Hi, I'm new. 40yo male, dx'd at age 35

E

eddieWithMildCF

New member
Just wanted to say hi to everybody. Was dx'd at age 35 due to bilateral absence of the vas deferens which led to a positive sweat test and gene tests. Hopkins said they'd never seen someone in as good of a condition as me at my age. I only have minimal small airway damage, very mild oesteopenia. My mutations are DeltaF508 and 1178C>T. They said they didn't really know anything about 1178. When I google it I don't get anything about CF, just some stuff about that 1178C>T in <a class="l" href="http://www.ncbi.nlm.nih.gov/books/NBK5942/">TARDBP-Related Amyotrophic Lateral Sclerosis</a> which is bizarre. I don't think 1178C>T in the CF gene would have anything to do with other disease conditions, right?
Anyway, hi everybody.
 
E

eddieWithMildCF

New member
Just wanted to say hi to everybody. Was dx'd at age 35 due to bilateral absence of the vas deferens which led to a positive sweat test and gene tests. Hopkins said they'd never seen someone in as good of a condition as me at my age. I only have minimal small airway damage, very mild oesteopenia. My mutations are DeltaF508 and 1178C>T. They said they didn't really know anything about 1178. When I google it I don't get anything about CF, just some stuff about that 1178C>T in <a class="l" href="http://www.ncbi.nlm.nih.gov/books/NBK5942/">TARDBP-Related Amyotrophic Lateral Sclerosis</a> which is bizarre. I don't think 1178C>T in the CF gene would have anything to do with other disease conditions, right?
Anyway, hi everybody.
 
P

Printer

Active member
Welcome Ed.

There is (maybe was) a thread under the Adult postings. It was titled CFers over 50. You will enjoy reading it.

Bill
 
P

Printer

Active member
Welcome Ed.

There is (maybe was) a thread under the Adult postings. It was titled CFers over 50. You will enjoy reading it.

Bill
 
K

kgfrompa

Guest
I am so sorry to here you where DX with CF. I am 55 will be 56 next week.I learn so much from reading all the post.Just want to say Welcome
 
K

kgfrompa

Guest
I am so sorry to here you where DX with CF. I am 55 will be 56 next week.I learn so much from reading all the post.Just want to say Welcome
 
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