How do you get Mucomyst?

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anonymous

New member
Hey,

I've been taking NAC in pill form. But now I'm reading here that many of you take Mucomyst, which is liquid NAC. (correct me if I'm wrong)
Because of absorption issues, I was thinking that inhaling it would be more efficient. Should I just ask my doc, or what?
How have some of you started taking it?

Christian
 
J

JazzysMom

New member
My understanding (someone correct me if I am wrong) that the form of mucomyst used in the nebs is to get the benefit in the lungs like pulmozyne, but the pill form is to help other areas with thinning the mucous such as the digestive track etc. I have used mucomyst in the past. Not for quiet some time since Pulmozyne came out.
 
A

anonymous

New member
I get the precription for mucomyst from my daughter's doctor. She inhales 2 ml of acetylcysteine, 1 ml of Albuterol and 1ml of
Chromolyn sodium to make the mucomyst solution. She has been inhaling the drug the past six months and I think it has helped her.
Sharon, mom of Sophia, 4 and Jack, 2 both with cf
 
A

anonymous

New member
You seem to have a pretty open minded doc. Did she suggest it, or did you ask for it?
Some docs still aren't looking at alternative therapies like that.

Christian
 
J

JustDucky

New member
My doc prescribed it in the liquid form, been on Mucomyst nebs for quite some time now.... I use the 10 percent concentration, but I do know of a 20 percent solution for inhalation, but my lungs get irritated with that strength. I take 4 mls with Xopenex, good to take with bronchodilators as Mucomyst can cause bronchospasms....It is gnarly, tastes like sulfur or rotting eggs but seems to do a good job loosening up my secretions. Hope I have helped...Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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anonymous

New member
My doc informed me that there have been better results via mucomyst in pill form. But from what I understand...it isn't available in the US as of yet. But overseas I hear it works just as well...and better for some people. He also said that drinking the liquid form can also be effective...I tried that once...just a bit...I am not predicting any new Mucomyst Pepsi anytime soon! YUCK! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 
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anonymous

New member
I took Sophia and Jack to visit the Minneapolis clinic last year. They suggested we use Mucomyst instead of Pulmozyme. Instead, we use both now. My daughter's regular cf doctor is pretty much open to my suggestions that we try new things on Sophia, thankfully. I changed doctors a few years ago when her cf doctor wasn't aggressive enough. He pretty much thought enzymes was enough and cpt wasn't necessary. I disagree.
Sharon, mom of Sophia, 4 and Jack, 2 both with cf
 
E

Ender

New member
I'm sure you can get mucomyst in the states at a health food store...all it is is NAC n acetyl cysteine. Its like 20 bucks here in canada. check it out
 
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JennifersHope

New member
I actually have both Mucymistand Pulmozyme.. I personally like Pulmozyme better.. I think I got better results but since Mucyomist is cheaper for me I am thinking of trying it again...


Jennifer

Praying for a Miracle for John
 
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