ethansmomma
New member
Hi everyone!! I am new to this site - my name is Robin, I am 29, just diagnosed in 2002 w/CF - how they didn't diagnose me until then is beyond me, seriously...
If something similar has been posted before about this, I apologize, again, I am new here, and have been reading and reading as much as I can, and haven't seen anything....
Here's my question. I am married with a son who is 1. I work at a call center taking customer service calls, full time, 9-6. I have worked all of my life doing a similar job. How does one manage to do it all?? And I am so serious. How does a person work a 40 hour job (meaning they are basically gone almost 10 hours a day between lunch and travel time), do all of the required treatments (vest, TOBI, pulmozyme), cook dinner, take care of a child AND a house all in one day??? Since my son came along, I just feel SO overwhelmed! I feel like I am exausted ALL of the time!!! Don't get me wrong, I love my little guy - he is my little angel, and as I have read others say, I just look at him and tell myself that I have to do ALL that I can for ME to be healthy to take care of HIM as long as possible...
My husband has to be the best man in the WORLD. He just goes so far beyond a normal husband... he helps with dishes, laundry, cooking, cleaning... he get's Ethan ready in the mornings... So you see he really helps a lot, and I am STILL exausted. Working part-time at my job is not an option, I have tried. Getting a part time job somewhere else wouldn't even cover daycare costs for Ethan. I would be working just to be able to send him to daycare, and well, what sense does that make.
I was just hoping maybe to get some opinions/suggestions on how to manage it all, and still have maybe some "quality" time with the family, you know??
My husband wants me to quit my job and apply for SSD, I called my doctor's office and talked to the nurse, just to ask where to even start on getting information, not saying that is what I am 100% for sure doing. She said to me, "You aren't disabled.". OK, I know this, all I wanted was information - she just made me feel like the biggest idiot, and like I am trying to get a handout or something from the government. Still makes me mad thinking about that.....
SORRY - if anyone can help me out I would appreciate it..
Oh - my FEV1 is around 65% - and at my last appointment, my doctor even told me that if I keep at the rate I am going, I'm cutting years, basically, off of my life. At one point within the last couple of years I was around 90% FEV1.... And that number has comtinued to drop slightly over the last several appointments.
<img src="i/expressions/face-icon-small-confused.gif" border="0">Thanks everyone - it's been nice reading all about you guys! <img src="i/expressions/face-icon-small-blush.gif" border="0">)
Robin
If something similar has been posted before about this, I apologize, again, I am new here, and have been reading and reading as much as I can, and haven't seen anything....
Here's my question. I am married with a son who is 1. I work at a call center taking customer service calls, full time, 9-6. I have worked all of my life doing a similar job. How does one manage to do it all?? And I am so serious. How does a person work a 40 hour job (meaning they are basically gone almost 10 hours a day between lunch and travel time), do all of the required treatments (vest, TOBI, pulmozyme), cook dinner, take care of a child AND a house all in one day??? Since my son came along, I just feel SO overwhelmed! I feel like I am exausted ALL of the time!!! Don't get me wrong, I love my little guy - he is my little angel, and as I have read others say, I just look at him and tell myself that I have to do ALL that I can for ME to be healthy to take care of HIM as long as possible...
My husband has to be the best man in the WORLD. He just goes so far beyond a normal husband... he helps with dishes, laundry, cooking, cleaning... he get's Ethan ready in the mornings... So you see he really helps a lot, and I am STILL exausted. Working part-time at my job is not an option, I have tried. Getting a part time job somewhere else wouldn't even cover daycare costs for Ethan. I would be working just to be able to send him to daycare, and well, what sense does that make.
I was just hoping maybe to get some opinions/suggestions on how to manage it all, and still have maybe some "quality" time with the family, you know??
My husband wants me to quit my job and apply for SSD, I called my doctor's office and talked to the nurse, just to ask where to even start on getting information, not saying that is what I am 100% for sure doing. She said to me, "You aren't disabled.". OK, I know this, all I wanted was information - she just made me feel like the biggest idiot, and like I am trying to get a handout or something from the government. Still makes me mad thinking about that.....
SORRY - if anyone can help me out I would appreciate it..
Oh - my FEV1 is around 65% - and at my last appointment, my doctor even told me that if I keep at the rate I am going, I'm cutting years, basically, off of my life. At one point within the last couple of years I was around 90% FEV1.... And that number has comtinued to drop slightly over the last several appointments.
<img src="i/expressions/face-icon-small-confused.gif" border="0">Thanks everyone - it's been nice reading all about you guys! <img src="i/expressions/face-icon-small-blush.gif" border="0">)
Robin