How long does it usually take you?

ladybug

New member
Hey, everyone!

Well, I'm at home on home IVs again. I switched to the local clinic and they were more than willing to let me come home instead of staying inpatient, so my mood, appetite, etc. are better than the last few times I've been in lockup. Its wonderful.

However, I do notice one thing... this time around I'm not getting that "cleaned out" feeling as soon as usual... And, I'm just curiuos how long it usually takes you to start seeing effects of IV antibiotics? Maybe I'm just being paranoid, but generally within a couple of days I used to start feeling better and kinda "dry" in my lungs, whereas now I've been coughing a ton of stuff up (even waking me up at night, which is unusual for me) and the color, consistancy, etc. aren't changing. It has me a bit worried. But, maybe this is more of the norm and seeing results in 2-4 days is unusual? I have been on IV meds (tobra and mero) for 3 full days now.

Any experiences are so very appreciated. I'm just kinda bummed I'm not feeling tons better already and it makes me kinda nervous. I'm scheduled for a 14 day course, which is usual for me. I guess I am just a worry wart lately and always think I won't "bounce back" if I don't feel amazing within a few days....

Hope everyone is well and enjoyed their weekend! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

ladybug

New member
Hey, everyone!

Well, I'm at home on home IVs again. I switched to the local clinic and they were more than willing to let me come home instead of staying inpatient, so my mood, appetite, etc. are better than the last few times I've been in lockup. Its wonderful.

However, I do notice one thing... this time around I'm not getting that "cleaned out" feeling as soon as usual... And, I'm just curiuos how long it usually takes you to start seeing effects of IV antibiotics? Maybe I'm just being paranoid, but generally within a couple of days I used to start feeling better and kinda "dry" in my lungs, whereas now I've been coughing a ton of stuff up (even waking me up at night, which is unusual for me) and the color, consistancy, etc. aren't changing. It has me a bit worried. But, maybe this is more of the norm and seeing results in 2-4 days is unusual? I have been on IV meds (tobra and mero) for 3 full days now.

Any experiences are so very appreciated. I'm just kinda bummed I'm not feeling tons better already and it makes me kinda nervous. I'm scheduled for a 14 day course, which is usual for me. I guess I am just a worry wart lately and always think I won't "bounce back" if I don't feel amazing within a few days....

Hope everyone is well and enjoyed their weekend! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

ladybug

New member
Hey, everyone!

Well, I'm at home on home IVs again. I switched to the local clinic and they were more than willing to let me come home instead of staying inpatient, so my mood, appetite, etc. are better than the last few times I've been in lockup. Its wonderful.

However, I do notice one thing... this time around I'm not getting that "cleaned out" feeling as soon as usual... And, I'm just curiuos how long it usually takes you to start seeing effects of IV antibiotics? Maybe I'm just being paranoid, but generally within a couple of days I used to start feeling better and kinda "dry" in my lungs, whereas now I've been coughing a ton of stuff up (even waking me up at night, which is unusual for me) and the color, consistancy, etc. aren't changing. It has me a bit worried. But, maybe this is more of the norm and seeing results in 2-4 days is unusual? I have been on IV meds (tobra and mero) for 3 full days now.

Any experiences are so very appreciated. I'm just kinda bummed I'm not feeling tons better already and it makes me kinda nervous. I'm scheduled for a 14 day course, which is usual for me. I guess I am just a worry wart lately and always think I won't "bounce back" if I don't feel amazing within a few days....

Hope everyone is well and enjoyed their weekend! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

ladybug

New member
Hey, everyone!

Well, I'm at home on home IVs again. I switched to the local clinic and they were more than willing to let me come home instead of staying inpatient, so my mood, appetite, etc. are better than the last few times I've been in lockup. Its wonderful.

