Hi

E

elrustad

New member
I just wanted to post a little hi to all on this forum.

I just joined on March 7, 2007. I decided that I need to get more informed on my CF and to share stories.

My oldest set of twins who are now 6 1/2 years old are starting to ask questions about my health, such as, why I go to the University of MN. My son is the one that asks it the most.

I tell him that I go to make sure I stay healthy and so I can come home and play with all of my kids.

He also ask why I go to the heart hospital. I tell him that The University of MN deals with more than hearts. He has been there 3 times for heart surgeries to fix his mitral valve.

So I decided to get more involved. I have also been involved in my care as by taking my meds and excercising but never really educated to let my kids know why the things are the way they are.

Again Hi to all here.
 
E

elrustad

New member
I just wanted to post a little hi to all on this forum.

I just joined on March 7, 2007. I decided that I need to get more informed on my CF and to share stories.

My oldest set of twins who are now 6 1/2 years old are starting to ask questions about my health, such as, why I go to the University of MN. My son is the one that asks it the most.

I tell him that I go to make sure I stay healthy and so I can come home and play with all of my kids.

He also ask why I go to the heart hospital. I tell him that The University of MN deals with more than hearts. He has been there 3 times for heart surgeries to fix his mitral valve.

So I decided to get more involved. I have also been involved in my care as by taking my meds and excercising but never really educated to let my kids know why the things are the way they are.

Again Hi to all here.
 
E

elrustad

New member
I just wanted to post a little hi to all on this forum.

I just joined on March 7, 2007. I decided that I need to get more informed on my CF and to share stories.

My oldest set of twins who are now 6 1/2 years old are starting to ask questions about my health, such as, why I go to the University of MN. My son is the one that asks it the most.

I tell him that I go to make sure I stay healthy and so I can come home and play with all of my kids.

He also ask why I go to the heart hospital. I tell him that The University of MN deals with more than hearts. He has been there 3 times for heart surgeries to fix his mitral valve.

So I decided to get more involved. I have also been involved in my care as by taking my meds and excercising but never really educated to let my kids know why the things are the way they are.

Again Hi to all here.
 
J

JazzysMom

New member
Yes your kids are coming to the age of knowledge. You will find that you must answer many, many questions as they observe things happening even when you thing they are oblivous to them. Its a difficult road to educate them on the whole issue. This has even been a topic of debate on the forum as to how much you tell and at what age. Good Luck and Welcome!
 
J

JazzysMom

New member
Yes your kids are coming to the age of knowledge. You will find that you must answer many, many questions as they observe things happening even when you thing they are oblivous to them. Its a difficult road to educate them on the whole issue. This has even been a topic of debate on the forum as to how much you tell and at what age. Good Luck and Welcome!
 
J

JazzysMom

New member
Yes your kids are coming to the age of knowledge. You will find that you must answer many, many questions as they observe things happening even when you thing they are oblivous to them. Its a difficult road to educate them on the whole issue. This has even been a topic of debate on the forum as to how much you tell and at what age. Good Luck and Welcome!
 
C

CaliSally

New member
I believe Knowledge is power. The more you know and understand, the less likely you will be controlled by fear.

With kids, the info needs to be age appropriate. I don't have kids myself, so I have no idea exactly how you would word things.

Get the family involved with your treatments.... Have them gett the medicine out of the cupboard/ refrigerator.... it will give them a little sense of control over the CF. They will feel like they are helping you. Your family can become closer. If they go to the doctor appointments with you, they will have less fear about what the doctors are doing to you. Our imaginations can run wild with the unknown (ask my husband), especially when younger.

Death is inevitable - with or without CF. The fact is: we can live forever with CF, or we could die tomorrow in a car crash. We don't know how many days are given to us - with or without CF. I think it's important for everyone to understand this, especially your kids.

I'm not really communicating my thoughts properly today, but I hope the gist of it is coming through.

Best wishes
 
C

CaliSally

New member
I believe Knowledge is power. The more you know and understand, the less likely you will be controlled by fear.

With kids, the info needs to be age appropriate. I don't have kids myself, so I have no idea exactly how you would word things.

Get the family involved with your treatments.... Have them gett the medicine out of the cupboard/ refrigerator.... it will give them a little sense of control over the CF. They will feel like they are helping you. Your family can become closer. If they go to the doctor appointments with you, they will have less fear about what the doctors are doing to you. Our imaginations can run wild with the unknown (ask my husband), especially when younger.

