How do you Cope on the bad days?

[mamaScarlett]

Hey guys....
Ive been feeling down lately. (i think its partly hormones being wacky).
I know I can't be the only mom struggling to make sense of it all, so I thought it would be nice to share how we all cope with the difficulties of being a mom with cf.

When you can't run after the toddler like other moms can! When you can't go to that party with your kid bc of colds/germs! While you're doing your vest your 2 year old is tearing up the pantry...

Those are the annoyances that we deal with and laugh at later-what has been really getting me down lately has been the what ifs. I'm lucky enough to have a measure of good health now-so its not like I'm in crisis or anything. Its late at night, when its the end of the day and I'm tired and not feeling good-thats when I feel inadequate. Thats when I think-'when will the ball drop?' What if my Cf takes a sudden turn, (even though my doctors have told me over and over they don't see that coming for me too soon) (can I have another child...should I?) I think bc of life with Cf (and a few other messed up things in my past) I'm always waiting for the ball to drop. B/c, well, it did. My parents abandoned my brother and I. We were adopted into a family where my new mom loved us and my new dad didn't want us. Wanting to go to parties...and being stuck in the hospital.
The ball did drop alot for me.

The thing is, it hasn't dropped much in a long long time-thanks to hard work on my part, genes, luck, and love.
Does anyone relate to that? How do I get used to the idea that no-I didn't die at 12 years old...and I'm not living on borrowed time. I'm ok. No, my husband isnt going to walk out on me.
And biggest-how can I stop comparing myself to moms without Cf? I know I'll never be the soccer mom, coaching and driving around mine and everyone else's kids-and I'm ok with that. But once in a while, I just wish I didn't have to think about Cf everyday and its impact-like other moms.

And I wish I had more energy.
Oh do I wish...

Anyway, If anyone even reads this I'll be so grateful. Its so therapeutic for me just to write all this down and send it out there-so therapeutic. Other people care, but no one but you guys can really understand.
Thank you.

 

[mamaScarlett]

Hey guys....
Ive been feeling down lately. (i think its partly hormones being wacky).
I know I can't be the only mom struggling to make sense of it all, so I thought it would be nice to share how we all cope with the difficulties of being a mom with cf.

When you can't run after the toddler like other moms can! When you can't go to that party with your kid bc of colds/germs! While you're doing your vest your 2 year old is tearing up the pantry...

Those are the annoyances that we deal with and laugh at later-what has been really getting me down lately has been the what ifs. I'm lucky enough to have a measure of good health now-so its not like I'm in crisis or anything. Its late at night, when its the end of the day and I'm tired and not feeling good-thats when I feel inadequate. Thats when I think-'when will the ball drop?' What if my Cf takes a sudden turn, (even though my doctors have told me over and over they don't see that coming for me too soon) (can I have another child...should I?) I think bc of life with Cf (and a few other messed up things in my past) I'm always waiting for the ball to drop. B/c, well, it did. My parents abandoned my brother and I. We were adopted into a family where my new mom loved us and my new dad didn't want us. Wanting to go to parties...and being stuck in the hospital.
The ball did drop alot for me.

The thing is, it hasn't dropped much in a long long time-thanks to hard work on my part, genes, luck, and love.
Does anyone relate to that? How do I get used to the idea that no-I didn't die at 12 years old...and I'm not living on borrowed time. I'm ok. No, my husband isnt going to walk out on me.
And biggest-how can I stop comparing myself to moms without Cf? I know I'll never be the soccer mom, coaching and driving around mine and everyone else's kids-and I'm ok with that. But once in a while, I just wish I didn't have to think about Cf everyday and its impact-like other moms.

And I wish I had more energy.
Oh do I wish...

Anyway, If anyone even reads this I'll be so grateful. Its so therapeutic for me just to write all this down and send it out there-so therapeutic. Other people care, but no one but you guys can really understand.
Thank you.

 

[mamaScarlett]

Hey guys....
Ive been feeling down lately. (i think its partly hormones being wacky).
I know I can't be the only mom struggling to make sense of it all, so I thought it would be nice to share how we all cope with the difficulties of being a mom with cf.

