand what is cystic fibrosis? I guess he will start to wonder why he has so much mediciane and the vest to do every day and night! <img src="i/expressions/face-icon-small-confused.gif" border="0">
 
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brittandaric

New member
Hi, I have three year old nephew who just started school and I have a few questions if u dont mind?
How has it been growing up with Cystic Fibrosis? Has it been tough in school? <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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tiffanystar

New member
britt it will change once he gets in the teenage years because people will make fun because of his cough but dont worry cause i live through it everyday i dont care what they think they are not better then anyone else cause no one is perfect
 
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purpleangel28282

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>brittandaric</b></i><br>Hi, I have three year old nephew who just started school and I have a few questions if u dont mind?

How has it been growing up with Cystic Fibrosis? Has it been tough in school? <img src="i/expressions/face-icon-small-smile.gif" border="0"><hr></blockquote>

It's never been bad for me at school. If people notice the fact that I cough a lot they either don't say anything or if they do they've just asked why I cough so much and I tell them that the reason I cough so much is because of CF (I usually have to tell them a little about the disease since most people don't know about it). I've never been teased about it, luckily. As far as growing up with it I suppose it hasn't really been too different than a 'normal' person's life, except that you have to deal with all the treatments and remembering to take your meds. Also be sure that your nephew stays active in sports and things, or doing some type of exercise, it helps keep your lungs clear and when I'm not being active I can feel the difference.
 
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