However, I do notice one thing... this time around I'm not getting that "cleaned out" feeling as soon as usual... And, I'm just curiuos how long it usually takes you to start seeing effects of IV antibiotics? Maybe I'm just being paranoid, but generally within a couple of days I used to start feeling better and kinda "dry" in my lungs, whereas now I've been coughing a ton of stuff up (even waking me up at night, which is unusual for me) and the color, consistancy, etc. aren't changing. It has me a bit worried. But, maybe this is more of the norm and seeing results in 2-4 days is unusual? I have been on IV meds (tobra and mero) for 3 full days now.

Any experiences are so very appreciated. I'm just kinda bummed I'm not feeling tons better already and it makes me kinda nervous. I'm scheduled for a 14 day course, which is usual for me. I guess I am just a worry wart lately and always think I won't "bounce back" if I don't feel amazing within a few days....

Hope everyone is well and enjoyed their weekend! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

ladybug

New member
Hey, everyone!

Well, I'm at home on home IVs again. I switched to the local clinic and they were more than willing to let me come home instead of staying inpatient, so my mood, appetite, etc. are better than the last few times I've been in lockup. Its wonderful.

However, I do notice one thing... this time around I'm not getting that "cleaned out" feeling as soon as usual... And, I'm just curiuos how long it usually takes you to start seeing effects of IV antibiotics? Maybe I'm just being paranoid, but generally within a couple of days I used to start feeling better and kinda "dry" in my lungs, whereas now I've been coughing a ton of stuff up (even waking me up at night, which is unusual for me) and the color, consistancy, etc. aren't changing. It has me a bit worried. But, maybe this is more of the norm and seeing results in 2-4 days is unusual? I have been on IV meds (tobra and mero) for 3 full days now.

Any experiences are so very appreciated. I'm just kinda bummed I'm not feeling tons better already and it makes me kinda nervous. I'm scheduled for a 14 day course, which is usual for me. I guess I am just a worry wart lately and always think I won't "bounce back" if I don't feel amazing within a few days....

Hope everyone is well and enjoyed their weekend! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

semperfiohana

Guest
i normally feel better after like 2 or 3 days when i first start iv's. i'm normally in the hospital for those first few days too. this time (i just got a picc on friday) they just let me have the picc placed and come home. so i started meds friday night and i haven't noticed a real difference either. i'm wondering too if there's something else i'm supposed to be doing. cause i'm starting to get a little frustrated because i don't want this round of iv's to feel like a failure or have to be on them for three weeks.
 
S

semperfiohana

Guest
i normally feel better after like 2 or 3 days when i first start iv's. i'm normally in the hospital for those first few days too. this time (i just got a picc on friday) they just let me have the picc placed and come home. so i started meds friday night and i haven't noticed a real difference either. i'm wondering too if there's something else i'm supposed to be doing. cause i'm starting to get a little frustrated because i don't want this round of iv's to feel like a failure or have to be on them for three weeks.
 
S

semperfiohana

Guest
i normally feel better after like 2 or 3 days when i first start iv's. i'm normally in the hospital for those first few days too. this time (i just got a picc on friday) they just let me have the picc placed and come home. so i started meds friday night and i haven't noticed a real difference either. i'm wondering too if there's something else i'm supposed to be doing. cause i'm starting to get a little frustrated because i don't want this round of iv's to feel like a failure or have to be on them for three weeks.
 
S

semperfiohana

Guest
i normally feel better after like 2 or 3 days when i first start iv's. i'm normally in the hospital for those first few days too. this time (i just got a picc on friday) they just let me have the picc placed and come home. so i started meds friday night and i haven't noticed a real difference either. i'm wondering too if there's something else i'm supposed to be doing. cause i'm starting to get a little frustrated because i don't want this round of iv's to feel like a failure or have to be on them for three weeks.
 