When you can't run after the toddler like other moms can! When you can't go to that party with your kid bc of colds/germs! While you're doing your vest your 2 year old is tearing up the pantry...

Those are the annoyances that we deal with and laugh at later-what has been really getting me down lately has been the what ifs. I'm lucky enough to have a measure of good health now-so its not like I'm in crisis or anything. Its late at night, when its the end of the day and I'm tired and not feeling good-thats when I feel inadequate. Thats when I think-'when will the ball drop?' What if my Cf takes a sudden turn, (even though my doctors have told me over and over they don't see that coming for me too soon) (can I have another child...should I?) I think bc of life with Cf (and a few other messed up things in my past) I'm always waiting for the ball to drop. B/c, well, it did. My parents abandoned my brother and I. We were adopted into a family where my new mom loved us and my new dad didn't want us. Wanting to go to parties...and being stuck in the hospital.
The ball did drop alot for me.

The thing is, it hasn't dropped much in a long long time-thanks to hard work on my part, genes, luck, and love.
Does anyone relate to that? How do I get used to the idea that no-I didn't die at 12 years old...and I'm not living on borrowed time. I'm ok. No, my husband isnt going to walk out on me.
And biggest-how can I stop comparing myself to moms without Cf? I know I'll never be the soccer mom, coaching and driving around mine and everyone else's kids-and I'm ok with that. But once in a while, I just wish I didn't have to think about Cf everyday and its impact-like other moms.

And I wish I had more energy.
Oh do I wish...

Anyway, If anyone even reads this I'll be so grateful. Its so therapeutic for me just to write all this down and send it out there-so therapeutic. Other people care, but no one but you guys can really understand.
Thank you.

 

[mamaScarlett]

Hey guys....
Ive been feeling down lately. (i think its partly hormones being wacky).
I know I can't be the only mom struggling to make sense of it all, so I thought it would be nice to share how we all cope with the difficulties of being a mom with cf.

When you can't run after the toddler like other moms can! When you can't go to that party with your kid bc of colds/germs! While you're doing your vest your 2 year old is tearing up the pantry...

Those are the annoyances that we deal with and laugh at later-what has been really getting me down lately has been the what ifs. I'm lucky enough to have a measure of good health now-so its not like I'm in crisis or anything. Its late at night, when its the end of the day and I'm tired and not feeling good-thats when I feel inadequate. Thats when I think-'when will the ball drop?' What if my Cf takes a sudden turn, (even though my doctors have told me over and over they don't see that coming for me too soon) (can I have another child...should I?) I think bc of life with Cf (and a few other messed up things in my past) I'm always waiting for the ball to drop. B/c, well, it did. My parents abandoned my brother and I. We were adopted into a family where my new mom loved us and my new dad didn't want us. Wanting to go to parties...and being stuck in the hospital.
The ball did drop alot for me.

The thing is, it hasn't dropped much in a long long time-thanks to hard work on my part, genes, luck, and love.
Does anyone relate to that? How do I get used to the idea that no-I didn't die at 12 years old...and I'm not living on borrowed time. I'm ok. No, my husband isnt going to walk out on me.
And biggest-how can I stop comparing myself to moms without Cf? I know I'll never be the soccer mom, coaching and driving around mine and everyone else's kids-and I'm ok with that. But once in a while, I just wish I didn't have to think about Cf everyday and its impact-like other moms.

And I wish I had more energy.
Oh do I wish...

Anyway, If anyone even reads this I'll be so grateful. Its so therapeutic for me just to write all this down and send it out there-so therapeutic. Other people care, but no one but you guys can really understand.
Thank you.

