LuvMy2Girls
New member
My daughter is almost 5 mths old & has been in the hospital 3 times for lung infections. We live in Alabama & children's Hospital is supposed to be the best. Well, they said they tested her for cystic fibrosis. They didn't. She is on medicaid and the doctors heve been dragging their feet. She has been on antibiotics at least once evry month,she weighs11 1/2 LBs, she chokes on the mucus so bad she throws up. They are going to do a sweat test, but I want them to do every test possible. Can anyone tell me all the tests that can be done on infants? I'm praying that they come out negative but I want to find out what IS wrong with her instead of never knowing and not knowing how to treat it. I started writng down everything about her and then did some research on cf. It's scary. She isn't thriving like she should, her poop still looks like newborn &is very oily. acid reflux, extended belly, constant lung infections, she is so salty when Ikiss her my lips burn. Her sweat i even sticky. Everyone thinks I am overeacting & just want something to be wrong. I just know SOMETHING IS WRONG. I'm her mother. I've allready started looking for homes close to the beach b/c if she's positive we're moving. But how far do I push until people start questioning me? The hospital allrady turned me into DHR b/c they said I wasn't feeding her & it was their dr who told me to come in. She does have laryngomalacia & everyone is saying that that's what it is. I even had some inlaws say she stayed sick b/c my house isn't clean. And it's not, but it's not nasty. It's cluttered with clothes and toys. I have a 2 yr old who is very attention starved b/c if my 5 mth old cries, she starts coughing and choking and can't brathe. So she pretty much gets held all day. Normaly, the first chance I get to pee is when my husband gets home from work. Anyway, if y'all could pray for Madelyn I would really appreciate it b/c y'all know from experience how hard cf can be. I don't want her going throuhgh that but I will do anything i have to to make her comfortable. I pray that her tests come negative, but I need to know what's wrong also. Please reply and give me some names of tests. thanks.
Paige
Paige