I am looking for advice. I am a 39 yo CFer. I have 4 siblings, all of which do not have CF. Both of my sisters have young children. My younger sister has a 6 yo who I worry about. He is very underweight and seems to get sick often in the winter. When he was about 2, her pediatrician wanted them to have him tested. They never did it. I worry about this little guy and don't know how to insist that this should be done. I think some people think if you don't know it will go away or they don't want to know. I am not saying this child has it, I just worry that if he does they are losing valuable therapy time. How do I bring this up in a gentle way that will motivate her to take it seriously and not scare the dickens out of her. Please give some practical advice.
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- Thread starter Skye
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I am looking for advice. I am a 39 yo CFer. I have 4 siblings, all of which do not have CF. Both of my sisters have young children. My younger sister has a 6 yo who I worry about. He is very underweight and seems to get sick often in the winter. When he was about 2, her pediatrician wanted them to have him tested. They never did it. I worry about this little guy and don't know how to insist that this should be done. I think some people think if you don't know it will go away or they don't want to know. I am not saying this child has it, I just worry that if he does they are losing valuable therapy time. How do I bring this up in a gentle way that will motivate her to take it seriously and not scare the dickens out of her. Please give some practical advice.
I am looking for advice. I am a 39 yo CFer. I have 4 siblings, all of which do not have CF. Both of my sisters have young children. My younger sister has a 6 yo who I worry about. He is very underweight and seems to get sick often in the winter. When he was about 2, her pediatrician wanted them to have him tested. They never did it. I worry about this little guy and don't know how to insist that this should be done. I think some people think if you don't know it will go away or they don't want to know. I am not saying this child has it, I just worry that if he does they are losing valuable therapy time. How do I bring this up in a gentle way that will motivate her to take it seriously and not scare the dickens out of her. Please give some practical advice.
I am looking for advice. I am a 39 yo CFer. I have 4 siblings, all of which do not have CF. Both of my sisters have young children. My younger sister has a 6 yo who I worry about. He is very underweight and seems to get sick often in the winter. When he was about 2, her pediatrician wanted them to have him tested. They never did it. I worry about this little guy and don't know how to insist that this should be done. I think some people think if you don't know it will go away or they don't want to know. I am not saying this child has it, I just worry that if he does they are losing valuable therapy time. How do I bring this up in a gentle way that will motivate her to take it seriously and not scare the dickens out of her. Please give some practical advice.
I am looking for advice. I am a 39 yo CFer. I have 4 siblings, all of which do not have CF. Both of my sisters have young children. My younger sister has a 6 yo who I worry about. He is very underweight and seems to get sick often in the winter. When he was about 2, her pediatrician wanted them to have him tested. They never did it. I worry about this little guy and don't know how to insist that this should be done. I think some people think if you don't know it will go away or they don't want to know. I am not saying this child has it, I just worry that if he does they are losing valuable therapy time. How do I bring this up in a gentle way that will motivate her to take it seriously and not scare the dickens out of her. Please give some practical advice.