Death is inevitable - with or without CF. The fact is: we can live forever with CF, or we could die tomorrow in a car crash. We don't know how many days are given to us - with or without CF. I think it's important for everyone to understand this, especially your kids.

I'm not really communicating my thoughts properly today, but I hope the gist of it is coming through.

Best wishes
 
C

CaliSally

New member
I believe Knowledge is power. The more you know and understand, the less likely you will be controlled by fear.

With kids, the info needs to be age appropriate. I don't have kids myself, so I have no idea exactly how you would word things.

Get the family involved with your treatments.... Have them gett the medicine out of the cupboard/ refrigerator.... it will give them a little sense of control over the CF. They will feel like they are helping you. Your family can become closer. If they go to the doctor appointments with you, they will have less fear about what the doctors are doing to you. Our imaginations can run wild with the unknown (ask my husband), especially when younger.

Death is inevitable - with or without CF. The fact is: we can live forever with CF, or we could die tomorrow in a car crash. We don't know how many days are given to us - with or without CF. I think it's important for everyone to understand this, especially your kids.

I'm not really communicating my thoughts properly today, but I hope the gist of it is coming through.

Best wishes
 
K

kayleesgrandma

New member
Wow, Eric welcome to the family, with your two sets of twins! You will find this a great place to express yourself and ask questions. There are all kinds of people here and they all have different ways of dealing with cf. Some are blunt, some are soft-spoken(if our words could speak out loud), most are wise, and all are helpful. Like everything, there are differing opinions on when to tell your kids, or even the person you're dating, ect. Only YOU know what's best for your kids. The only thing I can say is to let them know how much you love them, and that you are fighting as hard as you can to stay well. As Sally said, let them help and get involved. This wil bring you closer together. Good luck and I look forward t hearing more from you. Get a blog--I'd like toknow about your two wonderful sets of twins!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
K

kayleesgrandma

New member
Wow, Eric welcome to the family, with your two sets of twins! You will find this a great place to express yourself and ask questions. There are all kinds of people here and they all have different ways of dealing with cf. Some are blunt, some are soft-spoken(if our words could speak out loud), most are wise, and all are helpful. Like everything, there are differing opinions on when to tell your kids, or even the person you're dating, ect. Only YOU know what's best for your kids. The only thing I can say is to let them know how much you love them, and that you are fighting as hard as you can to stay well. As Sally said, let them help and get involved. This wil bring you closer together. Good luck and I look forward t hearing more from you. Get a blog--I'd like toknow about your two wonderful sets of twins!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
K

kayleesgrandma

New member
Wow, Eric welcome to the family, with your two sets of twins! You will find this a great place to express yourself and ask questions. There are all kinds of people here and they all have different ways of dealing with cf. Some are blunt, some are soft-spoken(if our words could speak out loud), most are wise, and all are helpful. Like everything, there are differing opinions on when to tell your kids, or even the person you're dating, ect. Only YOU know what's best for your kids. The only thing I can say is to let them know how much you love them, and that you are fighting as hard as you can to stay well. As Sally said, let them help and get involved. This wil bring you closer together. Good luck and I look forward t hearing more from you. Get a blog--I'd like toknow about your two wonderful sets of twins!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
B

beleache

New member
Hi Eric, Welcome to the site, it's a great place to be... lots of info here and plenty of support. As a mom with c/f, i have had some challenges with my youngest son, i have 4 sons and 1 grandson. It can be hard at times to explain to young children, but i think your making a good move by being here and educating yourself not only for your children, but for yourself... God Bless.... Joni.. 55 y/o f w c/f
 
B

beleache

New member
Hi Eric, Welcome to the site, it's a great place to be... lots of info here and plenty of support. As a mom with c/f, i have had some challenges with my youngest son, i have 4 sons and 1 grandson. It can be hard at times to explain to young children, but i think your making a good move by being here and educating yourself not only for your children, but for yourself... God Bless.... Joni.. 55 y/o f w c/f
 
B

beleache

New member
Hi Eric, Welcome to the site, it's a great place to be... lots of info here and plenty of support. As a mom with c/f, i have had some challenges with my youngest son, i have 4 sons and 1 grandson. It can be hard at times to explain to young children, but i think your making a good move by being here and educating yourself not only for your children, but for yourself... God Bless.... Joni.. 55 y/o f w c/f
 
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