How does the body shut down?

AmyO

New member
Good Morning,<br>
<br>
<br>
Below is a question my mother asked that I post:<br>
<br>
<i>Would anyone have any information about how the body starts to
shut down.......inability to keep any food down.....I gave him one
of the anti-nausea pills at 3 pm.....he drank about 8 ounces of
half cranberry half 7-up.....by 6:30 he was wretching
again...everything came up.....I'm going to try another pill at 9
pm.....but now I'm wondering if it the new meds had nothing to do
with it....</i><br>
<br>
The long and short of it.  My father is reaching the end of a
very long road with CF.    At first they thought
that he was having a stroke. Symptoms:<br>
<br>
Vomiting, dizziness, double vision, slurred speech and complete
short term memory loss. He's down to 115lbs he's 5 feet 9 inches
tall.   He can't have a CAT scan.  He can't lay down
and not cough for six minutes straight.  They did blood work
and found that his electrolytes, Magnesium, Sodium are extremely
low, which could be a cause of the above symptoms.  He's so
weak that he can't cough up anything and he's so short of breath he
can't take in any of his inhaled meds.  <br>
<br>
For anyone that has lost a loved one to this disease could you let
me know what the symptoms were?  I know that this is a very
private matter and if you would like to email me personally it
would be much appreciated.  My family and I just don't know
what we should be looking for as the body shuts down, what is
normal and what isn't.  Is there anything that you wished you
did differently as you managed a loved ones care?  <br>
<br>
Thank you in advance for all of your thoughts.  
 

kayleesgrandma

New member
Amy, I haven't been around end-stage cf, but have been around other end-stage patients. I would suggest that if he's vomitting, you hold off on fluids. Is he in the hospital ? If he is, they can give him a shot for nausea. If he had a stroke, there are specific chemicals they can look for in his blood work. If he's been vomitting a lot, his electrolytes are so messed up, along with other chemicals in his body--this could account for the dizziness, and memory loss. If you're at home, try the pill mashed in a little water, or applesauce if he can tolerate it. I am so sorry that you are going thru this. My heart is breaking for you and your family.
 

Jane

Digital opinion leader
This is not a road my family has traveled yet. I'm sorry yours is at this point.

Here is a link to a site that has a ton of CF info. The second link is for the page about end-stage. I hope that it is a help to your mom. Does your dad have hospice?

<a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/CF.htm
">http://www3.nbnet.nb.ca/normap/CF.htm
</a><a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/endstagecf.htm
">http://www3.nbnet.nb.ca/normap/endstagecf.htm
</a>
You are in my thoughts.
 

Allie

New member
When my husband was at the end of his life, he wasn't hungry, and lost a lot of weight, we didn't have a problem with the vomiting, but they gave him an anti nausea medication wiht the morphine, so that's probably why. The not being able to lay down without coughing, being so short of breath he can't do his meds, unfortunately, is all normal. The electrolyte thing, I imagine, is normal, I couldn't really tell you because we did home hospice care, and so we stopped doing everything that wan't necessary for comfort.


Hope it helped some..
 

BigBee

New member
Amy,
I sent you a note earlier about my experience. I was thinking though, maybe check with hospice to see if they can get him injections of anti nausea meds.
 
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