 

[mamaScarlett]

Hey guys....
<br />Ive been feeling down lately. (i think its partly hormones being wacky).
<br />I know I can't be the only mom struggling to make sense of it all, so I thought it would be nice to share how we all cope with the difficulties of being a mom with cf.
<br />
<br />When you can't run after the toddler like other moms can! When you can't go to that party with your kid bc of colds/germs! While you're doing your vest your 2 year old is tearing up the pantry...
<br />
<br />Those are the annoyances that we deal with and laugh at later-what has been really getting me down lately has been the what ifs. I'm lucky enough to have a measure of good health now-so its not like I'm in crisis or anything. Its late at night, when its the end of the day and I'm tired and not feeling good-thats when I feel inadequate. Thats when I think-'when will the ball drop?' What if my Cf takes a sudden turn, (even though my doctors have told me over and over they don't see that coming for me too soon) (can I have another child...should I?) I think bc of life with Cf (and a few other messed up things in my past) I'm always waiting for the ball to drop. B/c, well, it did. My parents abandoned my brother and I. We were adopted into a family where my new mom loved us and my new dad didn't want us. Wanting to go to parties...and being stuck in the hospital.
<br />The ball did drop alot for me.
<br />
<br />The thing is, it hasn't dropped much in a long long time-thanks to hard work on my part, genes, luck, and love.
<br />Does anyone relate to that? How do I get used to the idea that no-I didn't die at 12 years old...and I'm not living on borrowed time. I'm ok. No, my husband isnt going to walk out on me.
<br />And biggest-how can I stop comparing myself to moms without Cf? I know I'll never be the soccer mom, coaching and driving around mine and everyone else's kids-and I'm ok with that. But once in a while, I just wish I didn't have to think about Cf everyday and its impact-like other moms.
<br />
<br />And I wish I had more energy.
<br />Oh do I wish...
<br />
<br />Anyway, If anyone even reads this I'll be so grateful. Its so therapeutic for me just to write all this down and send it out there-so therapeutic. Other people care, but no one but you guys can really understand.
<br />Thank you.

 

[Melissa75]

I just wanted to give you a cyber-hug. What you deal with IS hard and you deserve hugs and praise and sympathy.

 

[Melissa75]

I just wanted to give you a cyber-hug. What you deal with IS hard and you deserve hugs and praise and sympathy.

 

[Melissa75]

I just wanted to give you a cyber-hug. What you deal with IS hard and you deserve hugs and praise and sympathy.

 

[Melissa75]

I just wanted to give you a cyber-hug. What you deal with IS hard and you deserve hugs and praise and sympathy.

 

[Melissa75]

I just wanted to give you a cyber-hug. What you deal with IS hard and you deserve hugs and praise and sympathy.

 

[KarenEliz]

I'm feeling down / sick myself lately. But hoping to postpone a tune up until the new year. I have a first birthday party to plan for my twins and a good 'ol fashioned Christmas to set up for.

I make time to do my Vest and meds at least once a day and I go to the gym usually to swim 4-5X a week. I'm lucky enough to have my mom close by to watch them during those times. Also, I make sure I have help when I did have a tune up over the summer. The most important thing for me is that I get enough sleep. So if the dishes aren't done at night I'm ok with that.

I plan on playing tag, soccer, swimming and anything else with them as grow up, and I tell myself CF won't get in the way. I refuse to have them miss out on anything because of my CF. My mother had that attitude with me when I was younger. I went to all the birthday parties, was a swimmer, played soccer, went on family vacations. She never treated my CF as it it was going to limit me and that's the attitute I've kept. I have a fight attitude towards it, this is my daily life and I know of no other. I tend not to think of the "what if's". So many other things besides CF can hinder anyones plans what good does it do to worry. I do get pissed off at CF every now and then but it makes me want to fight more.

Keep positive. It sounds like you are doing well and doing a great job handeling everything.

 

[KarenEliz]

I'm feeling down / sick myself lately. But hoping to postpone a tune up until the new year. I have a first birthday party to plan for my twins and a good 'ol fashioned Christmas to set up for.

I make time to do my Vest and meds at least once a day and I go to the gym usually to swim 4-5X a week. I'm lucky enough to have my mom close by to watch them during those times. Also, I make sure I have help when I did have a tune up over the summer. The most important thing for me is that I get enough sleep. So if the dishes aren't done at night I'm ok with that.