It's so hard to say without know you or your sister, but I think the straight forward approach is best.... just what you said, they could be missing out on valuable treatments now, ignoring it is not going to change the outcome - either he has CF or not, by not testing they are not going to change it. You could mention that since the pediatrician also brought it up, you are not the only one concerned. Also .... how are things with your parents and her? Perhaps their perspective on this would help, since they had to have gone through something similar with you..... good luck
It's so hard to say without know you or your sister, but I think the straight forward approach is best.... just what you said, they could be missing out on valuable treatments now, ignoring it is not going to change the outcome - either he has CF or not, by not testing they are not going to change it. You could mention that since the pediatrician also brought it up, you are not the only one concerned. Also .... how are things with your parents and her? Perhaps their perspective on this would help, since they had to have gone through something similar with you..... good luck
It's so hard to say without know you or your sister, but I think the straight forward approach is best.... just what you said, they could be missing out on valuable treatments now, ignoring it is not going to change the outcome - either he has CF or not, by not testing they are not going to change it. You could mention that since the pediatrician also brought it up, you are not the only one concerned. Also .... how are things with your parents and her? Perhaps their perspective on this would help, since they had to have gone through something similar with you..... good luck
It's so hard to say without know you or your sister, but I think the straight forward approach is best.... just what you said, they could be missing out on valuable treatments now, ignoring it is not going to change the outcome - either he has CF or not, by not testing they are not going to change it. You could mention that since the pediatrician also brought it up, you are not the only one concerned. Also .... how are things with your parents and her? Perhaps their perspective on this would help, since they had to have gone through something similar with you..... good luck
It's so hard to say without know you or your sister, but I think the straight forward approach is best.... just what you said, they could be missing out on valuable treatments now, ignoring it is not going to change the outcome - either he has CF or not, by not testing they are not going to change it. You could mention that since the pediatrician also brought it up, you are not the only one concerned. Also .... how are things with your parents and her? Perhaps their perspective on this would help, since they had to have gone through something similar with you..... good luck
It's so hard to say without know you or your sister, but I think the straight forward approach is best.... just what you said, they could be missing out on valuable treatments now, ignoring it is not going to change the outcome - either he has CF or not, by not testing they are not going to change it. You could mention that since the pediatrician also brought it up, you are not the only one concerned. Also .... how are things with your parents and her? Perhaps their perspective on this would help, since they had to have gone through something similar with you..... good luck
It's so hard to say without know you or your sister, but I think the straight forward approach is best.... just what you said, they could be missing out on valuable treatments now, ignoring it is not going to change the outcome - either he has CF or not, by not testing they are not going to change it. You could mention that since the pediatrician also brought it up, you are not the only one concerned. Also .... how are things with your parents and her? Perhaps their perspective on this would help, since they had to have gone through something similar with you..... good luck
It's so hard to say without know you or your sister, but I think the straight forward approach is best.... just what you said, they could be missing out on valuable treatments now, ignoring it is not going to change the outcome - either he has CF or not, by not testing they are not going to change it. You could mention that since the pediatrician also brought it up, you are not the only one concerned. Also .... how are things with your parents and her? Perhaps their perspective on this would help, since they had to have gone through something similar with you..... good luck
It's so hard to say without know you or your sister, but I think the straight forward approach is best.... just what you said, they could be missing out on valuable treatments now, ignoring it is not going to change the outcome - either he has CF or not, by not testing they are not going to change it. You could mention that since the pediatrician also brought it up, you are not the only one concerned. Also .... how are things with your parents and her? Perhaps their perspective on this would help, since they had to have gone through something similar with you..... good luck
It's so hard to say without know you or your sister, but I think the straight forward approach is best.... just what you said, they could be missing out on valuable treatments now, ignoring it is not going to change the outcome - either he has CF or not, by not testing they are not going to change it. You could mention that since the pediatrician also brought it up, you are not the only one concerned. Also .... how are things with your parents and her? Perhaps their perspective on this would help, since they had to have gone through something similar with you..... good luck
clawson5104
New member
well, i am with you on the straight forward approach. although it still has not worked for me. my brother's daughters have not been tested and one gets sick every winter almost the same time as my son. and had alot of bowel problems before she turned one. but i tell them straight up they have great insurance, she has some mild symptoms and a cousin with atypical cf, that she should definitely be tested, and they say,,"she's not sick that much, or every year, she gets colds, but not that sick".....seriously this kid had the croup so much she knows how to make a tent over her bed (and instruct anbody else how) to help calm the cough and help the breathing.....but they think she doesn't get sick that much....she's 8 now, but knew how to do this by 4yrs old...... hello. ....so yeah, just be straight forward, stress the fact that early detection means early prevention, better quality of life......what kid wants to be sick all the time, when they could be playing!!! and treatments and meds may add years to their life. and if it's about the parent....sorry...but sometimes this is the case.....mention how much more sleep they will get if their kid's not sick ALL THE TIME and UP ALL NIGHT....lol. only thing i know. dont mention the 4-6 breathing treatments and hours of respiratory therapy involved. which she probably already knows....but have "blocked" that part out..