S

semperfiohana

Guest
i normally feel better after like 2 or 3 days when i first start iv's. i'm normally in the hospital for those first few days too. this time (i just got a picc on friday) they just let me have the picc placed and come home. so i started meds friday night and i haven't noticed a real difference either. i'm wondering too if there's something else i'm supposed to be doing. cause i'm starting to get a little frustrated because i don't want this round of iv's to feel like a failure or have to be on them for three weeks.
 

lightNlife

New member
My general pattern with IV antibiotics is that I notice sort of a swinging pendulum effect. A typical course of antibiotics for me is usually 2 to 3 weeks. There are times when it has taken a month. During the first week (or more) of IVs I actually feel worse. All those strong chemicals establishing themselves in my body really wears me out, as does the increased frequency of airway clearance. Around the beginning of the second week I start to rally. I start feeling restless and more energetic. The problem is, I often think I can do more than my body is ready for, which is why I've found it beneficial to stay hospitalized even if it's making me crazy. When I am obedient to my body's signals and actually REST while I'm on home IVs, I do much better.

There have been times where I've been on home IVs and thought "hey, I'm not in the hospital so I can just keep doing my usual stuff and just throw the IVs in as needed!" Not so. That's how I exhaust myself and end up needing a longer course of treatment than was the original plan. I'm on home IVs right now and for the most part I am planning to make a Lauren-shaped butt dent on the couch.

Give your body the rest and the break it needs, even if it drives you crazy. I know it's a bummer to not feel well, especially when other IV treatments have been so effective in the past. Remember that CF forgot to read the book about how it's supposed to respond to treatment, and each infection is a new game with its own rules. Should you feel the need for some socialization to pass the time, go ahead and PM me <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll be more than happy to correspond with you from my space on the couch!
 

lightNlife

New member
My general pattern with IV antibiotics is that I notice sort of a swinging pendulum effect. A typical course of antibiotics for me is usually 2 to 3 weeks. There are times when it has taken a month. During the first week (or more) of IVs I actually feel worse. All those strong chemicals establishing themselves in my body really wears me out, as does the increased frequency of airway clearance. Around the beginning of the second week I start to rally. I start feeling restless and more energetic. The problem is, I often think I can do more than my body is ready for, which is why I've found it beneficial to stay hospitalized even if it's making me crazy. When I am obedient to my body's signals and actually REST while I'm on home IVs, I do much better.

There have been times where I've been on home IVs and thought "hey, I'm not in the hospital so I can just keep doing my usual stuff and just throw the IVs in as needed!" Not so. That's how I exhaust myself and end up needing a longer course of treatment than was the original plan. I'm on home IVs right now and for the most part I am planning to make a Lauren-shaped butt dent on the couch.

Give your body the rest and the break it needs, even if it drives you crazy. I know it's a bummer to not feel well, especially when other IV treatments have been so effective in the past. Remember that CF forgot to read the book about how it's supposed to respond to treatment, and each infection is a new game with its own rules. Should you feel the need for some socialization to pass the time, go ahead and PM me <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll be more than happy to correspond with you from my space on the couch!
 

lightNlife

New member
My general pattern with IV antibiotics is that I notice sort of a swinging pendulum effect. A typical course of antibiotics for me is usually 2 to 3 weeks. There are times when it has taken a month. During the first week (or more) of IVs I actually feel worse. All those strong chemicals establishing themselves in my body really wears me out, as does the increased frequency of airway clearance. Around the beginning of the second week I start to rally. I start feeling restless and more energetic. The problem is, I often think I can do more than my body is ready for, which is why I've found it beneficial to stay hospitalized even if it's making me crazy. When I am obedient to my body's signals and actually REST while I'm on home IVs, I do much better.

There have been times where I've been on home IVs and thought "hey, I'm not in the hospital so I can just keep doing my usual stuff and just throw the IVs in as needed!" Not so. That's how I exhaust myself and end up needing a longer course of treatment than was the original plan. I'm on home IVs right now and for the most part I am planning to make a Lauren-shaped butt dent on the couch.

