History of Cystic Fibrosis

J

jendonl

New member
My DD is in the hospital for a kidney infection. This is only her second hospitalization (the first was for mis-diagnosed Type 1 diabetes.) She went in Monday night and we're keeping our fingers crossed that they will release her tomorrow.

I was struck by several mentions from Nurses or Doctors that she had "a history of Cystic Fibrosis." To me, it seems a strange way to talk about the fact that she has Cystic Fibrosis. Is this just normal medical talk? Just curious.
 
J

jendonl

New member
My DD is in the hospital for a kidney infection. This is only her second hospitalization (the first was for mis-diagnosed Type 1 diabetes.) She went in Monday night and we're keeping our fingers crossed that they will release her tomorrow.

I was struck by several mentions from Nurses or Doctors that she had "a history of Cystic Fibrosis." To me, it seems a strange way to talk about the fact that she has Cystic Fibrosis. Is this just normal medical talk? Just curious.
 
J

jendonl

New member
My DD is in the hospital for a kidney infection. This is only her second hospitalization (the first was for mis-diagnosed Type 1 diabetes.) She went in Monday night and we're keeping our fingers crossed that they will release her tomorrow.
<br />
<br />I was struck by several mentions from Nurses or Doctors that she had "a history of Cystic Fibrosis." To me, it seems a strange way to talk about the fact that she has Cystic Fibrosis. Is this just normal medical talk? Just curious.
 
M

Mommafirst

Guest
LOL -- yeah, that is a weird way of saying it. I'd guess its med speak. But I know some adults around here have mentioned that some doctors taking their history will ask stupid questions like "so when did you get cystic fibrosis?"
 
M

Mommafirst

Guest
LOL -- yeah, that is a weird way of saying it. I'd guess its med speak. But I know some adults around here have mentioned that some doctors taking their history will ask stupid questions like "so when did you get cystic fibrosis?"
 
M

Mommafirst

Guest
LOL -- yeah, that is a weird way of saying it. I'd guess its med speak. But I know some adults around here have mentioned that some doctors taking their history will ask stupid questions like "so when did you get cystic fibrosis?"
 
P

peter

New member
Yo - whoa. I'm in the business and that scenario doesn't warm my confidence. Remember Atul Gawande's "Bell Curve" article? How close are other centers? Hopefully other members of the site or Lurkers will weigh in here. "Small mistakes" now can become problematical. The statement you mention sounds uninformed and not acceptable "medspeak". They aren't utilizing professional sensitivity or knowledge. Are you also saying the same place misdiagnosed Diabetes? Do you mean they initially didn't consider CFRD even though they know your DD has cf? Is the hospital a cf center?
Peter
 
P

peter

New member
Yo - whoa. I'm in the business and that scenario doesn't warm my confidence. Remember Atul Gawande's "Bell Curve" article? How close are other centers? Hopefully other members of the site or Lurkers will weigh in here. "Small mistakes" now can become problematical. The statement you mention sounds uninformed and not acceptable "medspeak". They aren't utilizing professional sensitivity or knowledge. Are you also saying the same place misdiagnosed Diabetes? Do you mean they initially didn't consider CFRD even though they know your DD has cf? Is the hospital a cf center?
Peter
 
P

peter

New member
Yo - whoa. I'm in the business and that scenario doesn't warm my confidence. Remember Atul Gawande's "Bell Curve" article? How close are other centers? Hopefully other members of the site or Lurkers will weigh in here. "Small mistakes" now can become problematical. The statement you mention sounds uninformed and not acceptable "medspeak". They aren't utilizing professional sensitivity or knowledge. Are you also saying the same place misdiagnosed Diabetes? Do you mean they initially didn't consider CFRD even though they know your DD has cf? Is the hospital a cf center?
<br />Peter
 
T

TonyaH

Guest
I know where that would sound very strange, but I think that is just medical lingo for 'cf patient'. If you were to look at transcribed reports, most of them will probably start of by saying something like - "8 year old boy with history of cystic fibrosis presents with ......"

Maybe they weren't downplaying her CF. Maybe it was just a matter of medical terminology vs. lay person speech.
 
T

TonyaH

Guest
I know where that would sound very strange, but I think that is just medical lingo for 'cf patient'. If you were to look at transcribed reports, most of them will probably start of by saying something like - "8 year old boy with history of cystic fibrosis presents with ......"

Maybe they weren't downplaying her CF. Maybe it was just a matter of medical terminology vs. lay person speech.
 