clawson5104
New member
well, i am with you on the straight forward approach. although it still has not worked for me. my brother's daughters have not been tested and one gets sick every winter almost the same time as my son. and had alot of bowel problems before she turned one. but i tell them straight up they have great insurance, she has some mild symptoms and a cousin with atypical cf, that she should definitely be tested, and they say,,"she's not sick that much, or every year, she gets colds, but not that sick".....seriously this kid had the croup so much she knows how to make a tent over her bed (and instruct anbody else how) to help calm the cough and help the breathing.....but they think she doesn't get sick that much....she's 8 now, but knew how to do this by 4yrs old...... hello. ....so yeah, just be straight forward, stress the fact that early detection means early prevention, better quality of life......what kid wants to be sick all the time, when they could be playing!!! and treatments and meds may add years to their life. and if it's about the parent....sorry...but sometimes this is the case.....mention how much more sleep they will get if their kid's not sick ALL THE TIME and UP ALL NIGHT....lol. only thing i know. dont mention the 4-6 breathing treatments and hours of respiratory therapy involved. which she probably already knows....but have "blocked" that part out..
clawson5104
New member
well, i am with you on the straight forward approach. although it still has not worked for me. my brother's daughters have not been tested and one gets sick every winter almost the same time as my son. and had alot of bowel problems before she turned one. but i tell them straight up they have great insurance, she has some mild symptoms and a cousin with atypical cf, that she should definitely be tested, and they say,,"she's not sick that much, or every year, she gets colds, but not that sick".....seriously this kid had the croup so much she knows how to make a tent over her bed (and instruct anbody else how) to help calm the cough and help the breathing.....but they think she doesn't get sick that much....she's 8 now, but knew how to do this by 4yrs old...... hello. ....so yeah, just be straight forward, stress the fact that early detection means early prevention, better quality of life......what kid wants to be sick all the time, when they could be playing!!! and treatments and meds may add years to their life. and if it's about the parent....sorry...but sometimes this is the case.....mention how much more sleep they will get if their kid's not sick ALL THE TIME and UP ALL NIGHT....lol. only thing i know. dont mention the 4-6 breathing treatments and hours of respiratory therapy involved. which she probably already knows....but have "blocked" that part out..
clawson5104
New member
well, i am with you on the straight forward approach. although it still has not worked for me. my brother's daughters have not been tested and one gets sick every winter almost the same time as my son. and had alot of bowel problems before she turned one. but i tell them straight up they have great insurance, she has some mild symptoms and a cousin with atypical cf, that she should definitely be tested, and they say,,"she's not sick that much, or every year, she gets colds, but not that sick".....seriously this kid had the croup so much she knows how to make a tent over her bed (and instruct anbody else how) to help calm the cough and help the breathing.....but they think she doesn't get sick that much....she's 8 now, but knew how to do this by 4yrs old...... hello. ....so yeah, just be straight forward, stress the fact that early detection means early prevention, better quality of life......what kid wants to be sick all the time, when they could be playing!!! and treatments and meds may add years to their life. and if it's about the parent....sorry...but sometimes this is the case.....mention how much more sleep they will get if their kid's not sick ALL THE TIME and UP ALL NIGHT....lol. only thing i know. dont mention the 4-6 breathing treatments and hours of respiratory therapy involved. which she probably already knows....but have "blocked" that part out..
clawson5104
New member
well, i am with you on the straight forward approach. although it still has not worked for me. my brother's daughters have not been tested and one gets sick every winter almost the same time as my son. and had alot of bowel problems before she turned one. but i tell them straight up they have great insurance, she has some mild symptoms and a cousin with atypical cf, that she should definitely be tested, and they say,,"she's not sick that much, or every year, she gets colds, but not that sick".....seriously this kid had the croup so much she knows how to make a tent over her bed (and instruct anbody else how) to help calm the cough and help the breathing.....but they think she doesn't get sick that much....she's 8 now, but knew how to do this by 4yrs old...... hello. ....so yeah, just be straight forward, stress the fact that early detection means early prevention, better quality of life......what kid wants to be sick all the time, when they could be playing!!! and treatments and meds may add years to their life. and if it's about the parent....sorry...but sometimes this is the case.....mention how much more sleep they will get if their kid's not sick ALL THE TIME and UP ALL NIGHT....lol. only thing i know. dont mention the 4-6 breathing treatments and hours of respiratory therapy involved. which she probably already knows....but have "blocked" that part out..