Give your body the rest and the break it needs, even if it drives you crazy. I know it's a bummer to not feel well, especially when other IV treatments have been so effective in the past. Remember that CF forgot to read the book about how it's supposed to respond to treatment, and each infection is a new game with its own rules. Should you feel the need for some socialization to pass the time, go ahead and PM me <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll be more than happy to correspond with you from my space on the couch!
 

lightNlife

New member
My general pattern with IV antibiotics is that I notice sort of a swinging pendulum effect. A typical course of antibiotics for me is usually 2 to 3 weeks. There are times when it has taken a month. During the first week (or more) of IVs I actually feel worse. All those strong chemicals establishing themselves in my body really wears me out, as does the increased frequency of airway clearance. Around the beginning of the second week I start to rally. I start feeling restless and more energetic. The problem is, I often think I can do more than my body is ready for, which is why I've found it beneficial to stay hospitalized even if it's making me crazy. When I am obedient to my body's signals and actually REST while I'm on home IVs, I do much better.

There have been times where I've been on home IVs and thought "hey, I'm not in the hospital so I can just keep doing my usual stuff and just throw the IVs in as needed!" Not so. That's how I exhaust myself and end up needing a longer course of treatment than was the original plan. I'm on home IVs right now and for the most part I am planning to make a Lauren-shaped butt dent on the couch.

Give your body the rest and the break it needs, even if it drives you crazy. I know it's a bummer to not feel well, especially when other IV treatments have been so effective in the past. Remember that CF forgot to read the book about how it's supposed to respond to treatment, and each infection is a new game with its own rules. Should you feel the need for some socialization to pass the time, go ahead and PM me <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll be more than happy to correspond with you from my space on the couch!
 

lightNlife

New member
My general pattern with IV antibiotics is that I notice sort of a swinging pendulum effect. A typical course of antibiotics for me is usually 2 to 3 weeks. There are times when it has taken a month. During the first week (or more) of IVs I actually feel worse. All those strong chemicals establishing themselves in my body really wears me out, as does the increased frequency of airway clearance. Around the beginning of the second week I start to rally. I start feeling restless and more energetic. The problem is, I often think I can do more than my body is ready for, which is why I've found it beneficial to stay hospitalized even if it's making me crazy. When I am obedient to my body's signals and actually REST while I'm on home IVs, I do much better.

There have been times where I've been on home IVs and thought "hey, I'm not in the hospital so I can just keep doing my usual stuff and just throw the IVs in as needed!" Not so. That's how I exhaust myself and end up needing a longer course of treatment than was the original plan. I'm on home IVs right now and for the most part I am planning to make a Lauren-shaped butt dent on the couch.

Give your body the rest and the break it needs, even if it drives you crazy. I know it's a bummer to not feel well, especially when other IV treatments have been so effective in the past. Remember that CF forgot to read the book about how it's supposed to respond to treatment, and each infection is a new game with its own rules. Should you feel the need for some socialization to pass the time, go ahead and PM me <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'll be more than happy to correspond with you from my space on the couch!
 

Solo

New member
Most times I'm feeling better immediately, or at the most, after 1 or 2 days. The last time I was on IVs for 10 days then they let me go home. I only did home IVs once in my life; I despise that idea, I want to live an almost totally normal life; I don't want a needle and wires sticking out of my arm. I'm sure I'll change my mind in the future though, as I enjoy the hospital, but around the 4th or 5th day it gets old real fast, and I miss home. Plus I don't particularly enjoy doing the vest every 4 hours and being a pin cushion for people that do not know what they are doing.
I remember this one night when I was in and some lady that was new was drawing my blood. She must have stuck me like 4 times, and kept on moving the needle around in my skin as if it were remote-controlled. She kept on blaming my veins, I'm sure they have something to do with it, but I think a lot of it has to do with whoever's operating the piercing instrument. Well needless to say she got a few drops of blood on her, so she asked me what I was in for. I seen the blood on her and I told her I have AIDS and the West Nile Virus. You should have seen her face, it was priceless! Nevertheless, I never saw that woman again.
 