T

TonyaH

Guest
I know where that would sound very strange, but I think that is just medical lingo for 'cf patient'. If you were to look at transcribed reports, most of them will probably start of by saying something like - "8 year old boy with history of cystic fibrosis presents with ......"
<br />
<br />Maybe they weren't downplaying her CF. Maybe it was just a matter of medical terminology vs. lay person speech.
 
H

hmw

New member
I think sometimes it's just a catch-all term, not necessarily an indication of their competence or ability. My daughter has 'a history of' multiple things, some due to cf and some due to other problems, and not all have been present since birth. Especially since her cf wasn't dx'ed since age 7, a question or note like that wouldn't bother me in the presence of otherwise-competent care. Med staff use certain terms when taking a history and don't always think how their questions might sound in context with specific diseases/disorders.

Technically speaking, the term is correct anyway. Your child HAS a hx of CF, one that started when she was born. If it's during rounds you are overhearing the term, the attending will 'recap' your child's current situation to those he/he is working with by rattling off the entire 'history'. CF happens to be a prominent part of it, but not the only part- i.e. it's not the reason she's in the hospital now.
 
H

hmw

New member
I think sometimes it's just a catch-all term, not necessarily an indication of their competence or ability. My daughter has 'a history of' multiple things, some due to cf and some due to other problems, and not all have been present since birth. Especially since her cf wasn't dx'ed since age 7, a question or note like that wouldn't bother me in the presence of otherwise-competent care. Med staff use certain terms when taking a history and don't always think how their questions might sound in context with specific diseases/disorders.

Technically speaking, the term is correct anyway. Your child HAS a hx of CF, one that started when she was born. If it's during rounds you are overhearing the term, the attending will 'recap' your child's current situation to those he/he is working with by rattling off the entire 'history'. CF happens to be a prominent part of it, but not the only part- i.e. it's not the reason she's in the hospital now.
 
H

hmw

New member
I think sometimes it's just a catch-all term, not necessarily an indication of their competence or ability. My daughter has 'a history of' multiple things, some due to cf and some due to other problems, and not all have been present since birth. Especially since her cf wasn't dx'ed since age 7, a question or note like that wouldn't bother me in the presence of otherwise-competent care. Med staff use certain terms when taking a history and don't always think how their questions might sound in context with specific diseases/disorders.
<br />
<br />Technically speaking, the term is correct anyway. Your child HAS a hx of CF, one that started when she was born. If it's during rounds you are overhearing the term, the attending will 'recap' your child's current situation to those he/he is working with by rattling off the entire 'history'. CF happens to be a prominent part of it, but not the only part- i.e. it's not the reason she's in the hospital now.
 
S

SARAHSARAH253

New member
I got one..........On all my sons school papers the school district wrote "John is experiencing Cystic Fibrosis".....WTH! I agree with you completely.

Sarah
 
S

SARAHSARAH253

New member
I got one..........On all my sons school papers the school district wrote "John is experiencing Cystic Fibrosis".....WTH! I agree with you completely.

Sarah
 
S

SARAHSARAH253

New member
I got one..........On all my sons school papers the school district wrote "John is experiencing Cystic Fibrosis".....WTH! I agree with you completely.
<br />
<br />Sarah
 
B

Brad

New member
I'd say thats just medical jargen , lingo.

I used to throw docs out of my room if they asked me
" How Long " I had Cf. Then it hit me. They are Students.
Teach them !
Of course We all know Once a Cfer Always a Cfer.
My guess is that we get at at conception.
It shows up at different times in peoples lives. Mine was 1 1/2 yrs old.
But was not Officially DX until I was 8 although my Mother Nailed it
more than 2 years prior.

I met a pair of female twins who were DX at 54, they
had a No " History " of Cf, But did have some Symptoms their whole life.
But surly they had Cf from Birth, or conception, depending on your view.
 
B

Brad

New member
I'd say thats just medical jargen , lingo.

I used to throw docs out of my room if they asked me
" How Long " I had Cf. Then it hit me. They are Students.
Teach them !
Of course We all know Once a Cfer Always a Cfer.
My guess is that we get at at conception.
It shows up at different times in peoples lives. Mine was 1 1/2 yrs old.
But was not Officially DX until I was 8 although my Mother Nailed it
more than 2 years prior.

I met a pair of female twins who were DX at 54, they
had a No " History " of Cf, But did have some Symptoms their whole life.
But surly they had Cf from Birth, or conception, depending on your view.
 
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