How Do I Make This Decission?

annieop86 · Jan 9, 2009

I went to the doctor again yesterday and he said we have to start talking about lung transplants now. He gave me a whole bunch of literature and told me to think about it and get back to him in a month. I have absolutely no idea how to even begin to think about getting a transplant. Everytime even start to remotely think about it I just start balling with anxiety. My FEV1 is 17% and I know thats really really bad.

Please help me!!! anyone who has had a transplant I would really like to hear how it went for you, all the ups and downs. They told me at the clinic the best way to understand a transplant is to talk to people who have had it. If you message me, I can give you my home phone number, maybe we can talk on the phone or something. Anything would help.

annieop86 · Jan 9, 2009

I went to the doctor again yesterday and he said we have to start talking about lung transplants now. He gave me a whole bunch of literature and told me to think about it and get back to him in a month. I have absolutely no idea how to even begin to think about getting a transplant. Everytime even start to remotely think about it I just start balling with anxiety. My FEV1 is 17% and I know thats really really bad.

Please help me!!! anyone who has had a transplant I would really like to hear how it went for you, all the ups and downs. They told me at the clinic the best way to understand a transplant is to talk to people who have had it. If you message me, I can give you my home phone number, maybe we can talk on the phone or something. Anything would help.

annieop86 · Jan 9, 2009

I went to the doctor again yesterday and he said we have to start talking about lung transplants now. He gave me a whole bunch of literature and told me to think about it and get back to him in a month. I have absolutely no idea how to even begin to think about getting a transplant. Everytime even start to remotely think about it I just start balling with anxiety. My FEV1 is 17% and I know thats really really bad.

Please help me!!! anyone who has had a transplant I would really like to hear how it went for you, all the ups and downs. They told me at the clinic the best way to understand a transplant is to talk to people who have had it. If you message me, I can give you my home phone number, maybe we can talk on the phone or something. Anything would help.

annieop86 · Jan 9, 2009

I went to the doctor again yesterday and he said we have to start talking about lung transplants now. He gave me a whole bunch of literature and told me to think about it and get back to him in a month. I have absolutely no idea how to even begin to think about getting a transplant. Everytime even start to remotely think about it I just start balling with anxiety. My FEV1 is 17% and I know thats really really bad.

Please help me!!! anyone who has had a transplant I would really like to hear how it went for you, all the ups and downs. They told me at the clinic the best way to understand a transplant is to talk to people who have had it. If you message me, I can give you my home phone number, maybe we can talk on the phone or something. Anything would help.

annieop86 · Jan 9, 2009

I went to the doctor again yesterday and he said we have to start talking about lung transplants now. He gave me a whole bunch of literature and told me to think about it and get back to him in a month. I have absolutely no idea how to even begin to think about getting a transplant. Everytime even start to remotely think about it I just start balling with anxiety. My FEV1 is 17% and I know thats really really bad.
 
 Please help me!!! anyone who has had a transplant I would really like to hear how it went for you, all the ups and downs. They told me at the clinic the best way to understand a transplant is to talk to people who have had it. If you message me, I can give you my home phone number, maybe we can talk on the phone or something. Anything would help.

JazzysMom · Jan 9, 2009

There are so many stories. If you are serious about getting info I suggest you search this site or go to the transplant sectioin on here as well as go to

<a target=_blank class=ftalternatingbarlinklarge href="http://transplantbuddies.org/
">http://transplantbuddies.org/
</a>

There is just so many things to cover for one thread to do it all.

JazzysMom · Jan 9, 2009

There are so many stories. If you are serious about getting info I suggest you search this site or go to the transplant sectioin on here as well as go to

<a target=_blank class=ftalternatingbarlinklarge href="http://transplantbuddies.org/
">http://transplantbuddies.org/
</a>

There is just so many things to cover for one thread to do it all.

JazzysMom · Jan 9, 2009

There are so many stories. If you are serious about getting info I suggest you search this site or go to the transplant sectioin on here as well as go to

<a target=_blank class=ftalternatingbarlinklarge href="http://transplantbuddies.org/
">http://transplantbuddies.org/
</a>

There is just so many things to cover for one thread to do it all.

JazzysMom · Jan 9, 2009

There are so many stories. If you are serious about getting info I suggest you search this site or go to the transplant sectioin on here as well as go to

<a target=_blank class=ftalternatingbarlinklarge href="http://transplantbuddies.org/
">http://transplantbuddies.org/
</a>

There is just so many things to cover for one thread to do it all.

JazzysMom · Jan 9, 2009

There are so many stories. If you are serious about getting info I suggest you search this site or go to the transplant sectioin on here as well as go to
 
 <a target=_blank class=ftalternatingbarlinklarge href="http://transplantbuddies.org/
">http://transplantbuddies.org/
</a> 
 
 There is just so many things to cover for one thread to do it all.

Landy · Jan 10, 2009

I believe there is also a site called SecondWind or something like that for lung transplant recipients to post on--possibly you could read some stories there too.

I thought you had discussed tx with your doctor back in April and they said that due to your parents smoking in the house that you would not be a candidate? Has that changed? If so, that's good.
<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=31673&highlight_key=y
">http://forums.cysticfibrosis.c...highlight_key=y
</a>

Landy · Jan 10, 2009

I believe there is also a site called SecondWind or something like that for lung transplant recipients to post on--possibly you could read some stories there too.

I thought you had discussed tx with your doctor back in April and they said that due to your parents smoking in the house that you would not be a candidate? Has that changed? If so, that's good.
<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=31673&highlight_key=y
">http://forums.cysticfibrosis.c...highlight_key=y
</a>

Landy · Jan 10, 2009

I believe there is also a site called SecondWind or something like that for lung transplant recipients to post on--possibly you could read some stories there too.

I thought you had discussed tx with your doctor back in April and they said that due to your parents smoking in the house that you would not be a candidate? Has that changed? If so, that's good.
<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=31673&highlight_key=y
">http://forums.cysticfibrosis.c...highlight_key=y
</a>

Landy · Jan 10, 2009

I believe there is also a site called SecondWind or something like that for lung transplant recipients to post on--possibly you could read some stories there too.

I thought you had discussed tx with your doctor back in April and they said that due to your parents smoking in the house that you would not be a candidate? Has that changed? If so, that's good.
<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=31673&highlight_key=y
">http://forums.cysticfibrosis.c...highlight_key=y
</a>

Landy · Jan 10, 2009

I believe there is also a site called SecondWind or something like that for lung transplant recipients to post on--possibly you could read some stories there too.
 
 I thought you had discussed tx with your doctor back in April and they said that due to your parents smoking in the house that you would not be a candidate? Has that changed? If so, that's good.
 <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=31673&highlight_key=y
 ">http://forums.cysticfibrosis.c...highlight_key=y
 </a>

annieop86 · Jan 10, 2009