Solo

New member
Most times I'm feeling better immediately, or at the most, after 1 or 2 days. The last time I was on IVs for 10 days then they let me go home. I only did home IVs once in my life; I despise that idea, I want to live an almost totally normal life; I don't want a needle and wires sticking out of my arm. I'm sure I'll change my mind in the future though, as I enjoy the hospital, but around the 4th or 5th day it gets old real fast, and I miss home. Plus I don't particularly enjoy doing the vest every 4 hours and being a pin cushion for people that do not know what they are doing.
I remember this one night when I was in and some lady that was new was drawing my blood. She must have stuck me like 4 times, and kept on moving the needle around in my skin as if it were remote-controlled. She kept on blaming my veins, I'm sure they have something to do with it, but I think a lot of it has to do with whoever's operating the piercing instrument. Well needless to say she got a few drops of blood on her, so she asked me what I was in for. I seen the blood on her and I told her I have AIDS and the West Nile Virus. You should have seen her face, it was priceless! Nevertheless, I never saw that woman again.
 

Solo

New member
Most times I'm feeling better immediately, or at the most, after 1 or 2 days. The last time I was on IVs for 10 days then they let me go home. I only did home IVs once in my life; I despise that idea, I want to live an almost totally normal life; I don't want a needle and wires sticking out of my arm. I'm sure I'll change my mind in the future though, as I enjoy the hospital, but around the 4th or 5th day it gets old real fast, and I miss home. Plus I don't particularly enjoy doing the vest every 4 hours and being a pin cushion for people that do not know what they are doing.
I remember this one night when I was in and some lady that was new was drawing my blood. She must have stuck me like 4 times, and kept on moving the needle around in my skin as if it were remote-controlled. She kept on blaming my veins, I'm sure they have something to do with it, but I think a lot of it has to do with whoever's operating the piercing instrument. Well needless to say she got a few drops of blood on her, so she asked me what I was in for. I seen the blood on her and I told her I have AIDS and the West Nile Virus. You should have seen her face, it was priceless! Nevertheless, I never saw that woman again.
 

Solo

New member
Most times I'm feeling better immediately, or at the most, after 1 or 2 days. The last time I was on IVs for 10 days then they let me go home. I only did home IVs once in my life; I despise that idea, I want to live an almost totally normal life; I don't want a needle and wires sticking out of my arm. I'm sure I'll change my mind in the future though, as I enjoy the hospital, but around the 4th or 5th day it gets old real fast, and I miss home. Plus I don't particularly enjoy doing the vest every 4 hours and being a pin cushion for people that do not know what they are doing.
I remember this one night when I was in and some lady that was new was drawing my blood. She must have stuck me like 4 times, and kept on moving the needle around in my skin as if it were remote-controlled. She kept on blaming my veins, I'm sure they have something to do with it, but I think a lot of it has to do with whoever's operating the piercing instrument. Well needless to say she got a few drops of blood on her, so she asked me what I was in for. I seen the blood on her and I told her I have AIDS and the West Nile Virus. You should have seen her face, it was priceless! Nevertheless, I never saw that woman again.
 

Solo

New member
Most times I'm feeling better immediately, or at the most, after 1 or 2 days. The last time I was on IVs for 10 days then they let me go home. I only did home IVs once in my life; I despise that idea, I want to live an almost totally normal life; I don't want a needle and wires sticking out of my arm. I'm sure I'll change my mind in the future though, as I enjoy the hospital, but around the 4th or 5th day it gets old real fast, and I miss home. Plus I don't particularly enjoy doing the vest every 4 hours and being a pin cushion for people that do not know what they are doing.
I remember this one night when I was in and some lady that was new was drawing my blood. She must have stuck me like 4 times, and kept on moving the needle around in my skin as if it were remote-controlled. She kept on blaming my veins, I'm sure they have something to do with it, but I think a lot of it has to do with whoever's operating the piercing instrument. Well needless to say she got a few drops of blood on her, so she asked me what I was in for. I seen the blood on her and I told her I have AIDS and the West Nile Virus. You should have seen her face, it was priceless! Nevertheless, I never saw that woman again.
 
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