I plan on playing tag, soccer, swimming and anything else with them as grow up, and I tell myself CF won't get in the way. I refuse to have them miss out on anything because of my CF. My mother had that attitude with me when I was younger. I went to all the birthday parties, was a swimmer, played soccer, went on family vacations. She never treated my CF as it it was going to limit me and that's the attitute I've kept. I have a fight attitude towards it, this is my daily life and I know of no other. I tend not to think of the "what if's". So many other things besides CF can hinder anyones plans what good does it do to worry. I do get pissed off at CF every now and then but it makes me want to fight more.

Keep positive. It sounds like you are doing well and doing a great job handeling everything.

 

[KarenEliz]

I'm feeling down / sick myself lately. But hoping to postpone a tune up until the new year. I have a first birthday party to plan for my twins and a good 'ol fashioned Christmas to set up for.

I make time to do my Vest and meds at least once a day and I go to the gym usually to swim 4-5X a week. I'm lucky enough to have my mom close by to watch them during those times. Also, I make sure I have help when I did have a tune up over the summer. The most important thing for me is that I get enough sleep. So if the dishes aren't done at night I'm ok with that.

I plan on playing tag, soccer, swimming and anything else with them as grow up, and I tell myself CF won't get in the way. I refuse to have them miss out on anything because of my CF. My mother had that attitude with me when I was younger. I went to all the birthday parties, was a swimmer, played soccer, went on family vacations. She never treated my CF as it it was going to limit me and that's the attitute I've kept. I have a fight attitude towards it, this is my daily life and I know of no other. I tend not to think of the "what if's". So many other things besides CF can hinder anyones plans what good does it do to worry. I do get pissed off at CF every now and then but it makes me want to fight more.

Keep positive. It sounds like you are doing well and doing a great job handeling everything.

 

[KarenEliz]

I'm feeling down / sick myself lately. But hoping to postpone a tune up until the new year. I have a first birthday party to plan for my twins and a good 'ol fashioned Christmas to set up for.

I make time to do my Vest and meds at least once a day and I go to the gym usually to swim 4-5X a week. I'm lucky enough to have my mom close by to watch them during those times. Also, I make sure I have help when I did have a tune up over the summer. The most important thing for me is that I get enough sleep. So if the dishes aren't done at night I'm ok with that.

I plan on playing tag, soccer, swimming and anything else with them as grow up, and I tell myself CF won't get in the way. I refuse to have them miss out on anything because of my CF. My mother had that attitude with me when I was younger. I went to all the birthday parties, was a swimmer, played soccer, went on family vacations. She never treated my CF as it it was going to limit me and that's the attitute I've kept. I have a fight attitude towards it, this is my daily life and I know of no other. I tend not to think of the "what if's". So many other things besides CF can hinder anyones plans what good does it do to worry. I do get pissed off at CF every now and then but it makes me want to fight more.

Keep positive. It sounds like you are doing well and doing a great job handeling everything.

 

[KarenEliz]

I'm feeling down / sick myself lately. But hoping to postpone a tune up until the new year. I have a first birthday party to plan for my twins and a good 'ol fashioned Christmas to set up for.
<br />
<br />I make time to do my Vest and meds at least once a day and I go to the gym usually to swim 4-5X a week. I'm lucky enough to have my mom close by to watch them during those times. Also, I make sure I have help when I did have a tune up over the summer. The most important thing for me is that I get enough sleep. So if the dishes aren't done at night I'm ok with that.
<br />
<br />I plan on playing tag, soccer, swimming and anything else with them as grow up, and I tell myself CF won't get in the way. I refuse to have them miss out on anything because of my CF. My mother had that attitude with me when I was younger. I went to all the birthday parties, was a swimmer, played soccer, went on family vacations. She never treated my CF as it it was going to limit me and that's the attitute I've kept. I have a fight attitude towards it, this is my daily life and I know of no other. I tend not to think of the "what if's". So many other things besides CF can hinder anyones plans what good does it do to worry. I do get pissed off at CF every now and then but it makes me want to fight more.
<br />
<br />Keep positive. It sounds like you are doing well and doing a great job handeling everything.

 

[hopesiris]

.

 

[hopesiris]

.

 

[hopesiris]

.

 

[hopesiris]

.

 

[hopesiris]

.